NHMike wrote:I received a big box in the shipping room along with notification. I was expecting the Xeloda pills and Illeostomy supplies. I assumed that they were Illeostomy supplies from the size of the box as the pills usually come in an envelope. I just checked the tracking information and BriovaRX said that it was delivered today. So I cut open the box and it was the pills but they were packed in a cold pack. It's two big pieces of Styrofoam and the pills were sitting on top of three cold packs. And they were cold!
There was a notice indicating that they ship them this way at certain times of the year. So I guess that I may be getting more of them in this form depending on where they are coming from. I think that I can use the styrofoam as a Yoga block.
Aqx99 wrote:NHMike wrote:I received a big box in the shipping room along with notification. I was expecting the Xeloda pills and Illeostomy supplies. I assumed that they were Illeostomy supplies from the size of the box as the pills usually come in an envelope. I just checked the tracking information and BriovaRX said that it was delivered today. So I cut open the box and it was the pills but they were packed in a cold pack. It's two big pieces of Styrofoam and the pills were sitting on top of three cold packs. And they were cold!
There was a notice indicating that they ship them this way at certain times of the year. So I guess that I may be getting more of them in this form depending on where they are coming from. I think that I can use the styrofoam as a Yoga block.
I got several deliveries of my pills in a styrofoam cooler with an ice pack. I kept the ice packs for use in lunch bags.
Caat55 wrote:I got oxi symptoms bad and more quickly this time. I can type with left hand, hunt and peck with right hand fisted and only using index finger. Thsi works briefly then I have to fist left hand too.
Live and learn, change bag on morning of cause hands don't work to do it on day after. I changed bag but a lot more challenging. Hope no leaks.
This is crazy.
Susan
Caat55 wrote:After I got the sticker shock on the supplies and now that I am better with it, once a week works great.
I am using my assistive technology skills more for myself now than I ever expected. My husband is picking up the slight around house.
I think I am going to add something to my signature in emails and texts apologizing for miss spelled words and just get over it. Takes twice, maybe three times as long to get anything done. Today was going to be a write at home day, scratch.
S
NHMike wrote:Caat55 wrote:After I got the sticker shock on the supplies and now that I am better with it, once a week works great.
I am using my assistive technology skills more for myself now than I ever expected. My husband is picking up the slight around house.
I think I am going to add something to my signature in emails and texts apologizing for miss spelled words and just get over it. Takes twice, maybe three times as long to get anything done. Today was going to be a write at home day, scratch.
S
My supplies are covered by insurance except for some things that I buy that insurance doesn't cover because it makes my life a lot easier even if I have to pay out of pocket. The main item is Cavilon Spray which is $10 for a very small bottle. It's so much easier to use than the wipes, at least for me. But my pouch/wafers are something like $300 for 20 pouch/wafers and those are covered. I've chatted with McKesson and Medicare covers 10 wafers/pouches per month which means two/week. I am doing one per week now but that's only because the Cavilon Spray and Powder work so well for me - before I learned about them, I needed to change them more often.
I don't know what your insurance coverage is but you might ask if you already haven't done so.
NHMike wrote:I bought Nitrile gloves in 5 mil and 8 mil a while ago to deal with cracked skin problems with dry, winter weather and I find that they help when I have cold sensitivity in my fingers. The advantage of Nitrile gloves are that you can use touch devices with them. The thicker gloves are stronger but they give you less tactile feedback. I order them 100 at a time for Amazon and find that other family members use them for various reasons. They are good to have around - especially if you have issues with water on your hands (as in doing dishes).
mobrouser wrote:Before going to bed apply a good amount of moisturising lotion to your hands, then put on gloves and wear to bed for the night. This helps to heal the splits in the skin.
Learned this at work long before my diagnosis.
I use vinyl gloves, cheaper and easily available at drugstore or hardware store. I wear them over woollen gloves when dealing with cold water - vegetable washing for example.
mob
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