ocstacy wrote:I'm sorry to hear but it's totally normal to feel the way you are. Did your pathology report say low grade adenocarcinoma ? How many lymphs involved?
Ya the waiting part is so hard. My mom had to wait until July to get chemo radiation done after he diagnosis in early May! I thought for sure it was going to spread... but her last MRI scan was 06/05, showed no spread to near organs. Her dr. prescribed her ATIVAN for sleep and anxiety. She takes 1/2 at night and it works for her. She is also very nervous about this whole thing. She is doing fairly well though for her age. Best of luck!! Take chemo meds with gloves.. so I read.. She does. And take it 25 min after breakfast and dinner.. exactly.. that is the key to not getting nauesa. It may be 20 min for you ,but time it and make sure it's consistant or tweak it
There are two regional lymph nodes involved. I went by the letters and numbers and it seems like a Stage 3B to me.
I was able to do a BM this morning. I think that it was everything for the last four days. I then did some running and after the running, a lot of water came out (likely from the Miralax last night). So my mental state has improved as I don't have to worry about potential blockages for a few days.
Interesting about your gloves comments. The nurse told me that nobody else should handle the pills. I asked about using gloves and she said that they weren't necessary. But she said that they should not be split, cut or pressed. I think that the pills need to make it into your stomach whole and then release the contents. So I'll examine the pills carefully.
I have never taken anything to help me sleep before and I'd like to avoid doing so in the future. I'm going to run a bit more today and do some weights and hopefully that will tire me out enough so that I can sleep well.
For those getting Xeloda, I found out that they generally mail these to you. None of the staff that I talked to ever heard of someone picking these up at the local pharmacy. The pills are apparently quite expensive ($1,000 - $4,000) and they do them mail order to either save money or prevent fraud (not sure how that works). At any rate, I will need to stay home to wait for them as the nurse said that I wouldn't want them waiting outside on a hot day. I called the nurse to see if I could get a tracking number but she didn't get back to me.
Mike in NH: Rectal Bleeding biopsy June 23, Diagnosed Stage 3B rectal cancer late July 2017 via MRI.
T3, N1b, M0.
Started Xeloda + Radiation 07/31/17, to continue until 09/07/17.
CEA before treatment: 2.7. CEA after 14 treatments 1.9.