STAGE 4 / just checking in 11 years later/cancer free

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scottg
Posts: 140
Joined: Wed May 31, 2006 8:27 am

STAGE 4 / just checking in 11 years later/cancer free

Postby scottg » Thu Aug 17, 2017 11:20 pm

stage 4 2 hipecs/ 2 years chemo,3 big surgeries/cancer free diag 2006,,,it can be beaten!!!!!!!!!!!!!!!!!!!!!!!!!

BIG ROB 69
Posts: 63
Joined: Sun Aug 28, 2016 2:00 am
Location: Long Island, NY

Re: STAGE 4 / just checking in 11 years later/cancer free

Postby BIG ROB 69 » Fri Aug 18, 2017 1:30 am

Fuken A. Congrats brother, and thanks for the heaping of hope. God bless.
3/18/2015 DX CC Stage3/4 49YO MALE IN NEW YORK
Inoperable...hepatic artery
11/15 oper to rem block...colon bypass
4/16 oper to remove scar tissue
5/16 Lynch pos.
10/16 Two bile tubes installed to relieve jaundice
So far I have done the three main chemo drug rounds and on 12/19/16 start Keytruda.
No chemo after 8/3/16 CEA: 10/14/16-409 12/19/16- 887 Mostly my CEA was in the 140-180 range.
CEA: 1/9/17-415 1/30/17-156.2 2/20/17-120.8 3/13/17-98 4/21/17-83.6 5/12/17-64.7 6/1/17-32.1
7/25/17-32.6

Lovenothate
Posts: 38
Joined: Tue Aug 16, 2016 3:13 am
Facebook Username: Emily.guzman

Re: STAGE 4 / just checking in 11 years later/cancer free

Postby Lovenothate » Fri Aug 18, 2017 1:55 am

:D man Scott thanks for being there with the Stage 4 survival story. Really pushes everyone to keep fighting!
daughter to DM dx Stage IV CRC @47 July 2016
total hysterectomy b/c ovarian mets abscites 6/16
Colostomy
Folfox 7/16
Lung spots 2mm each 9/16
Xeloda & Avastin 1/17
Shrinkage to lungs spots! 4/17
Break from Avastin/ Xeloda continued 7/17
Omentum mets/ lungs mets stable(possibly not malignant)
Folfiri 8/17
1 lung spot all along-clear abdomen scans chemo break until 4/4/17

veckon
Posts: 131
Joined: Thu Jul 27, 2017 7:44 am

Re: STAGE 4 / just checking in 11 years later/cancer free

Postby veckon » Fri Aug 18, 2017 4:16 am

scottg wrote:stage 4 2 hipecs/ 2 years chemo,3 big surgeries/cancer free diag 2006,,,it can be beaten!!!!!!!!!!!!!!!!!!!!!!!!!


How did you convince them to give you HIPEC for CRC? I am having trouble with this.
27 yo male
Metastatic rectal cancer diagnosed 12/16
Liver metastases and peritoneal carcinomatosis
Lynch syndrome, MSI-H
Failed liver resection 3/17
FOLFOX6 12/16 - 05/17
Keytruda 5/17 - present
@Memorial Sloan Kettering

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Robino1
Posts: 463
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: STAGE 4 / just checking in 11 years later/cancer free

Postby Robino1 » Fri Aug 18, 2017 6:33 am

Thank you for the hope you bring!

11 years. May you have many more and I look forward to hearing from you when you hit 20 years. :)
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e

Joannerogers
Posts: 260
Joined: Tue Jun 16, 2015 4:50 pm

Re: STAGE 4 / just checking in 11 years later/cancer free

Postby Joannerogers » Fri Aug 18, 2017 9:26 am

Woohoo! Congrats!
53yo married 27 years, 2 children, 24 and 25
Diagnosed april 23,2015 rectosigmoid
Starting CEA 1845
Port placement and liver bx April 27
Folfox started april 29
Avastin added on May 6
Stage IV crc with mets to 50% of liver

