The surgeon told me that a colostomy is always an option and offered a recent patient to talk to but I told her that I can chat with lots of people that have them, that are considering them and that don't have them. I kind of get the feeling that the majority of cancer patients don't use forums for information and support.
MeAndMine wrote:The surgeon told me that a colostomy is always an option and offered a recent patient to talk to but I told her that I can chat with lots of people that have them, that are considering them and that don't have them. I kind of get the feeling that the majority of cancer patients don't use forums for information and support.
I haven't heard of banatrol before but it sounds promising! I hope it works out well for you.
I'm glad that we have the forum to come to so that we have people who can tell us about a colostomy and other things to try. I don't know that I will have a choice about the colostomy with the tumor as low as it is for me, but I know lately I've thought about how nice it would be if I didn't have to ever use my butt again. I've had such a rough go of it with the last treatment and think it must be nice not to have to worry about where a bathroom is and how quickly I can get to it.
It sounds good to use both banatrol and nopalina together to see how it works for you. You could always drop back to one or the other after a bit if you feel like it's a better option. Crossing my fingers that this is the answer for you!
My surgeon told me that it was her decision during the surgery whether it would be a permanent colostomy or not. So I had to be prepared for that. I knew about the ileostomy (as that's what they do if you don't have a permanent colostomy), but I didn't realize the impact that it would have on my life. But I got used to it. The surgeon did say that people live active lives with a colostomy but I don't think that she knows about the kinds of things that I want to do. Most people don't understand the difference in levels of what athletes can do compared to the general population. Most of her patients are older, have comorbidities and don't spend a lot of time in the gym. Maybe I'm trying to be too active for my age.
MeAndMine wrote:My surgeon told me that it was her decision during the surgery whether it would be a permanent colostomy or not. So I had to be prepared for that. I knew about the ileostomy (as that's what they do if you don't have a permanent colostomy), but I didn't realize the impact that it would have on my life. But I got used to it. The surgeon did say that people live active lives with a colostomy but I don't think that she knows about the kinds of things that I want to do. Most people don't understand the difference in levels of what athletes can do compared to the general population. Most of her patients are older, have comorbidities and don't spend a lot of time in the gym. Maybe I'm trying to be too active for my age.
You're not being too active for your age. You can never be too active! You keep doing what you are doing. You are a highly motivating individual and you inspire me to do better. I had all of these plans for getting in shape before surgery, then stayed in bed for almost a month. I think it's "use it or lose it". As long as you are able to do things, do them and keep it up!
A fitness tracker is helpful during these times as you can see what you did the past day, week, month or year. And these things often nag you to do something during the day. I can go back and look at what I did a couple of years ago before and after surgery and it reminds me to do better throughout the day.
Jannine wrote:Thanks for the mention of Banatrol. At this point anything that claims to help with c diff gets my attention quick. The stuff I am taking now does seem to help, but it is expensive and it needs to be kept cool to retain its efficacy. Taking it with me on a trip would be a pain. (Still haven't had a reoccurrence of c diff, fortunately; I'm just eager to avoid it since my next step would probably be a fecal transplant.)
I have a Forerunner 645 watch that I love. The GPS is quick to find me, and running twice a week (for about 30 minutes per run) I only have to charge it once a week or so. Plus it charges in about 10 minutes.
I haven't compared it to anything else in accuracy of steps/stairs, and I don't tend to pay a lot of attention to my day-to-day numbers, so I can't say anything definitive about that. I tend to just read what DC Rainmaker has to say about running/activity watches and go from there.
Claudine wrote:It looks delicious though! Recipe?
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