NHMike wrote:
I requested a sample. I requested them from other places too but didn't hear anything back. How does the sample request process work (as in the process and how long it takes)? Keep the product suggestions coming.
rockhound wrote:NHMike wrote:
I requested a sample. I requested them from other places too but didn't hear anything back. How does the sample request process work (as in the process and how long it takes)? Keep the product suggestions coming.
With the samples, I went online and filled out info forms for Convatec, Hollister, and Coloplast; came home from hospital with Hollister. Each company ended up calling me and then after I tried the Coloplast samples and liked them (plus with input from my great ostomy nurse), I got hooked up with them again to order. The companies were pretty persistant in my experience (still are!).
NHMike wrote:I changed the bag this morning in a record 12 minutes (for me). There was no irritation (no sting when I applied the barrier wipes) so two days is a lot better than five. Next change will be in three days. If there's no stinging, then I'll stick with three days. I'm still looking into other products though. No call backs from any of the free sample places yet.
Slept in a recliner last night and this greatly reduced (by 98%) stuff leaking into the other stoma hole and coming out the rear end. The stuff this morning might have been from yesterday as well. The recliner is not as comfortable as the bed but my Garmin Forerunner reported that I got 9 hours and 50 minutes of sleep, 5 hours and 38 minutes of deep sleep and 3 hours and 44 minutes of light sleep so I should feel pretty good today. It was cold last night and the heater was on quite a bit so my throat and eyes were a bit scratchy so I'll need to set up a humidifier as it's only going to get colder in the next week.
NHMike wrote:... I have Oxaliplatin coming up later this month. I'm meeting with the oncologist tomorrow to see how quickly we can get started...
Table 1. Oxaliplatin desensitization compounding instructions
Have the pharmacy make four 10-fold dilutions of oxaliplatin in 100 ml of D5W.
Starting with the most dilute solution (1:10,000), run each one in over 60 minutes. At the end of this 4-hour desensitization, run the remainder of the
oxaliplatin in 500 ml D5W in over the usual 2 hours.
Final dose = ____________________ mg
Dilute 10% ( _____ mg) of the final dose of oxaliplatin in 100 ml of D5W (label: bag 4).
Prepare another 10% dilution ( _____________ mg) of the final dose of oxaliplatin in 100 ml of D5W (label this the “compounding bag” to be discarded after
compounding is completed).
Remove and discard 10 ml from a 100-ml bag of D5W. Place 10 ml ( ________ mg) from the compounding bag (label: bag 3).
Remove 1 ml (__________ mg) from the compounding bag; place it into a 100-ml bag of D5W (label: bag 2).
Remove 0.1 ml (__________________ mg) from the compounding bag; place it into a 100-ml bag of D5W (label: bag 1).
Place 90% (__________ mg) of the final dose into a 500-ml bag of D5W (label: bag 5)
Ref : http://theoncologist.alphamedpress.org/content/9/5/546.full.pdf+html
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MissMolly wrote:Mike:
Ann (aqx99) is giving you sound advice. Especially regarding the use of ostomy paste.
If you are applying a ring of ostomy paste on the surface of the wafer, stop. Cease and decist. Ostomy paste has no adhesive property. It is not Elmer’s glue. Ostomy paste will add to leaks by provide a ready conduit for liquid ileostomy output to undermine the wafer.
You are not alone. Erroneous use of ostomy paste is one of the most frequent pit-falls encountered by individuals new to an ostomy. Almost every new patient ostomy “gift bag” includes a sample of stoma powder and ostomy paste. Neither are essential accessory items. Most people do fine without either.
Use of a barrier ring is the best protection against water leaks. Think of a barrier ring as a gasket in a faucet. Barrier rings encircle the stoma and provide a ready resistance to digestive enzymes that can erode the normal hydrocolloid wafer material. Barrier rings have different names depending on the manufacturer. The most popular is the Ekin Adaptic Ring (by ConvaTec). Other barrier rings go by the name of Brava Adaptic Ring (by Coloplast) and Adapt Ring (by Hollister).
The process of discovering the optimal Ostomy pouching system and accessory products does take time and detective work. Feel free to use the support forum of the United Ostomy Association of America (UOAA). I saw your thread on the UOAA forum asking for comments on how to keep the pouch close to the body for running and sports. Feel free to ask more questions of the members of the UOAA. It is a nice group of individuals. I have learned more from the members of the UOAA then from any ostomy nurse. There is something to be said for the wisdoms learned from living with an ostomy and being an end-user of Ostomy products.
Calling different manufacturers and requesting samples remains the best way to try products in finding the best system for you. Each person has a unique abdominal topography and skin characteristics. Each manufacturer has its own propriety “recipe” that composes the hydrocolloid matrix. Calling into a manufacturer, you will be greeted by a support person who has ostomy awareness and knowledge. Discuss your stoma and what you are looking for in an ostomy pouching system. You can also ask to receive a paper bound catalogue. Sometimes it is preferred to flip through pages of a paper catalogue than prowling the internet and web sites.
Here are the 1-800 numbers for the main ostomy product manufacturers. My favorite products are from Coloplast and CyMed.
Coloplast: 1-800-533-0464 Ask about the Mio and Sensura lines and the Brava adaptic rings and Brava Strips (to anchor edges of the water)
CyMed: 1-800-582-0707 Ask about the Micro-skin wafers
ConvaTec: 1-800-422-8811 Ask about the moleable wafers and Ekin Adaptic Cohesive Rings/Seals (barrier rings)
Hollister: 1-800-323-4060 Ask about the moldeable wafer durahesive wafers specific for ileostomies (longer wear time, stronger withstanding to digestive enzymes).
Best wishes in finding The Best ostomy system for you,
Karen
cbsmith wrote:Try an Eakin Seal instead of the ostomy paste. The ostomy paste isn’t an adhesive so it won’t stick anything together, it I mostly used to fill gaps or indents. I find an Eakin works a lot better and is adhesive. And it will protect the skin around the stoma better than a barrier wipe.
Aqx99 wrote:You may want to look into crusting to help heal the areas of irritation you have. There are some good videos on YouTube about it. Basically, you layer stoma powder and barrier wipes to form a crust over the raw area that protects it so it can heal, but still allows the adhesive to stick. It has worked well for me.
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