I haven't done much activity-wise since last week outside of throwing out about 1,000 pounds of stuff in our annual cleaning. I haven't been sleeping well (wife is still jet-lagged) and have been quite busy with work.
This morning I had a bag leak. But I was pleasantly surprised that it had been contained by the Hypafix tape (this stuff is really great). So I changed my bag after three days (I have been changing it ever 7-9 days lately) and it probably means that I should order some more of them (last order was in February I think). I still have 27 left which would be enough if I only changed once a week but I don't know if that's realistic given that stuff happens.
Today is my last day for the Xeloda for this cycle and the arthritic feeling is moderately strong. I hope that it abates by the start of the next cycle. The neuropathy lasted a bit over four weeks so I'm inclined to go with the Oxaliplatin next cycle. I think that I'm going to wind up with 8 cycles of Xeloda and 6 cycles of Oxaliplatin. What really helps is when you delay or reduce for a bit and the side-effects drop to nothing. You have a better feeling that the side-effects won't be permanent.
I have tried to paint a picture of normalcy to others as it makes them more comfortable and draws less attention to me. But it's resulted in people asking me to do more and more (work, family, relatives, Church). People are, for the most part, treating me like I'm not sick, which is nice in a way but a lot of people ask me to do things on a regular basis and sometimes I have to push back pretty hard. I have a Type A personality and often take on more than I can actually do and it usually leads to short-term health problems. At any rate, I am pushing back, and sometimes pretty hard, on requests. Some of it is also people not stepping up to handle something and leaving it to someone else to handle it. If you're a responsible type, then you don't like to see things dropped on the floor.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal