Great news, Mike!! I know I haven't been very active around here but I do still come back to check on peeps.
I'm relieved to see that you've got a process that's working for you. I got Visbiome through the mail when I was trying to get rid of my third c diff flareup; it's another probiotic that requires refrigeration. They ship it in refrigeration and include a temperature device that will tell you if it got too warm inside. The c diff went away with the Visbiome plus another course of antibiotics, so I like to think it helped, but there's no way to be sure. I'll definitely take it the next time I go in for a colonoscopy.
I get comments about degenerative stuff going on in my vertebrae every scan, but my oncologist has never mentioned it. I have my 6-month bloodwork next week; my scans are annual now, fortunately.
I just got prescribed Gabapentin to see if it might help with my lingering neuropathy. Hoping it works for me and that I don't see any of the more obnoxious side effects.
There are clearly places that get this right. My chemo drugs were shipped in cooling materials ($5,000 drugs had better have really good cooling) so I've seen really good cooling. But on Amazon, they have a bunch of different suppliers and they don't all do a great job.
I can understand why probiotics are a really good thing to take with antibiotics.
My oncologist told me that everyone over 50 gets that stuff. He asked me about the neuropathy and I said it's there but I generally don't think about it. I guess I've gotten used to it. He asked if the LARS was any better and I just said that I'm managing it better. My guess is that these are questions that go into the cancer databases on the side-effects of treatment and the data gets used for research. But I kind of got the feeling that this was kind of the end of intensive surveillance and that life is edging to cancer-free. At least as far as the medical community is concerned.
We talked a bit about my work status - in that I wasn't working - he asked me if I was retired and I just made a non-committal noise. I'm really not sure what I am. My income is far higher than what it was when I was working a regular job but it's still feels odd not having a regular job. One thing that I need to work on is finding a healthcare plan for when COBRA ends in early 2022. The plans in my state are HMOs or narrow networks. I'd like one of the Massachusetts plans but am not sure if I could get on one without moving there. I need to look into private plans as well - directly with an insurance company if they do that.
I should visit here more often - adjusting to the new life has been rather stressful.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT