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Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Posted: Wed Sep 05, 2018 7:31 pm
by NHMike
Things have been somewhat better with the Immodium and the Cavilon. There are still a lot of bathroom trips but some longer breaks between them. So I'll keep experimenting.

One thing that I found out about Facebook is that it doesn't like to be in a Sandbox. A Sandbox is using a browser or virtual machine for Facebook only. You do all of your regular browsing using another browser or another machine. The Sandbox means that it can't grab information on what other things you are doing on the browser directly. So I read the notification emails on my phone and on my main laptop. Facebook is able to determine the system information or browser or mail client that I'm reading my email on and it's disconnected from the virtual machine where I read Facebook. So the first time they required a phone number. The second time they required a picture. I am locked out of my account until they verify the picture. I assume that they have pictures of everyone in the world which they compare with the submitted picture. At any rate, FB is a creepy company.

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Posted: Thu Sep 06, 2018 5:51 am
by cbsmith
Mike, what they are probably doing is comparing your photo to all of the other profile photos on Facebook to make sure it doesn’t match any other ones. The way you have it set up is also the way that most hackers do and phishing attempts are done. People will create a duplicate profile of someone else and then try to get their friends to join the “new” profile to harvest information.

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Posted: Thu Sep 06, 2018 6:20 am
by NHMike
cbsmith wrote:Mike, what they are probably doing is comparing your photo to all of the other profile photos on Facebook to make sure it doesn’t match any other ones. The way you have it set up is also the way that most hackers do and phishing attempts are done. People will create a duplicate profile of someone else and then try to get their friends to join the “new” profile to harvest information.


They do have my phone number which is pretty private and secure information. I've been having a discussion with Brendan Eich (invented JavaScript and CEO of the Brave Browser) over this along with trying to figure out how to improve privacy with some level of anonymity. I don't know whether or not Brendan has any influence at Facebook though. Mike Schroepfer is the CTO of Facebook and he was VP Engineering at Mozilla before that and Brendan Eich was the Chief Engineer at Mozilla at the time. Schroepfer offered me a job at Mozilla about six months before he left for Facebook.

At any rate, I've never had the problem with the identity stuff at other sites before.

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Posted: Thu Sep 06, 2018 6:24 am
by NHMike
The Imodium is remarkable stuff. I only woke up once last night to go to pee. So a decent night's sleep; something that has been rather rare for a while. At the moment, though I want to make sure that the Imodium doesn't cause constipation. Drugs typically have an outsized effect on me so that a dose for one adult might feel like two to four doses for me. So I'm going to try to avoid taking it to see if I can eventually evacuate.

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Posted: Thu Sep 06, 2018 2:01 pm
by NHMike
Based on my limited tests, Imodium seems to shut things down for about twelve to sixteen hours for me. I was able to evacuate sometime after that period from the one I took last night.

I have Slippery Elm coming next week which is a supplement to evacuate and I'm going to try that out as well. There are other suggestions on foods and herbs to evacuate.

So I think that the idea is that I can use Immodium to slow things down and other things to speed things up.

The Imodium sounds like it would allow me to run as I wouldn't need the diaper as running in a diaper is crazy. Though maybe reasonable with a pad.

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Posted: Thu Sep 06, 2018 3:35 pm
by benben
NHMike wrote:
cbsmith wrote:Mike, what they are probably doing is comparing your photo to all of the other profile photos on Facebook to make sure it doesn’t match any other ones. The way you have it set up is also the way that most hackers do and phishing attempts are done. People will create a duplicate profile of someone else and then try to get their friends to join the “new” profile to harvest information.


They do have my phone number which is pretty private and secure information. I've been having a discussion with Brendan Eich (invented JavaScript and CEO of the Brave Browser) over this along with trying to figure out how to improve privacy with some level of anonymity. I don't know whether or not Brendan has any influence at Facebook though. Mike Schroepfer is the CTO of Facebook and he was VP Engineering at Mozilla before that and Brendan Eich was the Chief Engineer at Mozilla at the time. Schroepfer offered me a job at Mozilla about six months before he left for Facebook.

