Rectal cancer (Stage 3A) diagnosed late June 2017

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NHMike
Posts: 553
Joined: Fri Jul 21, 2017 3:43 am

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby NHMike » Tue Oct 17, 2017 6:27 am

I received a package from the hospital yesterday and it indicated that I shouldn't have any valuables on me and they discouraged things like phones, cash, checkbooks, etc.

How did others handle this? I would like to be able to communicate with others when I'm back in the room but that would be hard to do if they don't permit communications devices. I'd also like to have my laptop with me to keep an eye on things at work and with trading. If I can't do that, then I'd need a phone to talk to my daughter to manage my positions. I suppose that I could give my devices to someone and then have them bring them to me after surgery as I'd be in my room most of the time.

Or is it so rough that I shouldn't be thinking about these things while in the hospital?
06/23/17: ER rectal bleeding; Colonoscopy+Biopsy
07/13/17: Stage 3B rectal cancer. T3, N1b, M0. 5.2 x 4.5 x 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6 mm, 5 x 5 mm.
Xeloda 3,400 mg/day + radiation 07/31 - 09/08.
CEA 2.7; halfway through treatment: 1.9; after treatment: 1.8.
MSS, KRAS G12D
10/06/17: 2.7 x 2.2 x 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 mm (-75%), 5 x 3 mm (-40%). 5.1 CM from AV.
Surgery: 10/30/17 LAR, Temp Ileostomy

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susie0915
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Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby susie0915 » Tue Oct 17, 2017 6:48 am

Maybe they mean just during surgery. I'm sure it is not a problem in your room. I know I had my phone and could've had
my computer if needed.
58 yr old mother of 3 Dx @ 55
5/15 DX T3N0MO/ 2A
6/15 5 wks of chemo/rad
7/15 sigmoidoscopy/scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. 3 1/2 weeks in hospital,early ileo rev since
surgery to repair blockage. c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod onc thinks scar tissue
monitored for autoimmune disorder/interstitial lung disease
7/17 no change lung nodule
10/17 Clear CT

NHMike
Posts: 553
Joined: Fri Jul 21, 2017 3:43 am

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby NHMike » Tue Oct 17, 2017 8:58 am

susie0915 wrote:Maybe they mean just during surgery. I'm sure it is not a problem in your room. I know I had my phone and could've had
my computer if needed.


Thanks. I will call them to clarify.
06/23/17: ER rectal bleeding; Colonoscopy+Biopsy
07/13/17: Stage 3B rectal cancer. T3, N1b, M0. 5.2 x 4.5 x 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6 mm, 5 x 5 mm.
Xeloda 3,400 mg/day + radiation 07/31 - 09/08.
CEA 2.7; halfway through treatment: 1.9; after treatment: 1.8.
MSS, KRAS G12D
10/06/17: 2.7 x 2.2 x 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 mm (-75%), 5 x 3 mm (-40%). 5.1 CM from AV.
Surgery: 10/30/17 LAR, Temp Ileostomy

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O Stoma Mia
Posts: 871
Joined: Sat Jun 22, 2013 6:29 am

Hospital packing lists

Postby O Stoma Mia » Tue Oct 17, 2017 9:39 am

NHMike wrote:I received a package from the hospital yesterday and it indicated that I shouldn't have any valuables on me and they discouraged things like phones, cash, checkbooks, etc....How did others handle this?...

Here are some suggestions from previous discussions:

http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=50471&p=387437#p387437
Useful Links:

How to Create a Signature
https://coloncancersupport.colonclub.co ... 97#p421597

How to Find a Board-Certified Surgeon
viewtopic.php?f=1&t=52349&p=410280#p410280

How to interpret a Pathology Report
viewtopic.php?f=1&t=51436&p=399172#p399172

Understanding TNM Staging
http://www.cancer.net/cancer-types/colo ... cer/stages

rockhound
Posts: 34
Joined: Fri Jul 14, 2017 5:00 pm

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby rockhound » Tue Oct 17, 2017 10:51 am

NHMike wrote:I received a package from the hospital yesterday and it indicated that I shouldn't have any valuables on me and they discouraged things like phones, cash, checkbooks, etc.

