Rectal cancer (Stage 3A) diagnosed late June 2017

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rockhound
Posts: 113
Joined: Fri Jul 14, 2017 5:00 pm

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby rockhound » Sat Aug 18, 2018 8:32 am

NHMike wrote:
ValZen wrote:Hi Mike, I'm glad to hear you're seeing improvement and your control is getting much better! That must be a relief, overall. I'm 3 weeks post-op now and find my daily routine is still all over the place, but know it goes with the territory. I'm back at work as well. I have days where I go 5-6 times and start feeling a bit cocky like "I can handle this! This is nothing..." :D ...then wham! The next day (like yesterday) I'm going every hour on the hour - just major clustering all day with strong urges. I alternate between the upstairs and downstairs bathroom at work so I don't feel so conspicuous. Fortunately, I've worked with my same co-workers for over 20 years and they're more like family. Today, I'm not having the strong urges and am more like every 2 hours. Go figure. I hope you can get some good sleep in there and today is a good day for you... It can be slow progress, but at least we're moving in the right direction! Take care.


Glad you are doing well enough to work. I may stay home for the full day as a good chunk of it is over.

I alternate bathrooms as well between five of them. There are four additional bathrooms but they are some distance away.

The change yesterday resulted in pain if I held it in for too long which is why I kept going. This morning the pain is gone and I can hold things in for longer. But I don't know if that will remain the case.


Mike, et al- I've not been following what you have tried post-reversal, so apologizes if this is redundant/you have gone this route already. Have you tried bulking up the stool with metamucil (and also starting on immodium)? For me, the first two weeks were rough and horrible- loose stools, constant going, etc. I stayed home from work then... then tried about 1-2 tbls metamucil in the morning and it was like a switch turned on. Stools bulked up and output went way down. Enough that I flew on a plane for 3.5 hrs, 4 weeks out post-reversal (mine was late sept 2017). Because of the travel, I also added an immodium on the flight home- wow that was a huge step also.. so now I take 1/2 tab immodium daily plus the metamucil still. I still have clustering, but it is all very doable, esp. with work... My surgeon recommended the metamucil originally...
45 yr old male
Diagnosed December 2016, age 41
Stage 1/IIA rectal cancer - T2/3N0M0 via MRI (MRI indicates stage 1; onc/surgeon = stage 2a)
Lynch syndrome, MSH6 mutation, MSI
2 to 3/2017 Xeloda + Radiation
5/10/17 - Robotic LAR with temp. loop illeostomy, 0/20 lymph nodes
6 to 7/2017 - Six cycles Folfox @ full strength
9/20/17 - Ileostomy takedown
10/17 - CT, NED
5/18 - CT, NED
11/18 - CT, NED
5/19 - CT, NED..moving to yearly CT scans
5/20 - CT, NED
5/21 - CT, NED (4 yr. scan)

Caat55
Posts: 694
Joined: Sat Dec 23, 2017 6:01 pm

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby Caat55 » Sat Aug 18, 2018 2:52 pm

Glad to hear some positive news and good days for you. Keep up the narration, it's definitely beneficial for us behind you of the road.
S
Do at 55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018
PET NED 12/18
Clear Colonoscopy 2/19, 5/20

ValZen
Posts: 33
Joined: Fri Sep 08, 2017 8:16 am

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby ValZen » Sat Aug 18, 2018 4:47 pm

rockhound wrote:
Mike, et al- I've not been following what you have tried post-reversal, so apologizes if this is redundant/you have gone this route already. Have you tried bulking up the stool with metamucil (and also starting on immodium)? For me, the first two weeks were rough and horrible- loose stools, constant going, etc. I stayed home from work then... then tried about 1-2 tbls metamucil in the morning and it was like a switch turned on. Stools bulked up and output went way down. Enough that I flew on a plane for 3.5 hrs, 4 weeks out post-reversal (mine was late sept 2017). Because of the travel, I also added an immodium on the flight home- wow that was a huge step also.. so now I take 1/2 tab immodium daily plus the metamucil still. I still have clustering, but it is all very doable, esp. with work... My surgeon recommended the metamucil originally...



Thank you Rockhound! I did buy some psyllium fibre a while back and I also bought the immodium this afternoon too, so I'll have it for the frequent days! Today has been very manageable and "normal feeling" which I'm so grateful for. I think it's all finding the right balance - like you have done. I'll start taking the psyllium tonight before I go to bed and hope I have the same positive results you have!

And to Mike: Cheers to having a great day! Sleep makes all the difference too - so important.

NHMike
Posts: 2555
Joined: Fri Jul 21, 2017 3:43 am

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby NHMike » Sat Aug 18, 2018 9:51 pm

rockhound wrote:Mike, et al- I've not been following what you have tried post-reversal, so apologizes if this is redundant/you have gone this route already. Have you tried bulking up the stool with metamucil (and also starting on immodium)? For me, the first two weeks were rough and horrible- loose stools, constant going, etc. I stayed home from work then... then tried about 1-2 tbls metamucil in the morning and it was like a switch turned on. Stools bulked up and output went way down. Enough that I flew on a plane for 3.5 hrs, 4 weeks out post-reversal (mine was late sept 2017). Because of the travel, I also added an immodium on the flight home- wow that was a huge step also.. so now I take 1/2 tab immodium daily plus the metamucil still. I still have clustering, but it is all very doable, esp. with work... My surgeon recommended the metamucil originally...


My surgeon suggested fiber supplements and Immodium if I needed my bowels quiet for an appointment or for a period of time. I picked up a few bottles of fiber on Thursday but left them in the trunk and pulled them out this morning. I've had three servings today and we'll see what things are like tomorrow.

Today was one of those days with several hours in the bathroom in the morning and then trailing off after a few more hours. Things are far less messy than a one or two weeks ago but it's still a lot of time in the toilet. The thing is that control is improved though not close to perfect. But improving a bit at a time. Bulking up would help a lot as there would be less time in the bathroom.

My son suggested that I take Immodium as well (not sure where he got the knowledge but he sometimes does research on my health issues). So I'll pick some up to have around though I usually try to avoid drugs if I can.

So yes, your reminder is helpful.

I need more rest when I have days like these and need to book that into my planning. I'm normally a person that tries to be 100% all the time and that's not possible in my current medical state. Maybe it can be in the future.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

NHMike
Posts: 2555
Joined: Fri Jul 21, 2017 3:43 am

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby NHMike » Sat Aug 18, 2018 9:54 pm

O Stoma Mia wrote:
NHMike wrote:I wrote the first paragraph of the introduction. I find that it helps to put something down and get the document started as a placeholder.

Thanks for sharing the overview of your writing project.

Would you be open to suggestions regarding possible format, content, etc,? For example, I would like to see a LARS glossary at the end, etc..

- - -

BTW, it looks like your signature is out-of-date -- no mention at all of ileostomy reversal. When did that take place?


I haven't done a glossary for a book or article in a long time. I think that something I wrote back in the 1980s had something like that. I'd have to see if LaTeX has an automatic way of generating a glossary. Right now it's enough to just try to get enough sleep on a "bad" day.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

User avatar
O Stoma Mia
Posts: 1709
Joined: Sat Jun 22, 2013 6:29 am
Location: On vacation. Off-line for now.

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby O Stoma Mia » Sun Aug 19, 2018 12:45 am

NHMike wrote:... I haven't done a glossary for a book or article in a long time. I think that something I wrote back in the 1980s had something like that. I'd have to see if LaTeX has an automatic way of generating a glossary...

I think you should be able to generate a glossary within LaTeX. See link below. (The link says that you can learn LaTeX in 30 minutes). Good luck!

https://www.sharelatex.com/learn/Glossaries

NHMike
Posts: 2555
Joined: Fri Jul 21, 2017 3:43 am

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby NHMike » Sun Aug 19, 2018 6:46 am

O Stoma Mia wrote:
NHMike wrote:... I haven't done a glossary for a book or article in a long time. I think that something I wrote back in the 1980s had something like that. I'd have to see if LaTeX has an automatic way of generating a glossary...

I think you should be able to generate a glossary within LaTeX. See link below. (The link says that you can learn LaTeX in 30 minutes). Good luck!

https://www.sharelatex.com/learn/Glossaries


I've been using LaTeX since around 1984 and, no, you can't learn it in 30 minutes. At least not to the point of being productive with it. There are a large number of packages to learn and it takes a while to learn how to learn how it formats. LaTeX is the most powerful SGML out there that's reasonable to use (lots of people would disagree that it's reasonable to use) but it's based on TeX which gives you even more power and control. But I don't know anyone that actually uses TeX except maybe Donald Knuth.

