Rectal cancer (Stage 3A) diagnosed late June 2017

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Eleda
Posts: 325
Joined: Thu Dec 28, 2017 2:28 am
Facebook Username: adele Morgan
Location: Ireland

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby Eleda » Sat Jul 20, 2019 11:35 am

This might be of help Mike

viewtopic.php?f=1&t=62759&p=494724&hilit=Splenda#p494505

viewtopic.php?f=1&t=62759&p=494724&hilit=Splenda#p494724

Just realized u commented on the that post but don't know how to delete mine
Sorry
SWF, 47
Mom to 3 sons 6/8/12
Dec4th 2017 colonoscopy for minor intermittent rectal bleeding during Summer
CEA 4.4
DX T3 L3C M0 2.5/3 cm above AV.
JAN 3RD started 1650mg Zelda 2xday, with 28 radiation
Did tagamet 800mg daily and 75mg IV VIT C WEEKLY UNTIL SURGERY and
Tumor reduce by 80% 1 LN still remaining
TATME May10th, temp illeostomy
10/07/2018 CEA 3
MMR INTACT
Began FOLFOX July 10th
24/08/2018 Allergic reaction so next infusion lucovorin and 5fu
CEA 4
Second attempt with oxi aug 12th

NHMike
Posts: 2078
Joined: Fri Jul 21, 2017 3:43 am

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby NHMike » Fri Aug 02, 2019 7:03 am

Life is still very challenging. I had a project that I was working on since last Fall and it's quite late but that's not really my fault (lots of problems in design before it got to me). Then another project hit early summer so I put #1 on hold and started working on #2. Then another project at the beginning of July so I put #2 on hold and am working on #3. Then short-term highest priority stuff because people want to dump in a lot of changes at the end of the development cycle instead of having it done and just fixing minor issues. So a lot of pressure at work combined with LARS when I'm trying to workout means not enough sleep during the week.

The biggest headache is this one guy that comes into my office even though the door is closed (protocol is to knock first) and then wants to talk for 45 minutes about the weather and his knee problems and the stock market. I've told him that the LARS stuff eats three to four hours a day and that I am very, very busy at work. I generally try to ignore him while I am typing away. In some cases, I just grab my medical kit and run to the bathroom, whether or not I need to go (it's always good to check).
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

Rikimaroo
Posts: 238
Joined: Tue Dec 20, 2016 8:48 pm

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby Rikimaroo » Fri Aug 02, 2019 11:52 am

Mike,

Have you thought about going back to the bag. It crosses my mind every now and then, because honestly the bag was no issue at all. Yes sometimes I had issues like where it came out from the sides, but that I figured out how to control. Other then that the bag is just weird to have, but to be honest makes life so much easier. Mike also your just 1 year out. They say things start to get better after 1 year or more. My biggest issue is the clustering, even when I am taking the metamucil. It just doesn't make sense and hard to figure out. I Know Susie has mentioned the enema, have you tried that. I am yet to try it. I am just not comfortable with enemas lol...

Rikimaroo
RC T3N1M0
MSS - NRAS Mutation
Chemo Rad, CCR - W&W 5/2017
Recurrence 11/2017
CT Scan 11/2017 Liver Met 5.5cm Stable, Stage IV
Port Scheduled for 12/2017, folfox - avastin 12/2017
Blood Clot in Neck 1/2018, stop avastin, continue FolFox
LAR/Liver Resect 4/2018
Chemo Finish 8/2018
Reversal 10/18
CEA - 12/16 26.1, 1/17 32.2, 3/17 6.6, 11/17 500.5, 12/17 638.5, 1/3/18 424.8, 1/16/18 163.5, 1/31/18 62.2, 2/18 21.1, 3/18 14, 4/18 .8, 10/18 1.2, 12/18 3.2, 2/8 11.4, 3/6 22

NHMike
Posts: 2078
Joined: Fri Jul 21, 2017 3:43 am

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby NHMike » Fri Aug 02, 2019 12:44 pm

Rikimaroo wrote:Mike,

Have you thought about going back to the bag. It crosses my mind every now and then, because honestly the bag was no issue at all. Yes sometimes I had issues like where it came out from the sides, but that I figured out how to control. Other then that the bag is just weird to have, but to be honest makes life so much easier. Mike also your just 1 year out. They say things start to get better after 1 year or more. My biggest issue is the clustering, even when I am taking the metamucil. It just doesn't make sense and hard to figure out. I Know Susie has mentioned the enema, have you tried that. I am yet to try it. I am just not comfortable with enemas lol...

Rikimaroo


I have not tried enemas because my surgeon seems to not like the idea.

A lot of my issues are the result of stress and pressure at work. I think that things would be a lot easier if I didn't have to work. Or work on a schedule. I can manage things with discipline but it's hard to have with a very busy life.

