Rectal cancer (Stage 3A) diagnosed late June 2017

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Caat55
Posts: 326
Joined: Sat Dec 23, 2017 6:01 pm

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby Caat55 » Fri Apr 20, 2018 10:36 pm

Every time I am bothered by the cold I think of all you back east and shut up . Cold here is maybe in the 20's. I got complemented today on by color, meds also cause even the littlest time in the sun to bring color. I am slathering on sunscreen.

Spring will come.
Susan
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18

NHMike
Posts: 1201
Joined: Fri Jul 21, 2017 3:43 am

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby NHMike » Sat Apr 21, 2018 7:18 am

Feeling better again compared to yesterday - improvement accelerates off the Oxaliplatin which is great when it happens. On another note:

Between 2005 and 2015, ad spending by U.S. cancer centers soared from $54 million to $173 million. In 2016 alone, Anderson’s seven rotating TV spots were viewed about a billion times. “The appeals raise the stakes, in essence saying you can be saved provided you make the right choice or doomed if you do not,” Steven Woloshin, a physician and medical communication researcher, wrote in an editorial in the Journal of the American Medical Association.

https://www.wsj.com/articles/in-the-war ... 1524261478

It's a Wall Street Journal article this morning on the marketing wars in the cancer business.
6/23/17: ER rectal bleeding; Colonoscopy
7/13: Stage 3B rectal. T3N1bM0. 5.2 x 4.5 x 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/31-9/8: Xeloda 3,400 mg/day+radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8
MSS, KRAS G12D
10/6: 2.7 x 2.2 x 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/30: LAR, Temp Ileostomy, Path Complete Response
12/20: Started CapeOx

NHMike
Posts: 1201
Joined: Fri Jul 21, 2017 3:43 am

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby NHMike » Sat Apr 21, 2018 6:09 pm

Doing better today than yesterday so things are getting better. I felt good enough to run today but did Yoga and other floor stuff today. It's going to be in the 60s tomorrow so I'll give tomorrow a shot for running.

This is normal stuff; things get better about 9 or 10 days after infusion and then go back to crap after the infusion.

Had a tad of withdrawal on the board as it was down for quite some time.

Tried a few new poses - they were a bit of effort to do but what's noticeable is the soreness after doing the pose. Of course it's a good soreness and I'd guess that you yoga folks out there are well acquainted with it. One of the really nice things about yoga is that there isn't the stress on the bag that some other activities have.
6/23/17: ER rectal bleeding; Colonoscopy
7/13: Stage 3B rectal. T3N1bM0. 5.2 x 4.5 x 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/31-9/8: Xeloda 3,400 mg/day+radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8
MSS, KRAS G12D
10/6: 2.7 x 2.2 x 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/30: LAR, Temp Ileostomy, Path Complete Response
12/20: Started CapeOx

Caat55
Posts: 326
Joined: Sat Dec 23, 2017 6:01 pm

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby Caat55 » Sat Apr 21, 2018 11:02 pm

Feel your pain and excitement. We seem to be in the same place yet again.

Yoga helps me feel powerful. Going tomorrow morning, start week off right.

S
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18

retiredteacher
Posts: 62
Joined: Sat Oct 21, 2017 1:34 pm

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby retiredteacher » Sun Apr 22, 2018 1:32 pm

Jealous - love living out in the sticks but it's an hour in any direction to the nearest yoga studio .... maybe I should just bite the bullet and make the drive ....
63 yo female
RC 9/13/17 Adenocarcinoma 6.3 - 7 cm tumor
6 cm, or maybe 8 - 10 cm fr AV
G2: Moderately differentiated (Path rprt), MSS
Unstaged, guesstimate T3N0M0 PET, no MRI, no ultrasound
2500 Capecitabine/RT Oct/Nov18; 25 treatments
"Near complete metabolic response" PET Jan 2018
CEA 0.5 Oct. 2017, Jan. 2018
MRI Feb. 2018 for Presurgical staging yT2 N0 12 cm from AV 3 cm in size
LAR Feb 20 yT1N0M0 0/21 G1
CAPEOX starting March 2018

NHMike
Posts: 1201
Joined: Fri Jul 21, 2017 3:43 am

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby NHMike » Sun Apr 22, 2018 3:28 pm

retiredteacher wrote:Jealous - love living out in the sticks but it's an hour in any direction to the nearest yoga studio .... maybe I should just bite the bullet and make the drive ....


