Rectal cancer (Stage 3A) diagnosed late June 2017

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susie0915
Posts: 441
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby susie0915 » Sun Oct 29, 2017 2:44 pm

Good Luck tomorrow Mike. I am sure you're going to do well. You are prepared, informed and in charge of your medical care. Keep us updated when you're feeling up to it. I'll be sending positive vibes your way. On a side note, the hospital I had surgery had gowns that fully covered you and opened in the front. I had access to changes if I needed as well.
58 yr old mother of 3 Dx @ 55
5/15 DX T3N0MO/ 2A
6/15 5 wks of chemo/rad
7/15 sigmoidoscopy/scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. 3 1/2 weeks in hospital,early ileo rev since
surgery to repair blockage. c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod onc thinks scar tissue
monitored for autoimmune disorder/interstitial lung disease
7/17 no change lung nodule
10/17 Clear CT

Lee
Posts: 5258
Joined: Sun Apr 16, 2006 4:09 pm

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby Lee » Sun Oct 29, 2017 3:16 pm

Mike, Good luck today with prep. You will be in my thoughts and prayers for successful, no issues surgery.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

rockhound
Posts: 34
Joined: Fri Jul 14, 2017 5:00 pm

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby rockhound » Sun Oct 29, 2017 10:15 pm

Good luck tomorrow!
42 yr old male
Diagnosed December 2016, age 41
Stage 1/IIA rectal cancer - T2/3N0M0 via MRI (MRI indicates stage 1; onc/surgeon = stage 2a)
Lynch syndrome, MSH6 mutation, MSI-H
2 to 3/2017 Xeloda + Radiation
5/10/17 - Robotic LAR with temp. loop illeostomy, 0/20 lymph nodes
6 to 7/2017 - Six cycles Folfox @ full strength
9/20/17 - Ileostomy takedown
10/17 - Clear CT

tarheelmom
Posts: 163
Joined: Mon Mar 07, 2016 5:55 pm

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby tarheelmom » Sun Oct 29, 2017 10:28 pm

Good luck tomorrow! I was in the ERAS protocol. I think it really minimized the pain. Thinking good thoughts for you!
52 y at dx, mom to 4
DX: RC on 2/22/2016
Stage I, T2N0M0, 0/32 LN
23 mm x 7 mm moderately differentiated invasive adenocarcinoma
3 cm from anal verge
4/12/16: ULAR, TME, & temp ileostomy
6/14/16: ileo reversal

Robino1
Posts: 180
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby Robino1 » Mon Oct 30, 2017 8:37 am

Mike, thinking about you and want to wish you well for your procedure today!

You got this!! :)
At 54 2014 1st colonoscopy colon cancer detected.
Colon resect right ascending
margins clear. No chemo req
2017
Distended abd, pain in intestines.
CT scan shows seeding
Ascites causing the distention.
Lap diag - cancer on the omentum
CEA 217
CEA 219
PET cancer on the omentum, susp activ right abdomen
FOLFOX started 6/17
CEA 202
Not genetic
8/29/17 CT scan showed excellent melting of the tumor. Chemo is working!
Ascites is gone
CEA: 9/30/17 -109; 10/12/17 - 99.1; 11/4/17 - 90.7

NHMike
Posts: 553
Joined: Fri Jul 21, 2017 3:43 am

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby NHMike » Mon Oct 30, 2017 4:53 pm

back
06/23/17: ER rectal bleeding; Colonoscopy+Biopsy
07/13/17: Stage 3B rectal cancer. T3, N1b, M0. 5.2 x 4.5 x 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6 mm, 5 x 5 mm.
Xeloda 3,400 mg/day + radiation 07/31 - 09/08.
CEA 2.7; halfway through treatment: 1.9; after treatment: 1.8.
MSS, KRAS G12D
10/06/17: 2.7 x 2.2 x 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 mm (-75%), 5 x 3 mm (-40%). 5.1 CM from AV.
Surgery: 10/30/17 LAR, Temp Ileostomy

Robino1
Posts: 180
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby Robino1 » Mon Oct 30, 2017 5:39 pm

Welcome back. :)

I take it that it went well...

Start walking when you are able to do so. Hope you are feeling ok...
At 54 2014 1st colonoscopy colon cancer detected.
Colon resect right ascending
margins clear. No chemo req
2017
Distended abd, pain in intestines.
CT scan shows seeding
Ascites causing the distention.
Lap diag - cancer on the omentum
CEA 217
CEA 219
PET cancer on the omentum, susp activ right abdomen
FOLFOX started 6/17
CEA 202
Not genetic
8/29/17 CT scan showed excellent melting of the tumor. Chemo is working!
Ascites is gone
CEA: 9/30/17 -109; 10/12/17 - 99.1; 11/4/17 - 90.7

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Shana
Posts: 135
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby Shana » Mon Oct 30, 2017 5:50 pm

Hope you're doing okay. Post-op is never easy, wishing you well! :)
DX - 12/16
MSS - KRAS wild
Stage IV colon cancer with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17 - 2 wks on, 1 wk off to lessen side effects
CT-Scan 9/1/17. Shrinkage of liver mets (4 measurable) and no bowel blockage (surgery on 6/17 for blockage)
Removal and resection not on the table at this time as long as liver mets remain.
BB- aka colostomy is new high maintenance friend... she was a life saver
Living the new normal day by day :)

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susie0915
Posts: 441
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby susie0915 » Mon Oct 30, 2017 7:28 pm

Hope you're resting well. I'm sure you're tired.
58 yr old mother of 3 Dx @ 55
5/15 DX T3N0MO/ 2A
6/15 5 wks of chemo/rad
7/15 sigmoidoscopy/scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. 3 1/2 weeks in hospital,early ileo rev since
surgery to repair blockage. c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod onc thinks scar tissue
monitored for autoimmune disorder/interstitial lung disease
7/17 no change lung nodule
10/17 Clear CT

NHMike
Posts: 553
Joined: Fri Jul 21, 2017 3:43 am

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby NHMike » Tue Oct 31, 2017 3:50 pm

Possibility of stage 3 to stage 2 depending on path report.
I’ve learned not to get my hopes up though. I’m doing more so more pain and trying Tylenol. The nutrition stuff is trial and error. I want to write but don’t feel like the laptop because of the weight.
06/23/17: ER rectal bleeding; Colonoscopy+Biopsy
07/13/17: Stage 3B rectal cancer. T3, N1b, M0. 5.2 x 4.5 x 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6 mm, 5 x 5 mm.
Xeloda 3,400 mg/day + radiation 07/31 - 09/08.
CEA 2.7; halfway through treatment: 1.9; after treatment: 1.8.
MSS, KRAS G12D
10/06/17: 2.7 x 2.2 x 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 mm (-75%), 5 x 3 mm (-40%). 5.1 CM from AV.
Surgery: 10/30/17 LAR, Temp Ileostomy

User avatar
susie0915
Posts: 441
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby susie0915 » Tue Oct 31, 2017 4:54 pm

Good to hear you're doing pretty well. Possibility of downstage is a good thing too. Rest and keep us updated when you feel up to it.
58 yr old mother of 3 Dx @ 55
5/15 DX T3N0MO/ 2A
6/15 5 wks of chemo/rad
7/15 sigmoidoscopy/scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. 3 1/2 weeks in hospital,early ileo rev since
surgery to repair blockage. c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod onc thinks scar tissue
monitored for autoimmune disorder/interstitial lung disease
7/17 no change lung nodule
10/17 Clear CT

rockhound
Posts: 34
Joined: Fri Jul 14, 2017 5:00 pm

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby rockhound » Tue Oct 31, 2017 9:19 pm

Robino1 wrote:Welcome back. :)

I take it that it went well...

Start walking when you are able to do so. Hope you are feeling ok...


Totally agree on the walking- I did not do it enough after my first surgery (it was tough!) and the recovery took longer than it probably should have.. made sure I was doing laps and more laps after my reversal! That said, listen to your body though and take it easy though if needed - same goes with painkillers, etc. I used all the painkillers that were available. Do what you need to do to feel allright.
Last edited by rockhound on Wed Nov 01, 2017 10:22 am, edited 1 time in total.
42 yr old male
Diagnosed December 2016, age 41
Stage 1/IIA rectal cancer - T2/3N0M0 via MRI (MRI indicates stage 1; onc/surgeon = stage 2a)
Lynch syndrome, MSH6 mutation, MSI-H
2 to 3/2017 Xeloda + Radiation
5/10/17 - Robotic LAR with temp. loop illeostomy, 0/20 lymph nodes
6 to 7/2017 - Six cycles Folfox @ full strength
9/20/17 - Ileostomy takedown
10/17 - Clear CT

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O Stoma Mia
Posts: 871
Joined: Sat Jun 22, 2013 6:29 am

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby O Stoma Mia » Wed Nov 01, 2017 5:25 am

NHMike wrote:...Please feel free to ask me questions and offer advice as I'm sure that I still have a lot to learn and I'd rather learn stuff these days from others instead of learning the hard way.

