NHMike wrote:CEA results came back today at 1.8. So 2.7 before treatment, 1.9 three weeks in and 1.8 at six weeks.
susie0915 wrote:Glad you felt good enough to play. Have you been watching the US Open? I love tennis although I never played. My daughter played usta tennis. We traveled a lot for tournaments. She was a pretty good player, earned a college scholarship at a division 2 school in North Carolina. I loved to watch her play. I think she was ranked as high as 35 in the Midwest in 18 and under. I hope she starts playing again. She's 26 now, and is working a lot trying to further her career. Do you play in a league? I like to golf, just trying to get my swing back since I really didn't get to play too much the last two years. 2015 summer of radiation, got tough, and last summer just finishing chemo and trying to normalize my bowels. I've played alot this summer, but I told my husband cancer stole my swing. I've lost distance. But I'm outside playing so that's a good thing.
I hope you get to play a lot more until you have surgery, the exercise will help strengthen you for recovery. Have Fun.
cruzer2012 wrote:Yea I know the feeling. Was diagnosed in July with Stage2. Hope all goes well with you. New to this site and still figuring out how to make a post myself? Trying to connect with like loop ileostomy people to find out about what they eat?
NHMike wrote:Vitamin D levels came back. 20. Normal is 30 - 170. That's with me taking 500 mg/day and taking walks in the sun. I need to really crank it up.
benben wrote:NHMike wrote:Vitamin D levels came back. 20. Normal is 30 - 170. That's with me taking 500 mg/day and taking walks in the sun. I need to really crank it up.
I do 2000 mg per day. Keeps my levels in check on VIT D. Up to 4000 is recommended in some cases.
So if I were you I'd certainly go at least 2000 with it.
As for the fatigue. Yeah the RBC really factor in there.
I Start to drop around treatment 3 on RBC, and by treatment 5 my platelets were trashed from Oxi and the Zarxio shots to boost WBC reduce the RBC some.
I dropped Oxaliplatin on round 7 and had treatment 8 with no OXI and my counts have gone back close to normal, just a smidge low on RBC, but platelets are normal again.
I noticed two things - considerably more energy and hair growth. My hair seemed to be growing at snails pace for past few months. Then no OXI and bam, starts growing back fast.
I'm hoping next session all my counts will be back to normal range. Crossing fingers.
I know you were doing Xeloda, while I was doing Folfox - but all the same dropping the OXI you will probably start to feel more normal about 2-3 weeks after stopping it.
You probably will still be reduced energy and strength. I've noticed my strength is vastly reduced. I used to be able to do 50 push ups without stopping. I'm lucky to do the full 10 right now.
But anyhow, you'll get closer to normal quickly and hopefully you're close to full on normal by Surgery day.
Keep it up fellow warrior, you've done well in spite of everything you've gone through thus far.
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