High CEA reason for ct scans being moved up

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Lee
Posts: 6202
Joined: Sun Apr 16, 2006 4:09 pm

Re: High CEA reason for ct scans being moved up

Postby Lee » Tue Aug 22, 2017 6:15 pm

Have fun on your vacation. Don't let this muck up your vacation.

I'm in the mountains right know. About 70ish. Loving it. Guess Phoenix last I heard was 104. Trump is giving a rally there tonight. Some people around here think 104 is down right pleasant, others not from around here think we are crazy and that it's too hot. One of my former bosses LOVED the heat and would love to go out working when it was triple digit.

Lee
Last edited by Lee on Tue Aug 22, 2017 6:20 pm, edited 1 time in total.
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

DarknessEmbraced
Posts: 3578
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: High CEA reason for ct scans being moved up

Postby DarknessEmbraced » Tue Aug 22, 2017 6:19 pm

I definitely won't let it ruin our vacation! :) Que sera, sera. What wil be, will be. :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

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susie0915
Posts: 945
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: High CEA reason for ct scans being moved up

Postby susie0915 » Tue Aug 22, 2017 6:22 pm

Yes, enjoy your vacation and try not to worry.
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoidoscopy/only scar tissue left
8/15 PET scan NED
9/15 LAR
0/24 nodes
10/15 blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 C 4mm lung nod
10/17 pel/abd CT NED
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, CT pel/abd/lung NED
11/18 CEA .6
5/19 CT NED, CEA <.5
10/19 Clear colonscopy
11/19 CEA <.5

DarknessEmbraced
Posts: 3578
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: High CEA reason for ct scans being moved up

Postby DarknessEmbraced » Tue Aug 22, 2017 6:24 pm

Thank you Susie! :)
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

jhocno197
Posts: 817
Joined: Mon May 11, 2015 9:33 pm

Re: High CEA reason for ct scans being moved up

Postby jhocno197 » Tue Aug 22, 2017 8:01 pm

Praying for you.
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17

ams5796
Posts: 2298
Joined: Fri Feb 06, 2009 10:07 am

Re: High CEA reason for ct scans being moved up

Postby ams5796 » Tue Aug 22, 2017 8:17 pm

I'm thinking of you. Cancer is always such a worry. Enjoy your vacation.


Ann
Stage 3C (or 4?) Rectal Cancer 01/07
2/10 lung mets
3/11 VATS
6/11 VATS
7/13 lung met
2/14 SBRT
NED 8/14
5/17 scan and MRI found treated spine met

mariane
Posts: 687
Joined: Sun Sep 13, 2015 6:16 pm

Re: High CEA reason for ct scans being moved up

Postby mariane » Tue Aug 22, 2017 8:46 pm

Dakness Embraced, can you somehow recheck your CEA even before the scans? Lab mistakes happen. They are not as rare as we think.
Good Luck,
mom of now 12 years old twins, dx @ 40 in 6/2015 with upper rectal cancer, 10+ liver mets, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!

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Cowgirl918
Posts: 319
Joined: Sun Jan 17, 2016 12:55 am
Location: Indiana

Re: High CEA reason for ct scans being moved up

Postby Cowgirl918 » Tue Aug 22, 2017 10:30 pm

I agree with Lee about unusual jump. We can say "don't worry" but that is very hard to do. Try to focus on nurturing yourself while waiting on the scan and do something fun. I always figure I will be very good to myself just because I have to endure another procedure :lol: . It does help a little. I am already planning my outfit for my next procedure. My daughter laughs butt everything is better when we love ourselves. Hugs back at you girl. Praying for good things!
HX Colon Polyps Villious and Tubillovillous
12/29/15 Colonoscopy/Endoscopy - Ascending Colon Mass- Hemicolectomy Scheduled
1/17/2016 Right Hemicolectomy Cancelled
1/25/2016 CT No evidence of other disease
2/12/2016 EMR-ascending colon mass 80% removed
5/29/2016 Compressed lumbar spinal fracture (riding accident)
8/12/2016 EMR #2 ascending colon mass curative
8/13/16 NED
10/18/16 Autoimmune Diseases confirmed