I hope you are feeling better now and that you will be discharged from the hospital soon.

Meanwhile, in the 3 or 4 days that you have left in the hospital I would suggest that you ask questions of your surgeon as she comes by each day to check up on you. Try to find out the details of the surgery, as much as you can, while the surgery is still fresh in her mind. Next month or a year from now she may have forgotten the details and there may not be enough details recorded in your file about all of the things that happened during your surgery,

Basically, what you want to know is whether the surgery went according to plan or whether she had to revert to a "Plan B" somewhere along the way. For example, did the ureter stent procedure go as planned? Were there any problems with 'collateral damage' to any other structures such as the bladder wall,or the nerve sheaths serving the uro-genital area? What about the possible intrusion of the tumor into the muscle that she mentioned earlier? How long will you need to retain the temporary ileostomy? Did she have enough good tissue left in the rectal stump to make a good anastomosis? Was the junction made with staples, and if so, were there any problems with getting the stapler to work with radiation damage evident in the remnant tissue? Do you have any hemorrhoids remaining that will need later attention? How long did the surgery take? Did the surgery require blood transfusions? If so, how many units were needed? etc.

In my case, I asked lots and lots of questions and I got lots of answers that were not recorded anywhere else in my file. Basically, if you don't ask questions now you may never get the answers later on. Good luck, and hope to see you back on-line soon.
Useful Links:

How to Create a Signature
https://coloncancersupport.colonclub.co ... 97#p421597

How to Find a Board-Certified Surgeon
viewtopic.php?f=1&t=52349&p=410280#p410280

How to interpret a Pathology Report
viewtopic.php?f=1&t=51436&p=399172#p399172

Understanding TNM Staging
http://www.cancer.net/cancer-types/colo ... cer/stages

NHMike
Posts: 553
Joined: Fri Jul 21, 2017 3:43 am

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby NHMike » Wed Nov 01, 2017 6:53 am

Overdid it yesterday. I need to force myself to rest more. Pain on the left side and tried Tylenol and may try something stronger.. ate 400 calories yesterday even though I can eat what I want. Time is a challenge for eating. They took out the catheter and wound seals. Sorry for not posting more. I will have to give myself shots for 25 days after leaving. I’m not great with needles and my wife has offered to do the sticks. This is to prevent blood clots.
06/23/17: ER rectal bleeding; Colonoscopy+Biopsy
07/13/17: Stage 3B rectal cancer. T3, N1b, M0. 5.2 x 4.5 x 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6 mm, 5 x 5 mm.
Xeloda 3,400 mg/day + radiation 07/31 - 09/08.
CEA 2.7; halfway through treatment: 1.9; after treatment: 1.8.
MSS, KRAS G12D
10/06/17: 2.7 x 2.2 x 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 mm (-75%), 5 x 3 mm (-40%). 5.1 CM from AV.
Surgery: 10/30/17 LAR, Temp Ileostomy

User avatar
susie0915
Posts: 441
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby susie0915 » Wed Nov 01, 2017 7:11 am

Walking is good, but you do not want to overdo it. I never had to do injections, but I remember may daughter had ankle surgery right before we had to drive her down to North Carolina for school. The doctor gave us injections to give her to avoid blood clots since she would be sitting in the car for so long. I think we put them in her abdomen. I think it is easier to have someone do it rather than do yourself. Take care, hope you are recovering well. Eating can be an issue I remember. It's all so overwhelming at first, but you will get into a routine once you're home.
58 yr old mother of 3 Dx @ 55
5/15 DX T3N0MO/ 2A
6/15 5 wks of chemo/rad
7/15 sigmoidoscopy/scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. 3 1/2 weeks in hospital,early ileo rev since
surgery to repair blockage. c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod onc thinks scar tissue
monitored for autoimmune disorder/interstitial lung disease
7/17 no change lung nodule
10/17 Clear CT


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