My problem with the bag is that I am used to being very active and I think that the bag would be quite limiting.

If you're under a lot of pressure, small losses of time become big annoyances. So I need to get more efficient. And that means saying no to people.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

Rikimaroo
Posts: 238
Joined: Tue Dec 20, 2016 8:48 pm

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby Rikimaroo » Fri Aug 02, 2019 2:48 pm

Mike,

I don't think stress or pressure at work is causing your issue. I don't have stress or pressure as I work from home and I still have similar problems as you. Let's take today for example. I pooped once around 11:30ish and then another time at 1:30ish. That is twice, both times I usually strain or push to get stool out and sometimes it comes out on its own with sphincter muscles. This has been occurring more often where I got to put in more work then get the poop out by pushing vs the sphincter reacting and pushing or letting me know. Most often the poop is right there at the butt hole area so I find out I need to go, cause of the pressure. But yesterday I went from 4-7:30 AM hardly got any sleep. So its weird.

Either way it's up for debate on the bag in my household. I will give it some more time, maybe another year. But there are days I feel like its suffering, cause I got 10-12 times and the burn sucks. Then there are days I go once or twice and I am done. Which are great days. I still fear those times that I have to go when I am with a client, but at the end of the day, i can deal with all of this for another year to see if things get better. If not I think the bag is the best alternative. We shall see my friend.
RC T3N1M0
MSS - NRAS Mutation
Chemo Rad, CCR - W&W 5/2017
Recurrence 11/2017
CT Scan 11/2017 Liver Met 5.5cm Stable, Stage IV
Port Scheduled for 12/2017, folfox - avastin 12/2017
Blood Clot in Neck 1/2018, stop avastin, continue FolFox
LAR/Liver Resect 4/2018
Chemo Finish 8/2018
Reversal 10/18
CEA - 12/16 26.1, 1/17 32.2, 3/17 6.6, 11/17 500.5, 12/17 638.5, 1/3/18 424.8, 1/16/18 163.5, 1/31/18 62.2, 2/18 21.1, 3/18 14, 4/18 .8, 10/18 1.2, 12/18 3.2, 2/8 11.4, 3/6 22

NHMike
Posts: 2078
Joined: Fri Jul 21, 2017 3:43 am

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby NHMike » Fri Aug 02, 2019 2:58 pm

Rikimaroo wrote:Mike,

I don't think stress or pressure at work is causing your issue. I don't have stress or pressure as I work from home and I still have similar problems as you. Let's take today for example. I pooped once around 11:30ish and then another time at 1:30ish. That is twice, both times I usually strain or push to get stool out and sometimes it comes out on its own with sphincter muscles. This has been occurring more often where I got to put in more work then get the poop out by pushing vs the sphincter reacting and pushing or letting me know. Most often the poop is right there at the butt hole area so I find out I need to go, cause of the pressure. But yesterday I went from 4-7:30 AM hardly got any sleep. So its weird.

Either way it's up for debate on the bag in my household. I will give it some more time, maybe another year. But there are days I feel like its suffering, cause I got 10-12 times and the burn sucks. Then there are days I go once or twice and I am done. Which are great days. I still fear those times that I have to go when I am with a client, but at the end of the day, i can deal with all of this for another year to see if things get better. If not I think the bag is the best alternative. We shall see my friend.


I'm not saying that I don't have problems. I can just do a much better job managing them if I didn't have the work stuff.

I know that the Nopalina can work quite well at flushing things out on a regular timetable but it would mean taking it and eating at regular times which I'm not doing. Stuff gets in the way of some discipline which disrupts the GI system.

Last night I wanted to hit some serves but the indoor courts were all books so we played outside. I used to hit serves at 100-110 MPH. The serve puts a tremendous strain on various parts of the body and there's a lot of acceleration of the core and I didn't dare try this while wearing a bag. I used to do sprints at 12 MPH on the track. When I moved that fast, my fingers and hands would get numb because of higher demand from the larger muscles. The forces on the body feel really amazing at that speed and I would like to feel that again.

I'm lifting heavier weights than I have in the past and feel stronger but I don't that I could do that with a bag.

And there's the issue of dependence on companies for the bags and associated products. I think that this is why people stockpile them to some degree. A natural disaster in your own area or in the area where they are manufactured could make things dicey. I do worry about global supply chains for the things that we need and supply chains can undergo fragility from time to time.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

Rikimaroo
Posts: 238
Joined: Tue Dec 20, 2016 8:48 pm

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby Rikimaroo » Fri Aug 02, 2019 3:17 pm

Well you are surely more active than I am in regards to exercing. That is great. I need to start doing that. The problem with Nopalina, Metamucil and other fiber supplements is I don't know if sometimes they cause clustering, or not. I been taking the Metamucil and tried Nopalina and I can honestly say they work and then don't work. So what the hell do we do about it. It's kind of frustrating because you expect it to work all the time the same way no clustering, just 2-3 solid bowel movements a day and your done, but that is not always the case. Wish they could make a rectum :)....Well let's keep on trucking. Maybe in 2 years we will be closer to a norm. I know a few fellows that are actually doing well after LAR. I mean there are those days they have poop themselves, or clustered, but there practically two years out, but most days are better then worse. I could say that is similar to me, most days are better then worse.

It's just when the worse day happens it makes you feel like the good days doesn't matter.
RC T3N1M0
MSS - NRAS Mutation
Chemo Rad, CCR - W&W 5/2017
Recurrence 11/2017
CT Scan 11/2017 Liver Met 5.5cm Stable, Stage IV
Port Scheduled for 12/2017, folfox - avastin 12/2017
Blood Clot in Neck 1/2018, stop avastin, continue FolFox
LAR/Liver Resect 4/2018
Chemo Finish 8/2018
Reversal 10/18
CEA - 12/16 26.1, 1/17 32.2, 3/17 6.6, 11/17 500.5, 12/17 638.5, 1/3/18 424.8, 1/16/18 163.5, 1/31/18 62.2, 2/18 21.1, 3/18 14, 4/18 .8, 10/18 1.2, 12/18 3.2, 2/8 11.4, 3/6 22

Jolene
Posts: 130
Joined: Wed Jan 23, 2019 10:17 am

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby Jolene » Fri Aug 02, 2019 9:37 pm

NKMike and Rikimaroo - Just to share, I attended a colorectal patient support group not too long ago and met a few people with/without the bag. One guy said it took him 2 years to return to normality after LAR and on some of the worst days, he would go to the toilet for up to 40 times a day. He is back to normality now and just got to be careful of certain food that he eats which can cause bloating and indigestion.

Some other survivors in the support group also mentioned about 2 years for normality to return. Sounds like 2 years is the benchmark of returning to normality for LARS.

Hang in there !
Dx @ 39 F, married
Nov 18 - Scope + MRI + CT = Dx of a mid-rectal tumour at T3N1M0 (2cm) 7cm from AV
Dec 18 - CRT, 28 sessions + Capecitabine at 3000mg daily
End Dec 18 - Completed CRT with little side effects
Feb 19 - Second MRI showed a speck of residual tumour - continue to wait
Mar 19 - MRI, PET, sig flex and biopsy ordered to determine being a WW candidate.
Apr 19 - Complete clinical response. Surgery on hold. 6 cycles of Xelox.
Aug 19 - Completed 6 cycles of Xelox. Wait and watch protocol in place !

Rikimaroo
Posts: 238
Joined: Tue Dec 20, 2016 8:48 pm

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby Rikimaroo » Sat Aug 03, 2019 10:31 am

That's great information Jolene, truly appreciates, lets pray that is the case for me and Mike. We are some busy folks as you can tell from this thread with Mike he is a busy working dad. I am the same. Got to provide for our families.

All the best!!
RC T3N1M0
MSS - NRAS Mutation
Chemo Rad, CCR - W&W 5/2017
Recurrence 11/2017
CT Scan 11/2017 Liver Met 5.5cm Stable, Stage IV
Port Scheduled for 12/2017, folfox - avastin 12/2017
Blood Clot in Neck 1/2018, stop avastin, continue FolFox
LAR/Liver Resect 4/2018
Chemo Finish 8/2018
Reversal 10/18
CEA - 12/16 26.1, 1/17 32.2, 3/17 6.6, 11/17 500.5, 12/17 638.5, 1/3/18 424.8, 1/16/18 163.5, 1/31/18 62.2, 2/18 21.1, 3/18 14, 4/18 .8, 10/18 1.2, 12/18 3.2, 2/8 11.4, 3/6 22

NHMike
Posts: 2078
Joined: Fri Jul 21, 2017 3:43 am

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby NHMike » Sat Aug 03, 2019 11:12 am

Rikimaroo wrote:Well you are surely more active than I am in regards to exercing. That is great. I need to start doing that. The problem with Nopalina, Metamucil and other fiber supplements is I don't know if sometimes they cause clustering, or not. I been taking the Metamucil and tried Nopalina and I can honestly say they work and then don't work. So what the hell do we do about it. It's kind of frustrating because you expect it to work all the time the same way no clustering, just 2-3 solid bowel movements a day and your done, but that is not always the case. Wish they could make a rectum :)....Well let's keep on trucking. Maybe in 2 years we will be closer to a norm. I know a few fellows that are actually doing well after LAR. I mean there are those days they have poop themselves, or clustered, but there practically two years out, but most days are better then worse. I could say that is similar to me, most days are better then worse.

It's just when the worse day happens it makes you feel like the good days doesn't matter.


I take Nopalina and Slippery Elm when I want things to come out relatively quickly (8-16 hours). If I don't take them, then things take 36-48 hours. It is nice to have some semblance of control there but, as you state, things aren't a sure thing.

We plan to go into Boston tomorrow so the plan is to take three doses of Miralax along with a lot of carbonated water to get a flush today. I don't plan to eat anything today either. The Miralax is an experiment. I really should have taken time off to do experiments to see what works and if I can get something consistent but life, most of the time, isn't convenient.

I just passed a year this past week. I can say that I know more and have more tools but I can't say that I'm anywhere near in control.

In the meantime, I'll looking for the pads that they provided at the hospital. I think that I found them and may order some or ask for samples. I found another brand that might be useful and asked for samples of various sizes. I have in mind what I'd like but I don't know if anyone makes it. Finding something the right length would be nicer than using two or three smaller pads. I was considering starting a thread on pads and liners as I think that everyone with rectal cancer, stage 3 or 4, needs them at some point.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

NHMike
Posts: 2078
Joined: Fri Jul 21, 2017 3:43 am

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby NHMike » Sat Aug 03, 2019 11:13 am

Jolene wrote:NKMike and Rikimaroo - Just to share, I attended a colorectal patient support group not too long ago and met a few people with/without the bag. One guy said it took him 2 years to return to normality after LAR and on some of the worst days, he would go to the toilet for up to 40 times a day. He is back to normality now and just got to be careful of certain food that he eats which can cause bloating and indigestion.

Some other survivors in the support group also mentioned about 2 years for normality to return. Sounds like 2 years is the benchmark of returning to normality for LARS.

Hang in there !


That's good to know.

I've made it through one year. The second should be somewhat more efficient.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

NHMike
Posts: 2078
Joined: Fri Jul 21, 2017 3:43 am

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby NHMike » Wed Aug 07, 2019 11:59 am

A challenging week. I had a blockage on Friday and one on Sunday. Things were sore Monday and Tuesday but are better today.

I ordered some North Shore pads 7 inches by 24 inches. These are almost $1 each because of the small order. Right now I use 3 pads because the usual pads are generally only 12-13 inches. I may order some Medline maternity pads too. I think that these are the ones that the hospital had and these worked well in regular clothes. I haven't worked out this week so far (outside of walking 7 miles on Sunday), because I didn't feel like it with the GI pain. I may do some heavy weights today just to start to get back into it.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

NHMike
Posts: 2078
Joined: Fri Jul 21, 2017 3:43 am

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby NHMike » Sat Aug 10, 2019 7:10 pm

I played a set of tennis for the first time in almost two years on Friday. I practiced serves for twenty minutes beforehand. The serve is usually difficult to get back after a layoff but I was about to make six out of seven in the practice session. I was wiped out afterwards and a good part of today so today was a rest day outside of some yoga and stretching to feel better.

Today was a bathroom day as well from 5:30 AM to 8:00 PM.

I have a quarterly surveillance appointment this week and am hoping that things are uneventful.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

NHMike
Posts: 2078
Joined: Fri Jul 21, 2017 3:43 am

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby NHMike » Mon Aug 12, 2019 12:59 pm

I ordered a Tena sampler of pads and found that they are long (14-15 inches) which provides good coverage. Pads are typically 10-12 inches so these being a bit longer are nice but they are too thick for what I need. Unfortunately thin pads don't come in long lengths. It is nice to be able to get samples though.

I also ordered NorthShore pads that are 7x24 inches and they just arrived. I think that these are too big but I will try them with regular clothes instead of Depends-type garments. They are definitely thicker than what I need and wider as well. The liners at Brigham and Womens were perfect. The surgeon's admin told me that they are Medline Maternity Liners but I don't know which type. NorthShore also sent me some additional samples: some pads that are 9x19 that are tapered. I'll try them but I expect that they are too large; and they sent me a package of wipes and some coupons. I'm pretty much sold on Kirkland Wipes and I buy them in the 900 box. The water bottles that I use, though, generally mean that I use very few wipes.

I am planning on ordering some Medline liners and am considering some CVS products. The NorthShore catalog bears looking at too. There are actually a lot of products out there but discovery is a problem. I also considered Poise products but they're pretty close to Tena. I know what I'd like - it's just that I haven't seen an exact match yet.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

NHMike
Posts: 2078
Joined: Fri Jul 21, 2017 3:43 am

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby NHMike » Mon Aug 12, 2019 1:24 pm

My LARs kit:

Image
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6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT


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