I just do these in the office or at home - I've never been to a class before. I just need a picture of a pose and then work on doing it.
6/23/17: ER rectal bleeding; Colonoscopy
7/13: Stage 3B rectal. T3N1bM0. 5.2 x 4.5 x 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/31-9/8: Xeloda 3,400 mg/day+radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8
MSS, KRAS G12D
10/6: 2.7 x 2.2 x 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/30: LAR, Temp Ileostomy, Path Complete Response
12/20: Started CapeOx

Caat55
Posts: 326
Joined: Sat Dec 23, 2017 6:01 pm

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby Caat55 » Sun Apr 22, 2018 4:37 pm

retiredteacher wrote:Jealous - love living out in the sticks but it's an hour in any direction to the nearest yoga studio .... maybe I should just bite the bullet and make the drive ....

U tube - Yoga with Adrienne is very good. Can do it at home.
S
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18

heiders33
Posts: 195
Joined: Sat Nov 04, 2017 11:08 am

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby heiders33 » Sun Apr 22, 2018 6:31 pm

I second the recommendation for Yoga with Adriene! I do them at home, and many of them are 20-30 minutes which fit into my busy schedule.
36 year-old female
May 2017: Dx rectal cancer at T3N2M0
MSS, no genetic mutations
June-July 2017: 28 days of chemo/radiation
September 2017: laparoscopic LAR surgery with loop ileostomy
October 2017 - February 2018: six rounds of mop-up XELOX
March 12, 2018: reversal
April 16, 2018: CEA 2.1, all blood counts within normal ranges

Caat55
Posts: 326
Joined: Sat Dec 23, 2017 6:01 pm

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby Caat55 » Sun Apr 22, 2018 8:45 pm

heiders33 wrote:I second the recommendation for Yoga with Adriene! I do them at home, and many of them are 20-30 minutes which fit into my busy schedule.

She is amazing, isn't she?
It makes life calmer.
S
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18

NHMike
Posts: 1201
Joined: Fri Jul 21, 2017 3:43 am

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby NHMike » Sun Apr 22, 2018 10:44 pm

I like to use a picture as the amount of time it can take for me to get into a pose varies all over the place and I find it hard to do things in time to a video. I'd probably have trouble with a class as well. But it feels good after doing it.
6/23/17: ER rectal bleeding; Colonoscopy
7/13: Stage 3B rectal. T3N1bM0. 5.2 x 4.5 x 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/31-9/8: Xeloda 3,400 mg/day+radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8
MSS, KRAS G12D
10/6: 2.7 x 2.2 x 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/30: LAR, Temp Ileostomy, Path Complete Response
12/20: Started CapeOx

NHMike
Posts: 1201
Joined: Fri Jul 21, 2017 3:43 am

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby NHMike » Tue Apr 24, 2018 4:59 am

Last day of Xeloda for cycle 6. The Hands and Feet was at a pain/annoyance level 7 out of 10 (basically the worst I've had it) and it will likely peak on Friday or Saturday while the Neuropathy is declining. The Hands and Feet are worst when I wake up in the morning and then the stiffness declines through the day with use. My typing can be a mess with it though I go back and correct it as best I can. 70 degrees is forecast today - I just hope that I can get outside to enjoy it.
6/23/17: ER rectal bleeding; Colonoscopy
7/13: Stage 3B rectal. T3N1bM0. 5.2 x 4.5 x 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/31-9/8: Xeloda 3,400 mg/day+radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8
MSS, KRAS G12D
10/6: 2.7 x 2.2 x 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/30: LAR, Temp Ileostomy, Path Complete Response
12/20: Started CapeOx

margiej
Posts: 19
Joined: Sat Apr 14, 2018 8:46 am

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby margiej » Tue Apr 24, 2018 6:20 am

Caat55 wrote:
heiders33 wrote:I second the recommendation for Yoga with Adriene! I do them at home, and many of them are 20-30 minutes which fit into my busy schedule.