How did others handle this? I would like to be able to communicate with others when I'm back in the room but that would be hard to do if they don't permit communications devices. I'd also like to have my laptop with me to keep an eye on things at work and with trading. If I can't do that, then I'd need a phone to talk to my daughter to manage my positions. I suppose that I could give my devices to someone and then have them bring them to me after surgery as I'd be in my room most of the time.

Or is it so rough that I shouldn't be thinking about these things while in the hospital?


I had my wife bring me my phone (and also a laptop) to me after both of my surgeries once I was in my recovery room. Did not use either much the first one (resection), used the iphone for calling/web stuff a whole bunch more the second.
42 yr old male
Diagnosed December 2016, age 41
Stage 1/IIA rectal cancer - T2/3N0M0 via MRI (MRI indicates stage 1; onc/surgeon = stage 2a)
Lynch syndrome, MSH6 mutation, MSI-H
2 to 3/2017 Xeloda + Radiation
5/10/17 - Robotic LAR with temp. loop illeostomy, 0/20 lymph nodes
6 to 7/2017 - Six cycles Folfox @ full strength
9/20/17 - Ileostomy takedown
10/17 - Clear CT

Aqx99
Posts: 249
Joined: Fri Mar 31, 2017 7:28 am
Facebook Username: aqx99
Location: Pfafftown, NC

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby Aqx99 » Tue Oct 17, 2017 10:52 am

NHMike wrote:I received a package from the hospital yesterday and it indicated that I shouldn't have any valuables on me and they discouraged things like phones, cash, checkbooks, etc.

How did others handle this? I would like to be able to communicate with others when I'm back in the room but that would be hard to do if they don't permit communications devices. I'd also like to have my laptop with me to keep an eye on things at work and with trading. If I can't do that, then I'd need a phone to talk to my daughter to manage my positions. I suppose that I could give my devices to someone and then have them bring them to me after surgery as I'd be in my room most of the time.

Or is it so rough that I shouldn't be thinking about these things while in the hospital?


They say that so there is no liability on their part if something gets stolen. I took my phone with me and had no problems.
Anne, 40
Stage IIIB Rectal Cancer
T3N1bM0
Diagnosed at age 39
2/21/17 Diagnosis
2/21/17 CEA 0.9 ng/mL
3/23/17 - 5/2/17 Chemoradiation, 28 treatments
6/14/17 Robotic LAR with temp loop ileostomy, ovaries and fallopian tubes removed, 2/21 lymph nodes positive
7/24/17 Started CapeOx, 6 Cycles
7/24/17 Diagnosed with precursor ovarian cancer
9/6/17 CA 125 11.1 U/mL
1/18ish Reversal

NHMike
Posts: 553
Joined: Fri Jul 21, 2017 3:43 am

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby NHMike » Tue Oct 17, 2017 1:12 pm

Thanks for the replies. I think that I will take my phone, laptop and watch with me and leave it in the room in a bag.
06/23/17: ER rectal bleeding; Colonoscopy+Biopsy
07/13/17: Stage 3B rectal cancer. T3, N1b, M0. 5.2 x 4.5 x 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6 mm, 5 x 5 mm.
Xeloda 3,400 mg/day + radiation 07/31 - 09/08.
CEA 2.7; halfway through treatment: 1.9; after treatment: 1.8.
MSS, KRAS G12D
10/06/17: 2.7 x 2.2 x 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 mm (-75%), 5 x 3 mm (-40%). 5.1 CM from AV.
Surgery: 10/30/17 LAR, Temp Ileostomy

Robino1
Posts: 180
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby Robino1 » Tue Oct 17, 2017 1:59 pm

NHMike wrote:Thanks for the replies. I think that I will take my phone, laptop and watch with me and leave it in the room in a bag.


