Help understanding statistics and studies

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Canada777
Posts: 37
Joined: Mon Mar 28, 2016 6:24 pm

Help understanding statistics and studies

Postby Canada777 » Thu Aug 10, 2017 2:52 pm

Hi all - I know that I need to interpret survival statistics cautiously as everyone is different and treatment is always improving.

However, what I'm curious about is the studies when they compare group A who gets chemo only and group B who gets chemo and surgery. In the conclusions they usually say group A lived a year on average and group B two years (for example). When are they counting this survival time from - diagnosis? Surgery?

Thanks!
BF dx. Stage 4 Colon cancer with Peri mets Dec '15 @ age 29
12 Rounds FOLFOX Jan-June 2016
4 month chemo break. Still only Peri mets.
Successful HIPEC Oct. 2016. Diagnosis changed to appendix cancer.
Recurrence to pelvis. FOLFIRI starting Sept 2017.

KElizabeth
Posts: 390
Joined: Sat Oct 31, 2015 12:41 pm
Facebook Username: KElizabeth
Location: Omaha

Re: Help understanding statistics and studies

Postby KElizabeth » Fri Aug 11, 2017 12:48 am

I believe it is either from the diagnosis or it's 1 year more than if you had done nothing. I could be way off. Either way the statistics don't help. They are very often wrong and they are not worth too much attention.
A positive attitude and calmness go a long way to help. Best wishes on your journey.
KE
Female age 38- ,2 teens.
Colon Cancer - DX March 2013
Age 34 at DX - Stage III B
Resection surgery -May 2013
FOLFOX - June, 2013 to Sept, 2013
5FU plus leukavorin Sept, 2013 to Dec, 2013
METs liver and lungs discovered Sept, 2015
KRAS - MSS
FOLFIRI plus Avastin - Sept, 2015 - July 2017
Durvalumab and Cediranib Sept 2017 -current
CEA at recurrence:10.1/august, 2015
CEA: 1.9 February, 2016
CEA: 16.4 March 2017
CEA: 90.1 October 2017

User avatar
ANDRETEXAS
Posts: 560
Joined: Fri Feb 14, 2014 11:01 am
Location: Austin, Texas

Re: Help understanding statistics and studies

Postby ANDRETEXAS » Fri Aug 11, 2017 10:01 am

I would not concern myself with survival statistics. There are so many factors (many unrelated to you) that go into statistics that make them useless in an individual diagnosis. Stay positive, take one day at a time and exercise if and when possible.......and don't forget to come here with comments and questions.... Andre
2014
2/10 - Colon resect
2/13 - DX- Stg IIIb
3/7 - Port placed
3/11 - FOLFOX (12 rds w/full oxi)
8/14 - Chemo finish
8/25 - CT- Inc
9/5 - clean PET
12/10- clean CT
2015
3/2 - Colonoscopy & port removed
3/4- clean CT
9/21- clean CT
2016
3/23- clean CT
2017
2/22- clean CT

ONE DAY AT A TIME !

Deb m
Posts: 358
Joined: Tue Jan 14, 2014 10:08 am

Re: Help understanding statistics and studies

Postby Deb m » Fri Aug 11, 2017 10:29 am

I think the clock starts ticking right after surgery, that is assuming they got it all with surgery, if not then the clock doesn't start to tick till they get you in remission.

JJH
Posts: 164
Joined: Mon Apr 24, 2017 7:26 am
Location: Europe

Re: Help understanding statistics and studies

Postby JJH » Sat Aug 12, 2017 1:34 am

A classic article on the topic of statistics and cancer is the one entitled, "The Median Isn't the Message." This article is worth reading in order to understand why we should not pay much attention to survival statistics,

http://cancerguide.org/median_not_msg.html
DX 2012: Stage IIc
Locations: upper-rectum T4b + mid-sigmoid T4b
Surgery: Open LAR + temp ileo
TX: chemo/rad (28 days) + Xelox (3 cycles)
Ileo reversal
5 years surveillance
7/3/2017: Final 5-year report -
"complete remission ... cured'


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