10/13/15 dc'd transfusion #12...toxic
Pet/ct scan on 11/3/15
20% liver resected all margins clear 11/30/15
8/18/15 cea 21.
9/15/15 cea 13.9
10/13/15 cea 14.4
1/22/2016 cea 2.5
LAR 02/15/16 all clear

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Jack&KatiesMommy
Posts: 640
Joined: Wed Dec 21, 2011 1:08 pm
Location: Columbus, OH

Re: STAGE 4 / just checking in 11 years later/cancer free

Postby Jack&KatiesMommy » Fri Aug 18, 2017 9:59 am

Love, Love, Love to see you come back and remind us all that there is hope, Scott. Thank you. I know you kind of forget and move on with life when you are NED for a while...so your coming back to remind us that cases like yours exist is soooo appreciated!

Keep going!
Cynthia
Cynthia
Mommy to Jack (8) now (18) and Katie (4) now (14)
(My Most Precious Things)
Dx 8/11 Stage IV CRC (liver mets) CEA 2,600+
9/11 Folfiri 2/12: Failed Liver Resection
5/12 HAI pump/removed primary
4/13 Liver Resection
8/13-12/15 (10) RFAs lungs
5/17: Upper Left Lobe of lung resected.
02/18: 3 new lymph mets lung
05/18: Keytruda (MSS w/Intermediate TMB): NED CEA: 66.4, 39.2, 23.8, 13, 3.5 1.8, 1.0, 2.8 3.9, 5.0, 5.6, 1.5, .8,

WarriorSpouse
Posts: 220
Joined: Tue Aug 16, 2016 9:02 pm

Re: STAGE 4 / just checking in 11 years later/cancer free

Postby WarriorSpouse » Fri Aug 18, 2017 11:49 am

Well done! Thank you for sharing:)
WS
D/H 47 years old, 10/2014, Stage IV M/CRC, nodes 12/15, para-aortic, 5 cm sigmoid resection, positive Virchow. KRAS mut, MSS, Highly Differentiated, Lynch Neg, 5FU/LV and Avastin 1 YR (Oxi for 5 months), Zeloda/Bev since 01/2016. 02/2019 recurrence para-nodes, back to 5FU/LV Oxy/Bev. It is working again. "...Perseverance is not a long race; it is many short races one after the other."-Walter Elliot

NedPlease
Posts: 550
Joined: Fri Mar 23, 2012 3:56 pm

Re: STAGE 4 / just checking in 11 years later/cancer free

Postby NedPlease » Fri Aug 18, 2017 4:59 pm

Eleven years and counting! I love it! :D :D :D
F-54- St 4- Ascend Colon, 2 Liver mets, Poorly dif, Mutant
6/10- Folfox
9/10- R Liver Resect/Colon/Gall/Appendix
11/10-3/11- Folfox
11/11- R Lung, 1 met, VATS
3/12- 9/12- Xeloda
2/12- 6/18 Clear Scans
6/19- first time no scan
Today- NED

DarknessEmbraced
Posts: 3816
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: STAGE 4 / just checking in 11 years later/cancer free

Postby DarknessEmbraced » Fri Aug 18, 2017 5:15 pm

Congratulations! :)
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

benben
Posts: 324
Joined: Fri Apr 28, 2017 3:18 pm
Location: Washington State

Re: STAGE 4 / just checking in 11 years later/cancer free

Postby benben » Sat Aug 19, 2017 4:04 pm

Thank you for sharing your story of encouragement.
----------------------
3/29/17 diagnosed CRC - 44 y/o Male
4/17/17 ULAR - Straight anastomosis - no ostomy.
Path: low grade T3n1m0 - moderate diff.
KRAS - NO, MLH1/PMS2/MSH6/MSH2 - Normal.
5/3 med port install
5/22 folfox - first treatment.
3rd treat, delayed - low ANC - reduced to 90% OXI
zarxio all treats
Treat 7 - 75% OXI
Treats 8-12 - NO OXI, Luke & 5FU
10/20/17 CT- NED
3/18 Scope - Clean
11/8 PORT OUT!
7/22 CT - NED (5 years!)


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