Coming to the end of the journey....

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Coming to the end of the journey....

Postby ebv60 » Wed Jul 26, 2017 9:31 pm

After 5 years my wife is coming to the end of her Journey as you can see by her signature information she put a real battle. she has been in the hospital twice in the last two weeks, Feet swelling ,fluid in the lungs , her kidneys functions has drop off the last 7 days the Dr. said

I had a meeting with the oncologist today , No good news..No clinical trials.. her health to so compromised talked on wants next??? Hospice care is what he recommended ..We have a meeting tomorrow with Hospice...

I did ask him how much time is left ..he said about a month.. I know no one can predict how much time is left but after 5 years I can see the big change in the past few weeks so I believe time is short. after our meeting he did come up a talk to her in the room about her condition , also saying it was time to look in Hospice and she agree. She never ask about time left but I know she knows it short.

I want to THANK everyone on the Colon Forum for all the help and information I got over the past 5 years, I didn't post a lot but readied almost everyday.

to DW 6/12 stage 4
6/12 colon resection, liver Mets
Folfox & Folfiri till 4/13
liver resection Mayo 5/13 Clear margins
mop up chemo
NED till 9/14
cancer complete hysterectomy,
CEA climbing 12/14
1/15 scans, tumors return
1/15 Mayo for surgery; need shrinkage before surgery
Folfiri w Erbitux
break over Christmas, rash from Erbitux
1/16 scan tumors growing, liver, lungs, lymph nodes involvement
Folfiri w Avastin 1/16
Stivarga 6/16
lonsurf 1/17
Scan 6/17 tumors growing.
At peace 7/17

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Re: Coming to the end of the journey....

Postby Lovenothate » Wed Jul 26, 2017 10:07 pm

I wish peace and positive thoughts to you and your wife through this process. Your family will be in my thoughts and prayers.

With love and hugs
daughter to DM dx Stage IV CRC @47 July 2016
total hysterectomy b/c ovarian mets abscites 6/16
Folfox 7/16
Lung spots 2mm each 9/16
Xeloda & Avastin 1/17
Shrinkage to lungs spots! 4/17
Break from Avastin/ Xeloda continued 7/17
Omentum mets/ lungs mets stable(possibly not malignant)
Folfiri 8/17
1 lung spot all along-clear abdomen scans chemo break until 4/4/17

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Joined: Tue Apr 08, 2014 4:57 pm

Re: Coming to the end of the journey....

Postby Maddielolo » Thu Jul 27, 2017 12:21 am

Will be thinking of you, your wife, and her family and friends in the coming days. Clearly you both have been fighting for many years, and deserve peace in the days ahead.

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Facebook Username: stacy

Re: Coming to the end of the journey....

Postby ocstacy » Thu Jul 27, 2017 12:34 am

Hospice care is what he recommended ..We have a meeting tomorrow with Hospice...

Hi there,

I am sorry to hear about your relative and now approaching hospice. I live with my 89 year old uncle and I got to experience Hospice with him for one year. He was fortunate and graduated, he does not have cancer, he has CHF. :shock:

I can tell you that with hospice and cancer, it can go fairly quick. My neighbor down the street was put on hospice and he passed within two weeks. They do make them as comfortable as possible. Do you know if he/she wants to do it at home or at a hospice center? My mother mentioned to me that her choice would not be at home, my uncle says he wants to leave this earth at home. Everyone has their own choice in life. My choice would be at home with my loved ones but not with everyone.

I encourage you to read the "Blue Book" that hospice offers. It is a detail oriented book about the last journey. Prayers and hugs. Message me for anything.
Caregiver/daughter to dear mother age 78, dx 5/09/17 because of me!! :wink:
Rectal CA Stage 3 low-grade adenocarcinoma- 6 cm
Neoadjuvant start 7/10/17 ended 08/16/17
3D Lap. surgery @ Keck USC, Dr. Sang Lee 10/17/17 temp ileostomy
11/1 hospitalized abscess/hernia - home 11/06/17 antibiotics
Took her last chemo med 05/10/18! Ileo reversal 07/24/18
1st BM after reversal 07/25/18 Anal Fissure 8/15/18
Me:1st Colonoscopy age 38. 08/17 Benign polp.

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Joined: Fri Feb 14, 2014 11:01 am
Location: Austin, Texas (University of Tennessee alumnus)

Re: Coming to the end of the journey....

Postby ANDRETEXAS » Thu Jul 27, 2017 1:20 am

Praying for your wife, you and your family. Thank you for catching us up with all that's going on. Your wife has put up a courageous battle. Hoping she, you and your family can have as many peaceful and non-stressful days possible. All the best...Andre
2/10 - Colon resect
2/13 - DX- Stage IIIb
6 of 18 lymph nodes cancerous
3/7 - Port placed
3/11 - FOLFOX (12 rds w/full oxi)
8/14 - Chemo finish
8/25 - CT- Inc
9/5 - clean PET
12/10- clean CT
3/2 - Clean colonoscopy & port removed
3/4- clean CT
9/21- clean CT
3/23- clean CT
2/22- clean CT
3/21 - clean CT
4/11 - clean colonoscopy
3/11 - clean CT
9/23 - Five-year release - Annual visits now !
Next colonoscopy - 2023


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Maggie Nell
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Joined: Wed May 27, 2015 1:57 am
Location: Central Highlands, Victoria, Oz

Re: Coming to the end of the journey....

