This F'N Fistula!!!!!

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jep
Posts: 260
Joined: Sun Jun 11, 2017 7:45 pm
Location: New England, USA

This F'N Fistula!!!!!

Postby jep » Tue Aug 22, 2017 6:59 am

Hi everyone. My husband finally started chemo on August 14 and everything seemed to go really well (not even any cold sensitivity) . . . then 2 nights ago his insicion sight opened up (again) and is leaking feces. I took him to the emergency room yesterday (doc's orders) and they put him back on antibiotics and they put the bag back on the surgical sight. He's beyond pissed . . . that's the only way I can describe his emotional state. The docs want him to continue with chemo (which we're happy about); I guess they feel that it's been soooooo long since his surgery that chemo is a must at this point. He does still have 1 surgical drain for this f'n fistula (which is now razor thin), but the abcess cleared up and they gave him the green light for chemo. Initially the docs said folfox w/o avastin (for now), and then the onc changed his mind and said that he would be OK with the avastin. It seems to me that the avastin caused this fistula to act up, and his wound to reopen. Does anyone have thoughts on this? Could this just be a coincidence? I mean, if avastin causes fistulas, I can only imagine what it does to an existing fistula. Please let me know your thoughts on this. Thanks everyone . . .

p.s. they did a CT scan at the hospital and the fistula looks the same . . . no changes.
Stage IV CC 5/16/17
Loc: recto-sig
Type: Adenocarcinoma
Size: 7.4 cm
Grade: G3
TNM: T3N2M1
LNs: 8/20
BL CEA: .9
LVI: present
Perineural invasion: present
LAR margins: clear (w/in microns)
Folfox (8/17-1/18)
Scope 6/18 - CLEAR! - 2 polyps
PET 10/17/18: 3 pos LNs
Irino + Vecti (11/18)
CEA: 1.7 (2/19)
Xel + rad (5/19)
Surgery: 8/21/19 (aborted)
P1 Trial 10/19 - 12/19
Bypass 12/6/19
Folfox + vecti 1/2/19 - 4/3/20
Kid Fail 5/1/20
Folfiri + Avastin 5/20 - 6/20
bypass 6/29/20
Stivarga 7/18/20 -
Home 9/10/20

Volfan
Posts: 73
Joined: Sat Mar 11, 2017 7:58 am

Re: This F'N Fistula!!!!!

Postby Volfan » Tue Aug 22, 2017 7:18 am

I can't speak for your specific case but my doc did not start me on the Avastin until the rectal tumor had stopped bleeding and the anal fissure had healed up. He was very adamant not wanting any bleeding while on the avastin.
Stage IV Rectal cancer with liver mets
Oxaliplatin, avastin, 5fu
48 yr dude

DarknessEmbraced
Posts: 3817
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: This F'N Fistula!!!!!

Postby DarknessEmbraced » Tue Aug 22, 2017 12:02 pm

I'm so sorry your husband is having such an awful time!*hugs* I hope his fistula heals soon and that his chemo goes well!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Lee
Posts: 6207
Joined: Sun Apr 16, 2006 4:09 pm

Re: This F'N Fistula!!!!!

Postby Lee » Tue Aug 22, 2017 3:28 pm

I'm so sorry, that has got to be rough. He might want to keep the bag a bit longer and let that Fistula heal up good and strong. Hope he's doing better soon.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

Stewsbetty
Posts: 170
Joined: Thu Jul 14, 2016 7:08 am

Re: This F'N Fistula!!!!!

Postby Stewsbetty » Tue Aug 22, 2017 6:58 pm

I just started on folfiri and my drs decided to go without avastin because of a fistula between the tumour and duodenum. They are concerned it could cause bleeding. Sometimes it feels like the drs are not seeing us as people. Just as another case to get through. I hope that your husbands fistula will show signs of healing.
42yo At diagnosis. Female in BC, Canada
Dx: CC ascending
Right Hemi colectomy 06/16 clear margins
Adenocarcinoma 6cm High Grade
pT3 pN2a Stage 3
10 out of 16 lymph involved
MSI-h, Kras mut, Braf wild
Finished chemo Feb. 2017
PET scan showing active area April 2017
July 2017 CT showing LN mass and spread to other LN
Stage 4
Aug 2017 failed Fofiri
Sept 2017 keytruda scans every 3 months showing shrinkage and stability
November 2018 CT shows only 1 small tumour left
September 2019 clear CT finally NED!!!


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