Is anyone going to be with you? I would leave the items with a loved one. I would NOT leave them in a room or with your clothes before surgery. Hubby always brought my things to me after getting settled in the room after recovery.

After getting settled, you will be in the room with your items.
At 54 2014 1st colonoscopy colon cancer detected.
Colon resect right ascending
margins clear. No chemo req
2017
Distended abd, pain in intestines.
CT scan shows seeding
Ascites causing the distention.
Lap diag - cancer on the omentum
CEA 217
CEA 219
PET cancer on the omentum, susp activ right abdomen
FOLFOX started 6/17
CEA 202
Not genetic
8/29/17 CT scan showed excellent melting of the tumor. Chemo is working!
Ascites is gone
CEA: 9/30/17 -109; 10/12/17 - 99.1; 11/4/17 - 90.7

NHMike
Posts: 553
Joined: Fri Jul 21, 2017 3:43 am

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby NHMike » Tue Oct 17, 2017 2:09 pm

Robino1 wrote:
NHMike wrote:Thanks for the replies. I think that I will take my phone, laptop and watch with me and leave it in the room in a bag.


Is anyone going to be with you? I would leave the items with a loved one. I would NOT leave them in a room or with your clothes before surgery. Hubby always brought my things to me after getting settled in the room after recovery.

After getting settled, you will be in the room with your items.


I actually don't know. One of the downsides doing the surgery far from home. I have two people to ask who might be able to do this.

I'm working on the Short-Term Disability stuff right now. At the moment I'm stuck on whether I want The Hartford to withhold taxes from Short-Term Disability payments. I'm inclined to say no as it would mean another W-2 and I can always just make an estimated payment and it's only two weeks (I hope).
06/23/17: ER rectal bleeding; Colonoscopy+Biopsy
07/13/17: Stage 3B rectal cancer. T3, N1b, M0. 5.2 x 4.5 x 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6 mm, 5 x 5 mm.
Xeloda 3,400 mg/day + radiation 07/31 - 09/08.
CEA 2.7; halfway through treatment: 1.9; after treatment: 1.8.
MSS, KRAS G12D
10/06/17: 2.7 x 2.2 x 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 mm (-75%), 5 x 3 mm (-40%). 5.1 CM from AV.
Surgery: 10/30/17 LAR, Temp Ileostomy

benben
Posts: 222
Joined: Fri Apr 28, 2017 3:18 pm
Location: Washington State

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby benben » Tue Oct 17, 2017 3:11 pm

NHMike wrote:
Robino1 wrote:
NHMike wrote:Thanks for the replies. I think that I will take my phone, laptop and watch with me and leave it in the room in a bag.


Is anyone going to be with you? I would leave the items with a loved one. I would NOT leave them in a room or with your clothes before surgery. Hubby always brought my things to me after getting settled in the room after recovery.

After getting settled, you will be in the room with your items.


I actually don't know. One of the downsides doing the surgery far from home. I have two people to ask who might be able to do this.

I'm working on the Short-Term Disability stuff right now. At the moment I'm stuck on whether I want The Hartford to withhold taxes from Short-Term Disability payments. I'm inclined to say no as it would mean another W-2 and I can always just make an estimated payment and it's only two weeks (I hope).


Yeah, I'd bring someone along in the waiting room and have them hold your laptop, phone etc. That's what I did. I gave my son all my tech stuff when I was called for surgery.
After surgery and in my room he brought it into me. Was very valuable to me to pass time watching movies, keep up on work and trading.

Hospitals say not to bring it to surgery, cause you put everything in a bag and they put it in a holding space - but sometimes things end up missing.

