Cancer: you can't kill everyone

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ranger
Posts: 351
Joined: Sat Nov 14, 2009 2:02 pm
Facebook Username: cancerIsSOfunny
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Cancer: you can't kill everyone

Postby ranger » Tue Jul 25, 2017 1:18 am

Hi friends, I'm leaving this week on my 6th horseback riding journey to Mongolia. While I'm there I'll celebrate my 8-year NEDville Day (and probably retreat into my tent for a little weepo of wonder.)
I'll never know why I got cancer and I hate everything about it, but I thank all of you for participating in the best source of information and support a semi-colon could ever have.

love to all you wonderful characters who share so freely and beautifully.

Thank you
Amy
(strange ranger)
colon resection 3/09
liver resection and takedown 8/09
11 rounds of folfax, avastin. plus AM655 or placebo, completed jan 2010
hernia repair 3/11
http://cancerissofunny.blogspot.com/
https://m.facebook.com/Cancer-is-SO-fun ... 100303900/
@cancerissofunny
age 70, never thought I'd make it. happy.
NED a long time.
Essential Thrombocytosis, monitoring
still here.

NHMike
Posts: 2555
Joined: Fri Jul 21, 2017 3:43 am

Re: Cancer: you can't kill everyone

Postby NHMike » Tue Jul 25, 2017 4:39 am

It sounds like it will be a wonderful time.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

fumaros
Posts: 273
Joined: Sat Jul 02, 2016 10:26 pm
Location: Syracuse, NY
Contact:

Re: Cancer: you can't kill everyone

Postby fumaros » Tue Jul 25, 2017 7:33 am

Have fun horseback riding, and being NED.
Diagnosed 4/8/16, age 29
Colectomy 4/20/16
Stage III, T4bN1 Tumor 7x6.5x2. Muscinous Adenocarcinoma with SRC features
2/16 lymph nodes
Stage IV, Peri mets 5/2019
CEA 4/14/16 - 16.8
CEA 6/2/16 - 1.9
CEA 6/17/16 - 0.87, 7/16 - 1.33, 12/16 - 1.14, 4/17 - 0.6, 7/17 - 0.5, 10/17 - 0.9, 3/19 -5.8, 4/19 -10
FOLFOX began 6/24/16 - 11/25/16, FOLFIRI - 5/10/19
10 round FOLFOX, 2 round 5-FU & Leucovorin, 1 round FOLFIRI
MRI & CT 8/16 - NED, CT 12/16 - 10/17 - NED

User avatar
Maggie Nell
Posts: 1150
Joined: Wed May 27, 2015 1:57 am
Location: Central Highlands, Victoria, Oz

Re: Cancer: you can't kill everyone

Postby Maggie Nell » Tue Jul 25, 2017 8:34 am

Amy,

Are you riding in the Mongol Derby?

http://www.abc.net.au/news/2017-07-22/d ... by/8709284

Image
DX April 2015, @ 54
35mm poorly diff. tumour, incidental finding following emergency R. hemicolectomy
for ileo-colic intussusception.
Lymph nodes: 0/22
T3 N0 MX
Stage II CRC, no adjuvant chemo required.

[Ana & Alex]
Posts: 96
Joined: Tue Feb 14, 2017 5:14 pm
Location: Austria

Re: Cancer: you can't kill everyone

Postby [Ana & Alex] » Tue Jul 25, 2017 12:25 pm

Dreaming of many NED years to come for all of us. Where we can be where you are right now:
Have fun enjoying a healthy and happy life, that is all there is..

Love,
Ana
Dx @ 29 yo. Mum (2 y.o.) & Wife

12/2016: Rectal AdenoCa G2. CEA 4.3. RAS Wild. MSS. IIIB.
01 - 03/2017: 28 RTx + CHT 2,5 g/d Capecit.
03 - 06/2017: Suplemments and Cimetidine.
05/2017: TME/TAMIS + permanent Colostomy CEA 0.5
05/2017: ypT2N2aM0 (4/15), good cCR, limited pCR
06 - 8/2017: 4x CapOx 3,5 g/d (2x Oxi reduced to 80%)
09 -11/2017: 3x Capecit. monotherapy 4g/d
12/2017: Aspirin, Vit. D3, Curcumin, Multivitamin.

