veckon wrote:Oxi gave me almost permanent thrush (My only infection related hospitalization during chemo ended up being from, get this, a thrush infection), so what you are describing sounds very familiar. If they examined port and see no reason for concern, i’d Suspect thrush too. You probably need anti-fungal oral medication. If the thrush is affecting your esophageal tract you will get one you have to swallow. Mine was banana flavored. Or at least that’s what the bottle said, I still maintain it was liquid vomit.
benben wrote:Thanks Guys,
I just got my first Zarxio, and talked nurse and ONC into an ultrasound.
They are scheduling it and should get a call in next hour or two about when and where.
Shana wrote:benben wrote:Thanks Guys,
I just got my first Zarxio, and talked nurse and ONC into an ultrasound.
They are scheduling it and should get a call in next hour or two about when and where.
Sorry to hear that you're having port issues, hopefully the sonogram will be negative for a clot and you can keep your port. It's great how you advocate for yourself, you know your body best and when something isn't feeling right. Hope the Zarxio injections are kind to you this week!
Stress is definitely a way of life lately, it's hard to relax and try to pretend that everything is okay. I think my family is just tired of riding on my roller coaster, they are supportive but I know they miss the mom I used to be... I've been cooking more dinners lately to try and restore some "normal" to our lives. This forum has been my go to place when I need to vent or offer support to others, I'm very thankful for that.
Take care,
Shana
veckon wrote:So glad you got it checked out. You rule. Glad it’s not a clot. I did have swollen lymph nodes found during hospitalization, and the scan report said something similarly scary, but I actually had an infection from the thrush so that explained it. I am really sorry you have to worry about that now, but I am also glad you got it checked out because if it is anything at all, better to catch it as early as possible, always. My thoughts are with you, please keep us updated.
Shana wrote:Hi Ben,
I hope that this is just related to an infection which can be treated with the proper antibiotics. Stress is part of life, it's just focused differently now. I get CEA and CT Scan anxiety now, I want to know where I'm at but afraid of negative news. It's good that work keeps your mind occupied, I miss working but all the complications that I had earlier this year forced me to take a leave of absence. I don't think I'll be going back since there's too much exposure to the public which I try to avoid.
Hope you feel better soon and further tests are negative for metastasis. Sending you lots of positive thoughts and good karma!
Shana
MissMolly wrote:BenBen:
I have been reading your posts and notice your legitimate concerns for infection owing to low WBC and neuropeotic. I share with you a severely compromised immune system, mine owing to bone marrow suppression effects of long term corticosteroids.
I do not wear facial/air particulate masks when I am out of the house. I do avoid congested public venues. I choose a seat in the hospital waiting area that is far to a corner or outer edge of the waiting room, or I stand in an adjacent hallway. I grocery shop at Whole Foods for its quality of food sourcing.
The most important means of keeping yourself free from secondary infection is through hand washing and keeping hands away from your face - particularly keeping your hands away from your eyes, nose, and mouth. Bacteria have to have a portal of entry into the body. For people who are immunosuporessed, it is imperative to keep one's hands away from one's face.
There have been varied studies that have monitored how many times people touch their face in the course of 15 minutes. Reports of 30 + hands to face contacts. A scratch of the nose. A rub to the corner of an eye. Smoothing and combing of hair with the fingers. Resting the chin in the palm of a hand.
Your number one defense against infection is avoiding touching your face with your hands + thorough hand washing.
I have taken these two practices to heart myself in being mindful not to allow bacteria to find access via my eyes, nose, and mouth.
Karen
sreekanth wrote:I had the port placement surgery last week (8/17/17 Thu) and the first infusion the same day.
My right side of the neck also felt tender earlier this week. I ignored it thinking it is must be from the port and the incision they made to watch the procedure through a scope. It is not bothering me now.
If I were you, I would call the clinic nurse.
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