Gluck with everything.
----------------------
3/29/17 diagnosed CRC - 44 y/o Male
4/17/17 ULAR - Straight anastomosis - no ostomy.
Path: low grade T3n1m0 - moderate diff.
KRAS - NO, MLH1/PMS2/MSH6/MSH2 - Normal.
5/3 med port install
5/22 folfox - first treatment.
3rd treat, delayed - low ANC - reduced to 90% OXI
Granix given, Now Zarxio treatments every session.
Treatment 7 reduced to 75% OXI
Treatment 8-12 - NO OXI, just Luke and 5FU
Current - 12 treatments done, CBC good, CEA decreasing.
10/20/17 CT-SCAN - CLEAR

NHMike
Posts: 553
Joined: Fri Jul 21, 2017 3:43 am

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby NHMike » Wed Oct 18, 2017 10:59 am

benben wrote:Yeah, I'd bring someone along in the waiting room and have them hold your laptop, phone etc. That's what I did. I gave my son all my tech stuff when I was called for surgery.
After surgery and in my room he brought it into me. Was very valuable to me to pass time watching movies, keep up on work and trading.

Hospitals say not to bring it to surgery, cause you put everything in a bag and they put it in a holding space - but sometimes things end up missing.

Gluck with everything.


I'm not sure that anyone will be with me due to logistics.

Worst case is I will drop stuff off with my sister (local) and ask her to drop it off after surgery. There would be other ways to get it but I don't want to put people out too much.

What do you trade and what's your style? I was sure that I'd run into another trader eventually here.
06/23/17: ER rectal bleeding; Colonoscopy+Biopsy
07/13/17: Stage 3B rectal cancer. T3, N1b, M0. 5.2 x 4.5 x 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6 mm, 5 x 5 mm.
Xeloda 3,400 mg/day + radiation 07/31 - 09/08.
CEA 2.7; halfway through treatment: 1.9; after treatment: 1.8.
MSS, KRAS G12D
10/06/17: 2.7 x 2.2 x 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 mm (-75%), 5 x 3 mm (-40%). 5.1 CM from AV.
Surgery: 10/30/17 LAR, Temp Ileostomy

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O Stoma Mia
Posts: 871
Joined: Sat Jun 22, 2013 6:29 am

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby O Stoma Mia » Thu Oct 19, 2017 12:52 am

You signature says surgery on 10/30 but it doesn't say what kind. Do you know the name of the type of surgery they have planned for you? Is that information included in the pre-op documentation that they just sent you? Do you have a copy of the Informed Consent form that you will have to sign, where they list the risks and benefits of the planned procedure?
Useful Links:

How to Create a Signature
https://coloncancersupport.colonclub.co ... 97#p421597

How to Find a Board-Certified Surgeon
viewtopic.php?f=1&t=52349&p=410280#p410280

How to interpret a Pathology Report
viewtopic.php?f=1&t=51436&p=399172#p399172

Understanding TNM Staging
http://www.cancer.net/cancer-types/colo ... cer/stages

NHMike
Posts: 553
Joined: Fri Jul 21, 2017 3:43 am

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby NHMike » Thu Oct 19, 2017 2:12 pm

O Stoma Mia wrote:You signature says surgery on 10/30 but it doesn't say what kind. Do you know the name of the type of surgery they have planned for you? Is that information included in the pre-op documentation that they just sent you? Do you have a copy of the Informed Consent form that you will have to sign, where they list the risks and benefits of the planned procedure?


From the meeting notes:

Laparoscopically-Assisted Resection Low Anterior
Anastomosis Coloanal
Temporary Ileostomy
Possible Colostomy (psb)
Placement Stent Ureter - Bilateral

I already signed the Informed Consent at the October 10 meeting though I suppose that there could be another one.