At any rate, I've never had the problem with the identity stuff at other sites before.


How does Brave work in conjunction with FB?
Brave is the main browser I use. It's great for elimination of adware and spyware/tracking - especially with the advent of TOR/VPN in private tabs.
I don't FB. So I don't know.

Tell the folks over at Mozilla to fix the function of the mozrepl module for perl scripting interfacing within the browser. I use it for multiple backend network tasks and the most recent updates of mozilla killed its function. Hah. Perhaps its time to use SSH to query the devices.

On the immodium front. It does work quite well. It tends to make me feel extreme bloat though. So I used it as little as possible. Also when it wore off I seemed to have the opposite results with more loose movements. I presumed this was the body attempting to compensate.

Oh the visual of running down the street in diapers is quite funny. I'm sure you'd get some looks and laughs :)

Glad to hear you're making some real progress.

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Posted: Thu Sep 06, 2018 4:41 pm
by NHMike
benben wrote:How does Brave work in conjunction with FB?
Brave is the main browser I use. It's great for elimination of adware and spyware/tracking - especially with the advent of TOR/VPN in private tabs.
I don't FB. So I don't know.

Tell the folks over at Mozilla to fix the function of the mozrepl module for perl scripting interfacing within the browser. I use it for multiple backend network tasks and the most recent updates of mozilla killed its function. Hah. Perhaps its time to use SSH to query the devices.

On the immodium front. It does work quite well. It tends to make me feel extreme bloat though. So I used it as little as possible. Also when it wore off I seemed to have the opposite results with more loose movements. I presumed this was the body attempting to compensate.

Oh the visual of running down the street in diapers is quite funny. I'm sure you'd get some looks and laughs :)

Glad to hear you're making some real progress.


I don't think that FB likes Brave. Brave blocks or hides everything and that may look like a security issue to FB. I asked Eich last night and he said that they block everything.

On Mozilla, I usually try the problem on the nightlies to isolate the range of code changes and then look for stuff in the module or functionality that I'm guessing was broken. Sometimes fixing stuff yourself is faster than filing a Bugzilla.

I don't mind loose movements; I just want to know that I can have them as I don't want to deal with a blockage.

I have done a small bit of running in the diapers with shorts on over them. The problem is that the plastic has some abrasive edges which will result in considerable chafing with any distance.

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Posted: Fri Sep 07, 2018 10:43 am
by NHMike
FB account was disabled so I went to their health section, submitted an ID and they said I'd get an email shortly which didn't happen. I need to short them on the next rally.

Decent morning. I'm trying to control things without the Imodium and it's successful so far today. Did a little weightlifting and some stretching and standing exercises. I'll do some yoga poses in my office during lunch.

One of the barrier creams is arriving on Monday - I look forward to using a cream instead of a spray.

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Posted: Sat Sep 08, 2018 1:37 pm
by NHMike
I spent a lot of time in the bathroom yesterday afternoon but it was intentional - I wanted to see what things were like when the Imodium wore off and am still calibrating with the drug. I took one at 5 PM yesterday because I needed some relief and, so far, it's been about 21 hours and I feel like I'm in control. I'm not wearing a diaper right now (first time in about five weeks); just a pad in my shorts and plan to do some light exercise and maybe even some running. The Imodium may be providing an assist making it easier to work on my control. I just checked the box and I only have eight of them left so these come in pretty small quantities. I have two full boxes at home so plenty for a while.

I had to go up a size in shorts with diapers because they are so bulky; it's nice to be back to clothes which breathe.

I also got eight hours of sleep last night which, for me, is a really big deal.

We are starting to plan a trip in the next couple of weeks which will involve me driving for about five or six hours. I can see myself doing that with the Imodium now.

I still need to use the Cavilon Spray daily to minimize irritation but the creams will start arriving in a few days and I look forward to using them instead of the spray.

So today is a good day so far.

