ab123 wrote:Hi Mike,
I don't check the board here much anymore - almost 5 years out from 3C rectal - and NED ever since. I was also treated at BWH and DFCI - and I found the team excellent. I did what sounds like the exact same chemorad schedule as you at BWH (down on the LL2 with the Varian Trubeam - if they still have those machines). The surgical team is extremely good and experienced at this surgery - I had a great result with "sphinter sparing" with a very low tumor. Today I have near normal function (just a little more frequent is all).
Good luck and you're in very good hands!
Thanks for the vote of confidence.
The surgeon's office called back and wants to reschedule the MRI for four weeks after the radiation so there was a misunderstanding back two months ago. I will call them back tomorrow to reschedule the MRI. She wants an appointment a few days after the MRI to discuss the surgery too.
I met with the radiologist today and the nurse offered me stuff for the pain but I declined. It hurts a lot but there's a fair amount of distance to the point where I can't take it any further. We talked about nutrition as well and she suggested that I contact a Dr. Fuschs at DFCI - he does labs and clinical and is an expert at the nutrition stuff. She also suggested that I contact the person that my sister recommended. She has a lot of GI cancer in her family.
I hit tennis balls for 35 minutes and was worn out from that. I have video and will try to edit and post it. So basically cutting down how much I eat cuts down the number of times I need to go to the bathroom and decreases the amount of time that I'm in pain so it's a management technique. I just need to ensure that I'm getting sufficient nutrition. The knowledge that I have four weeks to myself might be somewhat liberating. It might be a time to look into the nutritional stuff and certainly a time to build back my strength and stamina in the gym. That is assuming the GI tract cooperates.
I am planning on working in the office tomorrow, at least for the morning. It would be nice to get back to a bit of normalcy. I plan to go into the office regularly starting next week.
Thanks all for the well-wishes.