DarknessEmbraced
Posts: 3578
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: High CEA reason for ct scans being moved up

Postby DarknessEmbraced » Tue Aug 22, 2017 11:04 pm

Thanks Cowgirl, Mariane, ams, and jhocno! I don't think the doctor would have the lab order the CEA test that soon. They already have it set for every 3 months. You're right Cowgirl, it's important to nurture ourselves! :)
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

TXLiz
Posts: 249
Joined: Thu Sep 22, 2016 3:31 pm

Re: High CEA reason for ct scans being moved up

Postby TXLiz » Tue Aug 22, 2017 11:49 pm

DarknessEmbraced wrote:I definitely won't let it ruin our vacation! :) Que sera, sera. What wil be, will be. :D



:D :lol: :mrgreen: :wink:

Get that vacation in! Party like it's 1999!
Vomiting and blockage 9/19/16 46 y F
R hemi colectomy 9/20/16
Stage 3 B CRC, located in cecum
3 out of 16 lymph nodes positive
perineural invasion/lymphovascular invasion
infiltrating, mod differentiated adenocarcinoma with a mucinous component
separate tumor nodules present in pericolonic adipose tissue
MSI-high
Baseline PET scan clear 9/16 CEA 0.5
FOLFOX 10/16- 3/17
April 16th, CT scan clear. CEA 1.1
Lynch "inconclusive"
Colonoscopy 10/5/2017 clear

Mercy110
Posts: 117
Joined: Wed Aug 16, 2017 12:13 am

Re: High CEA reason for ct scans being moved up

Postby Mercy110 » Wed Aug 23, 2017 5:58 am

My mum got the same problem for CEA. I am going to pick up her report tmr. Hope you both doing well!
My Mum (age 56), NRAS-mutate Q61R (from HK)
2017-05: Surgery with stoma. T4N1M0. Stage3C. Xeloda Only. Increasing CEA. CT: Multiple lung nodules. Stage4.
2017-09: 85% FOLFOX + Avastin, stable CT
2018-03 to 05: Folfox Allergy, Folfiri (with Avastin since Oct)
2019: CEA:178, started Irinotecan+Zaltrip+TS-1, 25 times radio with xeloda
2020: CEA up, Stivarga for 6 months
2021: CEA up, 7L O2 and 24-hour morphine, on pc care
At peace 2021.4.14

Stewsbetty
Posts: 170
Joined: Thu Jul 14, 2016 7:08 am

Re: High CEA reason for ct scans being moved up

Postby Stewsbetty » Wed Aug 23, 2017 6:20 am

Hi darkness,

I would go to the dr and just ask for another CEA. I'm a fellow Canadian and I have been getting mine done more regularly because it went up. It's just an extra vial of blood and it might help keep the blood pressure down. :)

Beth
42yo At diagnosis. Female in BC, Canada
Dx: CC ascending
Right Hemi colectomy 06/16 clear margins
Adenocarcinoma 6cm High Grade
pT3 pN2a Stage 3
10 out of 16 lymph involved
MSI-h, Kras mut, Braf wild
Finished chemo Feb. 2017
PET scan showing active area April 2017
July 2017 CT showing LN mass and spread to other LN
Stage 4
Aug 2017 failed Fofiri
Sept 2017 keytruda scans every 3 months showing shrinkage and stability
November 2018 CT shows only 1 small tumour left
September 2019 clear CT finally NED!!!

DarknessEmbraced
Posts: 3578
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: High CEA reason for ct scans being moved up

Postby DarknessEmbraced » Wed Aug 23, 2017 7:28 am

Thank you Liz, Mercy and Stewsbetty! I will Liz! I hope everything will be ok with your mother Mercy!*hugs* Stewsbetty, it's hard to get a hold of my doctor's office most of the time they don't answer the phone right away and it's hard for me to get them to return messages. I know the doctor will just say that we will wait and see what the ct scan shows or doesn't show. Honestly, it's more stressful dealing with the doctor's office than waiting for the ct scan. Besides I will be getting my CEA checked again in November. :)
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)


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