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Posted: Sat Sep 08, 2018 2:27 pm
by Atoq
I am really happy to hear that the Imodium is working! It is nice to get some sleep and feel in control again.
Claudia

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Posted: Sat Sep 08, 2018 5:51 pm
by NHMike
For those that do abs exercises: how much time between reversal and when you started to do situps. The discharge instructions said "No Situps" for four weeks I think. I'm two days from six weeks and I'd like to start doing them but I don't want to get injured either. The best approach would be to use an abs machine, set it at 20 pounds (a crunch would be a lot more weight) and then gradually move up from there but that would mean going to the gym. My primary gym closes early on the weekends so I might go to my backup gym. My office gym doesn't have an abs machine.

On the book thing: I spent a little time looking up Copyleft and GNU Public Licenses. I didn't find an example though.

I'm about 7 hours with control and feel no need to take an Imodium but I will likely take one before bed. It may be that wearing the diapers meant that I put less effort into control - that's the concept of having a crutch. At any rate, it's liberating. The diaper goes back on overnight though. There's no real downside to wearing it and I'd rather be safe in that area, at least until I build up a certain level of confidence.

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Posted: Sat Sep 08, 2018 7:47 pm
by O Stoma Mia
NHMike wrote:For those that do abs exercises: how much time between reversal and when you started to do situps. The discharge instructions said "No Situps" for four weeks I think.

I posted this before on another thread, but I'll post it again here, just in case:

    O Stoma Mia wrote:In my opinion, it would be good idea to see a sports-medicine doctor about this. He/she should know about recovery times for various kinds of injuries and surgeries.

    The main risk, I think, would be the possibility of an incisional hernia at the incision site where the resected hemi-colon was removed. Depending on how the surgery was done, this could take a long time to heal thoroughly. If the surgeon had to make the cut "across the grain" of the abdominal muscles in order to get the resected colon out then the recovery time could be a lot longer than if the cut were made "along the grain" of the muscle. (That's what my surgeon told me.)

    There are some athletic-minded members here who did not wait long enough before resuming intense athletics, and they ended up having hernia operations.



Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Posted: Sat Sep 08, 2018 9:35 pm
by NHMike
O Stoma Mia wrote:
NHMike wrote:For those that do abs exercises: how much time between reversal and when you started to do situps. The discharge instructions said "No Situps" for four weeks I think.

I posted this before on another thread, but I'll post it again here, just in case:

    O Stoma Mia wrote:In my opinion, it would be good idea to see a sports-medicine doctor about this. He/she should know about recovery times for various kinds of injuries and surgeries.

    The main risk, I think, would be the possibility of an incisional hernia at the incision site where the resected hemi-colon was removed. Depending on how the surgery was done, this could take a long time to heal thoroughly. If the surgeon had to make the cut "across the grain" of the abdominal muscles in order to get the resected colon out then the recovery time could be a lot longer than if the cut were made "along the grain" of the muscle. (That's what my surgeon told me.)

    There are some athletic-minded members here who did not wait long enough before resuming intense athletics, and they ended up having hernia operations.




I recall seeing that now. I also recall my fitness center manager saying the same thing.

I don't plan on resuming intense athletics though. I was going to do my own rehab which means doing it slowly and that means using the machines at low levels because bodyweight might be too much.

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Posted: Sat Sep 08, 2018 9:48 pm
by Utwo
NHMike wrote:For those that do abs exercises: how much time between reversal and when you started to do situps.
Have you had an open or laparoscopic surgery?
I have a recollection that even some people with laparoscopic surgery have managed to get hernias.

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Posted: Sat Sep 08, 2018 10:20 pm
by NHMike
Utwo wrote:
NHMike wrote:For those that do abs exercises: how much time between reversal and when you started to do situps.
Have you had an open or laparoscopic surgery?
I have a recollection that even some people with laparoscopic surgery have managed to get hernias.


It was just a reversal and it definitely wasn't open - they just used the hole that the stoma came out of. The original surgery was open with multiple lap assist. The recovery from the original surgery was very fast despite them doing far more.