One of the main attractions of LaTeX is in displaying math (formulas, equations, proofs, etc.) and it takes a while to learn how to do these things. Everything is done with tags (so it's a form of programming) and I think that most people that like to write - just want to concentrate on their writing and let their tools make most of the formatting decisions.

The other reason for using LaTeX way back when was that the tools were free. You had to pay for writing tools back in the 1980s and 1990s and the high-quality open source alternatives didn't start showing up until the late 1990s.

I used runoff in the 70s and early 80s. It was a very crude pure-text solution.

I'll give the package a shot though.

In general, I just search for latex and what I'm looking for. Sometimes it's easy to do what I want and sometimes it's hard.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

NHMike
Posts: 2555
Joined: Fri Jul 21, 2017 3:43 am

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby NHMike » Sun Aug 19, 2018 7:03 am

I spent about 30 minutes trying to get the glossary package to work and nothing comes out. So I'd have to spend more time playing with it.

My usual approach on a new document is to take an old one to start with and then remove the text leaving a shell. When experimenting, I usually add the nw code into the shell. Sometimes this does work as there may be other considerations or interaction issues or the package doesn’t work as advertised.

The package may be specific to a particular installation or tool too. In those cases I have to start from scratch to see whether or not the packs he works in a very simple case.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

NHMike
Posts: 2555
Joined: Fri Jul 21, 2017 3:43 am

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby NHMike » Sun Aug 19, 2018 10:15 am

I tried a standalone case and it didn't work. A little checking and I found that lots of people have the same problem with the Glossary package. It generally doesn't work with common tools. I use texmaker and it looks like it doesn't support the Glossary package. That's a common problem with packages. In general, I don't like to point out a solution unless I've gotten it to work out because a lot of solutions on webpages don't work in individual cases.

I think that this is why I've avoided doing glossaries in the past. It's one of those things where you can spend ten or twenty hours trying to get it to work. Glossary is a separate program and it appears to require perl to run it. I could do a custom build setup but then I'd have to learn how to do that in texmaker and it likely wouldn't be easy (a lot of stuff with open source software isn't easy - that's why companies pay so much for packaged and licensed software). The other approach would be to do it manually but we use tools to make our lives easier - adding a manual step each time would make life harder as I'd have to do everything manually when everything is done automatically by the tool right now.

Another approach would be to build my own Glossary format but I'd have to sort and format things manually too. So, as expected - there are no easy solutions.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

NHMike
Posts: 2555
Joined: Fri Jul 21, 2017 3:43 am

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby NHMike » Sun Aug 19, 2018 10:25 am

I got in 8.5 hours of sleep last night and had a few naps yesterday. Control seems to be somewhat better but I need more of the fiber to come through to know how much better things can be. I'm trying three servings per day. I also got in a bit more food yesterday so maybe that helps. It's nice to have some energy back.

I figured out how to set up running Glossaries manually - I set up a menu item in texmaker to run it. So it won't automatically get run when I do a build. I will have to remember to manually run it from time to time unless I can figure out how to hack the build script.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

NHMike
Posts: 2555
Joined: Fri Jul 21, 2017 3:43 am

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby NHMike » Mon Aug 20, 2018 5:43 pm

A middling day today with a fair number of trips to the bathroom but nowhere near exhausting. I'm in fasting mode as I'd like a day of peace or moderate peace.

A question for those that have gone through port removal: the skin looks horrible and I was wondering how long it takes to flake or come off and be replaced.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

NHMike
Posts: 2555
Joined: Fri Jul 21, 2017 3:43 am

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby NHMike » Tue Aug 21, 2018 7:21 am

I was going to the bathroom every five to ten minutes last night for a few hours and then it stretched to 15-30 minutes and then to two hours at a time so I was able to get some sleep. This after not eating more than 150 calories for 24 hours. Miralax or Mag Citrate would be easier. My son told me that there are two solutions: flush everything out or slow everything down. Enemas and laxatives do the former, fiber and Imodium apparently do the latter.