Postby Maggie Nell » Thu Jul 27, 2017 3:28 am

May your leave-taking be gracious,
Enabling you to hold dignity
Through awkwardness and illness.

May someone who knows and loves
The complex village of your heart
Be there to echo you back to yourself
And create a sure word-raft
To carry you to the further shore.

May there be some beautiful surprise
Waiting for you inside death,
Something you never knew or felt.

May your heart be speechless
Your heart breathless
In the light and lightness
Where each and every thing
Is at last its true self
Within that serene belonging
That dwells beside us
On the other side
Of what we see.
DX April 2015, @ 54
35mm poorly diff. tumour, incidental finding following emergency R. hemicolectomy
for ileo-colic intussusception (ouchies)
Lymph nodes: 0/22
T3 N0 MX
Pending colonoscopy 23 March 2021
Unexpected severe allergic reaction to the prep...big WTF!?
To be rescheduled...

[Ana & Alex]
Posts: 96
Joined: Tue Feb 14, 2017 5:14 pm
Location: Austria

Re: Coming to the end of the journey....

Postby [Ana & Alex] » Thu Jul 27, 2017 4:03 am

Dear ebv60,

I wish you and your wife calm days and a peaceful departure.

Nothing can be said or nothing can prepare us for the loss of a loved one. Say your thank yous, I'm sorrys, goodbyes and I love yous and try to laugh a last time together if you can. We all departure some day from this life, but what we leave behind still matters.

I'm am sure that within you the love and strength of your dear wife will carry on and will remain a light in this world of ours.

I will be thinking of you,

Dx @ 29 yo. Mum (2 y.o.) & Wife

12/2016: Rectal AdenoCa G2. CEA 4.3. RAS Wild. MSS. IIIB.
01 - 03/2017: 28 RTx + CHT 2,5 g/d Capecit.
03 - 06/2017: Suplemments and Cimetidine.
05/2017: TME/TAMIS + permanent Colostomy CEA 0.5
05/2017: ypT2N2aM0 (4/15), good cCR, limited pCR
06 - 8/2017: 4x CapOx 3,5 g/d (2x Oxi reduced to 80%)
09 -11/2017: 3x Capecit. monotherapy 4g/d
12/2017: Aspirin, Vit. D3, Curcumin, Multivitamin.

Posts: 88
Joined: Sun Nov 22, 2015 12:38 pm

Re: Coming to the end of the journey....

Postby SurvivorsSpouse » Thu Jul 27, 2017 5:35 am

Prayers for your family's peace.

Posts: 2298
Joined: Fri Feb 06, 2009 10:07 am

Re: Coming to the end of the journey....

Postby ams5796 » Thu Jul 27, 2017 6:20 am

I wish you and your family the best.

Stage 3C (or 4?) Rectal Cancer 01/07
2/10 lung mets
3/11 VATS
6/11 VATS
7/13 lung met
2/14 SBRT
NED 8/14
5/17 scan and MRI found treated spine met

Deb m
Posts: 558
Joined: Tue Jan 14, 2014 10:08 am

Re: Coming to the end of the journey....

Postby Deb m » Thu Jul 27, 2017 7:51 am

I'm very sorry it has come to this. I pray that you and your wife/family receive the comfort needed during this most difficult time. She and yourself will be in my rosary.


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Joined: Sat Jul 02, 2016 10:26 pm
Location: Syracuse, NY

Re: Coming to the end of the journey....

Postby fumaros » Thu Jul 27, 2017 9:57 am

Your wife has been fighting a courageous battle. I wish you both peace in the days to come. I hope the time left is one that would give you something to treasure always. My heart and prayers go out you both.
Diagnosed 4/8/16, age 29
Colectomy 4/20/16
Stage III, T4bN1 Tumor 7x6.5x2. Muscinous Adenocarcinoma with SRC features
2/16 lymph nodes
Stage IV, Peri mets 5/2019
CEA 4/14/16 - 16.8
CEA 6/2/16 - 1.9
CEA 6/17/16 - 0.87, 7/16 - 1.33, 12/16 - 1.14, 4/17 - 0.6, 7/17 - 0.5, 10/17 - 0.9, 3/19 -5.8, 4/19 -10
FOLFOX began 6/24/16 - 11/25/16, FOLFIRI - 5/10/19
10 round FOLFOX, 2 round 5-FU & Leucovorin, 1 round FOLFIRI
MRI & CT 8/16 - NED, CT 12/16 - 10/17 - NED

Posts: 817
Joined: Mon May 11, 2015 9:33 pm

Re: Coming to the end of the journey....

Postby jhocno197 » Thu Jul 27, 2017 10:48 am

Hospice was amazing for our family. I hope they are for yours, as well.
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17

Posts: 84
Joined: Tue Mar 28, 2017 5:32 pm

Re: Coming to the end of the journey....

Postby sdino » Thu Jul 27, 2017 12:03 pm

Peace to your Family
Caregiver for Wife 54 yrs old
DX:11/16-CC sigmoid colon
Lung Mets: 25+ Bilateral ranging 4mm-5.0cm
iTCR TIL Trial NCT03412877 4/19 to 7/19 Off trial, - Sept. 2019 TIL trial NCT01174121
CT Scans: 7/2020 lung met shrinkage 36%, 3 lung mets left, two Liver mets destroyed by TILs
Brain tumor removal 3/2020
CEA:16-11/16; 5 -9/18; 63 -8/19; 1 -1/20; 0.8-5/20

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