ranger
Posts: 351
Joined: Sat Nov 14, 2009 2:02 pm
Facebook Username: cancerIsSOfunny
Contact:

Re: Cancer: you can't kill everyone

Postby ranger » Tue Jul 25, 2017 4:04 pm

hi Maggie Nell, I know about the Mongol Derby but my small group starts together and finishes together! We meander at a more lesurely pace through a remote region of Mongolia, on horseback, with truck or pack- camel support, and have a wonderful time.
I was invited the first time sort of by accident, during a real bleak part of my treatment. One year later I was riding in Central Mongolia, with one of my daughters and a bunch of friends of friends. now I live for these trips!
ranger
colon resection 3/09
liver resection and takedown 8/09
11 rounds of folfax, avastin. plus AM655 or placebo, completed jan 2010
hernia repair 3/11
http://cancerissofunny.blogspot.com/
https://m.facebook.com/Cancer-is-SO-fun ... 100303900/
@cancerissofunny
age 70, never thought I'd make it. happy.
NED a long time.
Essential Thrombocytosis, monitoring
still here.

stu
Posts: 1612
Joined: Sat Aug 17, 2013 5:46 pm

Re: Cancer: you can't kill everyone

Postby stu » Tue Jul 25, 2017 6:13 pm

Enjoy every moment.
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

ranger
Posts: 351
Joined: Sat Nov 14, 2009 2:02 pm
Facebook Username: cancerIsSOfunny
Contact:

Re: Cancer: you can't kill everyone

Postby ranger » Tue Jul 25, 2017 11:31 pm

Thanks everyone!
colon resection 3/09
liver resection and takedown 8/09
11 rounds of folfax, avastin. plus AM655 or placebo, completed jan 2010
hernia repair 3/11
http://cancerissofunny.blogspot.com/
https://m.facebook.com/Cancer-is-SO-fun ... 100303900/
@cancerissofunny
age 70, never thought I'd make it. happy.
NED a long time.
Essential Thrombocytosis, monitoring
still here.

tater
Posts: 133
Joined: Wed Jul 19, 2017 5:53 pm

Re: Cancer: you can't kill everyone

Postby tater » Fri Aug 04, 2017 11:50 pm

ranger wrote:Hi friends, I'm leaving this week on my 6th horseback riding journey to Mongolia. While I'm there I'll celebrate my 8-year NEDville Day (and probably retreat into my tent for a little weepo of wonder.)
I'll never know why I got cancer and I hate everything about it, but I thank all of you for participating in the best source of information and support a semi-colon could ever have.

love to all you wonderful characters who share so freely and beautifully.

Thank you
Amy
(strange ranger)



I hope the trip is going well. Thank you for the post I needed to see someone beating this thing to lift my spirit again. Its been one of those days, I needed a good success story before I go to bed and hold her all night.
DH to 38 wife w/kids
Stage 3C DX 3/3/17 CEA 29
5-fu and radiation ended May 17, 2017
Stage 4 External iliac node July 17, 2017
FOLFOX + Avistan July 18 2017 CEA 2.3
Nov 9, 2017 Coloanal Anastomosis, Hysterectomy & External Nodes Removed W/ileostomy
Clear Margins NED
CEA 1.5 12/17, 2.1 2/18, 2.3 6/18, 1.1 9/18, 1.3 12/18, 1.8 3/19, 2.5 6/19
Clear CT and MRI on 2/5/2018, 9/18 Clear Scans
Reversal Surgery 6/26/18
Small Spot on right ureter surgery 10/30/19 adhered to artery
Dec. 2 start 12 rounds FOLFIRI

WarriorSpouse
Posts: 220
Joined: Tue Aug 16, 2016 9:02 pm

Re: Cancer: you can't kill everyone

Postby WarriorSpouse » Sat Aug 05, 2017 10:02 am

Have fun!
WS
D/H 47 years old, 10/2014, Stage IV M/CRC, nodes 12/15, para-aortic, 5 cm sigmoid resection, positive Virchow. KRAS mut, MSS, Highly Differentiated, Lynch Neg, 5FU/LV and Avastin 1 YR (Oxi for 5 months), Zeloda/Bev since 01/2016. 02/2019 recurrence para-nodes, back to 5FU/LV Oxy/Bev. It is working again. "...Perseverance is not a long race; it is many short races one after the other."-Walter Elliot


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