I'm taking out some older t-shirts that are sized medium. I've been using XL shirts, mainly to hide the bag, but also because of increased weight. It is nice to be smaller again. I normally prefer to run to control weight but my fitness manager suggested I check with my surgeon. The fitness manager said that working out a lot prematurely could result in scar tissue (she knows people that this has happened to). I did use the elliptical yesterday which is close to a running motion without all of the jarring and that worked out well. I can definitely get a better workout on the elliptical than on the treadmill where I have to avoid shock.

For runners here, how far after reversal before you got back into it?
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

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susie0915
Posts: 945
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby susie0915 » Tue Aug 21, 2018 8:18 am

Your son in correct in his recommendations. Using Imodium or lomotil will slow things down, but can flip you into constipation as well. I use enemas every morning to clean out the lower bowel and do not go until the next morning when I do again. I went to a bowel control clinic 15 months after reversal and recommendations by the GI there after some tests were miralax everyday or enemas. I chose enemas as it gave me control of when. It takes about 30 minutes to administer, go to the bathroom and clean up. You are still pretty early after reversals for enemas. Not all doctors are on board with irrigations but it is becoming an acceptable solution in the medical field. The colon can stretch somewhat but will never replace the role of the rectum. I did pelvic floor physical therapy, which was helpful and met with a dietician. Irrigation of colostomies has been widely accepted and it is the same thing as an enema, just go in through the stoma. I have a friend that irrigates is colostomy and just wears a cap, no bag. I know how you feel Mike, I had my reversal 5 weeks after resection due to a bowel blockage so didn't have my bag during adjuvant therapy. That was awful due to the diarrhea. After finishing chemo, I tried for 10 months to achieve some normalcy. Some days were good, but was so unpredictable it made it hard to participate in life. I never had problems with incontinence, just frequent smaller bowel movements. Enemas gave me the freedom to do things without stress, I was able to gain weight because I wasn't as afraid to eat, my bottom felt better, and I pretty much stopped taking all the fiber, Imodium and lomotil. I will still take a couple lomotil everyday for peace of mind and it doesn't affect the effectiveness of the enemas. Enemas have been a great lifesaver for me, but like I said you are probably too early to begin, and should talk to your surgeon before doing them. There are many on this forum that use enemas to manage their bowel movements. It is pretty simple to administer, takes a little practice to become comfortable, but not too long. You can purchase a enema bag on amazon for about $25 and just use tap water.
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoidoscopy/only scar tissue left
8/15 PET scan NED
9/15 LAR
0/24 nodes
10/15 blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 C 4mm lung nod
10/17 pel/abd CT NED
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, CT pel/abd/lung NED
11/18 CEA .6
5/19 CT NED, CEA <.5
10/19 Clear colonscopy
11/19 CEA <.5

User avatar
Atoq
Posts: 412
Joined: Wed Oct 25, 2017 9:31 am

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby Atoq » Tue Aug 21, 2018 9:56 am

I started running after 5 weeks, mainly because of the pressure in the abdomen and surgery.

Claudia
1972, 2 kids
Dx rectal cancer 10.2017
T3N2aMX (met left lung 8 mm)
Lynch neg
CEA 1.8
Neoadjuvant chemoradio Xeloda + 25x2 Gy
05.12.17 laparotomic surg. for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle lung biopsy
07.05.18 CAT scan, lung met 11 mm
04.06.18 ileo reversal
26.06.18 wedge VATS
24.08.18, 31.02.19 CAT scan
12.09.18, 06.02.19 scope, CEA 1.6
19.11.18 scope
20.08.19 CAT, eco
13.09.19 scope, CEA 1.2
18.03.20 CAT, eco, scope, NED
29.11.20 CAT, NED
2023 NED

NHMike
Posts: 2555
Joined: Fri Jul 21, 2017 3:43 am

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby NHMike » Wed Aug 22, 2018 3:52 pm

Trip to the ER for elevated heartrate (215). They gave me Adenosine to get the heartrate down to 95 resting and I was there for a few hours. Heartrate is currently 92 but I'm not resting so it's trending down. I need a prescription for something to lower it and will see a cardiologist in a month.

It's likely dehydration (not enough water). All of my bloodwork was fine.

I did have this feeling with the Xeloda many months ago but it cleared itself up. Could be stress and anxiety too.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT


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