The Pre-Op Documentation is a standard surgery package. It doesn't have anything specific to cancer in it.
06/23/17: ER rectal bleeding; Colonoscopy+Biopsy
07/13/17: Stage 3B rectal cancer. T3, N1b, M0. 5.2 x 4.5 x 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6 mm, 5 x 5 mm.
Xeloda 3,400 mg/day + radiation 07/31 - 09/08.
CEA 2.7; halfway through treatment: 1.9; after treatment: 1.8.
MSS, KRAS G12D
10/06/17: 2.7 x 2.2 x 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 mm (-75%), 5 x 3 mm (-40%). 5.1 CM from AV.
Surgery: 10/30/17 LAR, Temp Ileostomy

benben
Posts: 222
Joined: Fri Apr 28, 2017 3:18 pm
Location: Washington State

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby benben » Fri Oct 20, 2017 10:02 pm

NHMike wrote:
benben wrote:Yeah, I'd bring someone along in the waiting room and have them hold your laptop, phone etc. That's what I did. I gave my son all my tech stuff when I was called for surgery.
After surgery and in my room he brought it into me. Was very valuable to me to pass time watching movies, keep up on work and trading.

Hospitals say not to bring it to surgery, cause you put everything in a bag and they put it in a holding space - but sometimes things end up missing.

Gluck with everything.


I'm not sure that anyone will be with me due to logistics.

Worst case is I will drop stuff off with my sister (local) and ask her to drop it off after surgery. There would be other ways to get it but I don't want to put people out too much.

What do you trade and what's your style? I was sure that I'd run into another trader eventually here.


I trade cryptocurrencies. I'm heavy into them since 2013. They make up about 80% of my income. Other 20% comes from my business and rentals.
You've seen bitcoin gains this year? Crazy, but still low price in comparison to projections.
----------------------
3/29/17 diagnosed CRC - 44 y/o Male
4/17/17 ULAR - Straight anastomosis - no ostomy.
Path: low grade T3n1m0 - moderate diff.
KRAS - NO, MLH1/PMS2/MSH6/MSH2 - Normal.
5/3 med port install
5/22 folfox - first treatment.
3rd treat, delayed - low ANC - reduced to 90% OXI
Granix given, Now Zarxio treatments every session.
Treatment 7 reduced to 75% OXI
Treatment 8-12 - NO OXI, just Luke and 5FU
Current - 12 treatments done, CBC good, CEA decreasing.
10/20/17 CT-SCAN - CLEAR

NHMike
Posts: 553
Joined: Fri Jul 21, 2017 3:43 am

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby NHMike » Sat Oct 21, 2017 7:14 am

benben wrote:
NHMike wrote:
benben wrote:Yeah, I'd bring someone along in the waiting room and have them hold your laptop, phone etc. That's what I did. I gave my son all my tech stuff when I was called for surgery.
After surgery and in my room he brought it into me. Was very valuable to me to pass time watching movies, keep up on work and trading.

Hospitals say not to bring it to surgery, cause you put everything in a bag and they put it in a holding space - but sometimes things end up missing.

Gluck with everything.


I'm not sure that anyone will be with me due to logistics.

Worst case is I will drop stuff off with my sister (local) and ask her to drop it off after surgery. There would be other ways to get it but I don't want to put people out too much.

What do you trade and what's your style? I was sure that I'd run into another trader eventually here.


I trade cryptocurrencies. I'm heavy into them since 2013. They make up about 80% of my income. Other 20% comes from my business and rentals.
You've seen bitcoin gains this year? Crazy, but still low price in comparison to projections.


They're hard to ignore as they're in the news a lot. More power to you that you can trade them. I'm fairly traditional with stocks, a bit of options selling and ETFs.
06/23/17: ER rectal bleeding; Colonoscopy+Biopsy
07/13/17: Stage 3B rectal cancer. T3, N1b, M0. 5.2 x 4.5 x 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6 mm, 5 x 5 mm.
Xeloda 3,400 mg/day + radiation 07/31 - 09/08.
CEA 2.7; halfway through treatment: 1.9; after treatment: 1.8.
MSS, KRAS G12D
10/06/17: 2.7 x 2.2 x 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 mm (-75%), 5 x 3 mm (-40%). 5.1 CM from AV.
Surgery: 10/30/17 LAR, Temp Ileostomy


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