She is amazing, isn't she?
It makes life calmer.
S


So glad to see others have discovered Yoga With Adrienne. Her practice is so full of love and compassion. Yoga and breathing really help with my stress and anxiety levels. Another one I like is Fightmaster Yoga with Lesley Fightmaster.
Namaste!
Dx CC 12/2015, age 57 at Dx
Stage IIIb: T3N1b
Adenocarcinoma, sigmoid colon, 2.5 cm - low grade, moderately differentiated
3/6 positive lymph nodes
laparoscopic colectomy 1/20/2016
Capox started 3/4/16 - Six rounds
CT-suspicious lymph 2/22/16
PET scan 2/24/16 clear
CT 6/8/16 clear
CT 10/3/17 clear
CEA 12/17 1.7
5/16 3.8
7/16 1.9
3/17 1.3
10/17 1.2
4/18 1.6
NED

NHMike
Posts: 1201
Joined: Fri Jul 21, 2017 3:43 am

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby NHMike » Tue Apr 24, 2018 6:25 am

I did a few poses with my wife this morning before her walk. We did Warrior I, II and Tree Pose. I showed her Warrior III and she started to try it but I suggested having a chair nearby on the first time. I still prefer to just do it a little here and there when I want a break from work or just have a few moments and feel like it. The little bits add up.

I went outside to go get gas (our station was closed for three weeks for replacing tanks) and walked around as well - temps were mid-30s which means that the vast amount of cold sensitivity is gone and that means that I can guzzle cold water.
6/23/17: ER rectal bleeding; Colonoscopy
7/13: Stage 3B rectal. T3N1bM0. 5.2 x 4.5 x 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/31-9/8: Xeloda 3,400 mg/day+radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8
MSS, KRAS G12D
10/6: 2.7 x 2.2 x 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/30: LAR, Temp Ileostomy, Path Complete Response
12/20: Started CapeOx

NHMike
Posts: 1201
Joined: Fri Jul 21, 2017 3:43 am

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby NHMike » Thu Apr 26, 2018 9:00 am

One hypothesis for link between nuts and cancer outcomes centers on the insulin resistance pathway. In individuals with obesity or type 2 diabetes, cells fail to respond normally to the hormone insulin, which helps cells use glucose for energy. As a result, the body produces more insulin, which reaches higher levels in the bloodstream. Epidemiological studies have found a link between diabetes, insulin resistance, and cancer.

“Nut intake is associated with less insulin resistance,” says Fadelu.

In addition, he explains, nut consumption is associated with lower amounts of biomarkers related to inflammation in the body, and inflammation has been implicated in cancer causation.

Further, nuts may also alter the mix of bacteria in the digestive system, Fadelu notes — while reemphasizing that at this point, researchers are still hypothesizing.


http://blog.dana-farber.org/insight/201 ... ocial_tool
6/23/17: ER rectal bleeding; Colonoscopy
7/13: Stage 3B rectal. T3N1bM0. 5.2 x 4.5 x 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/31-9/8: Xeloda 3,400 mg/day+radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8
MSS, KRAS G12D
10/6: 2.7 x 2.2 x 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/30: LAR, Temp Ileostomy, Path Complete Response
12/20: Started CapeOx

NHMike
Posts: 1201
Joined: Fri Jul 21, 2017 3:43 am

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby NHMike » Thu Apr 26, 2018 11:34 am

I wanted to change the bag this morning but output was steady so I'm putting it off until this afternoon. I haven't eaten for 15 hours and bag output is nil but I'm in the office and have only once changed it away from home. So it's another three or four hours for about 19 or 20 hours fasting. Bag change should be really easy.
6/23/17: ER rectal bleeding; Colonoscopy
7/13: Stage 3B rectal. T3N1bM0. 5.2 x 4.5 x 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/31-9/8: Xeloda 3,400 mg/day+radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8
MSS, KRAS G12D
10/6: 2.7 x 2.2 x 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/30: LAR, Temp Ileostomy, Path Complete Response
12/20: Started CapeOx


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