NHMike wrote:In 2020, we go to 2 visits a year instead of 4.
The switch from 4 visits a year to twice a year is the day you start feeling like cancer might be in your rear-view mirror. It's funny how the difference between 3 months and 6 months feels so long, like you can finally breathe. Bet you're looking forward to it!
I don't think about cancer personally that much because I'm so busy.
I read the visit report.
One of the things mentioned was that my cancer was low-grade. I believe that that's a good thing but I should look it up. He also wrote my letters/numbers. Nobody actually had done this before in a place where I saw it. I assumed III B from what I read and III B is confirmed.
The report also said that I had acellular mucen pools as part of pathology. I looked this up and they are something that shows up and the concern is that they are cancerous but the consensus seems to indicate that they are a result of radiation treatment. I found this in a small study which had this conclusion. The study did recommend further study.
My colonoscopy interval is three years now. I will ask about this the next visit as I thought that it should be annual for several years.
The doctor also estimated my ECOG score as zero. I hadn't heard of it so I looked it up. It's the Eastern Cooperative Oncology Group Performance Status.
0: Fully active, able to carry on all pre-disease performance without restriction
1: Restricted in physically strenuous activity but ambulatory and able to carry out work of a light or sedentary nature, e.g., light house work, office work
2: Ambulatory and capable of all selfcare but unable to carry out any work activities; up and about more than 50% of waking hours
3: Capable of only limited selfcare; confined to bed or chair more than 50% of waking hours
4: Completely disabled; cannot carry on any selfcare; totally confined to bed or chair
I looked up his bio out of curiousity and he's also a professor at Harvard Medical School like my surgeon. The visit summary was quite long and detailed. He spends a full day seeing patients and writes up the visit notes in the evening - I had him as the last appointment of the day one time and we chatted - he works a lot of hours.