Rectal cancer (Stage 3A) diagnosed late June 2017

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NHMike
Posts: 2078
Joined: Fri Jul 21, 2017 3:43 am

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby NHMike » Mon Aug 12, 2019 3:49 pm

Sad news today. A coworker was diagnosed with Lung Cancer a few months before I was diagnosed and we were going through things together. He had drugs to shrink and control the tumor but it wouldn't eradicate it and surgery wasn't an option. So he was taking the drugs to control it until, hopefully, science could find a way to either kill or remove the tumor. He had some additional symptoms this spring and it looks like it has mutated and metastasized to his spine. He's undergoing treatment for it. I heard this second-hand for the manager who has replaced him and didn't have further details but this sort of thing isn't good.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

Jannine
Posts: 160
Joined: Wed Jun 20, 2018 7:46 am
Location: Maryland, USA

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby Jannine » Mon Aug 12, 2019 7:53 pm

Ugh I am so sorry to hear about your coworker. That sucks.

I'm glad you were able to get some tennis play in. Sorry you're still having to learn about your options for dealing with all the clustering problems. I guess it's good that there are options, but getting informed can take a while when the products aren't readily available.

I really hope things improve for you. The information you're sharing here is invaluable to others who are be in the same boat, I am sure. I feel for you.
DX: sigmoid colon cancer 5/2018. 48 F
laparoscopic sigmoid resection (24 cm removed); no stoma.
7.5cm adenocarcinoma -- mod. diff.
1 noncontiguous tumor deposit removed; 0/31 lymph nodes
T3 pN1c M0
5/18 before surgery, CEA 11.2
6/18 began FOLFOX
7/18: CEA 1.9; added neulasta post infusion
9/18: CEA 2.8
10/18: 25% chemo reduction
11/18: CEA 1.8
7/19 CT scan clear

NHMike
Posts: 2078
Joined: Fri Jul 21, 2017 3:43 am

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby NHMike » Tue Aug 13, 2019 9:45 am

Oncologist visit - bloodwork looks great and he told me that I look like I'm 45. CT in 6 months which is a one-month schedule. In 2020, we go to 2 visits a year instead of 4.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

User avatar
juliej
Posts: 3015
Joined: Thu Aug 05, 2010 12:59 pm

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby juliej » Wed Aug 14, 2019 6:45 pm

NHMike wrote:In 2020, we go to 2 visits a year instead of 4.

The switch from 4 visits a year to twice a year is the day you start feeling like cancer might be in your rear-view mirror. It's funny how the difference between 3 months and 6 months feels so long, like you can finally breathe. Bet you're looking forward to it!

Juliej
Stage IV, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/11
LAR, liver resec, HAI pump 11/11
Double lung surgery + ileo reversal 2/12
Adjuvant Xeloda 3-9/12
VATS rt. lung 12/21/12 - benign granuloma!
NED 3/17/12 to 6/13/2019, CEA<1

NHMike
Posts: 2078
Joined: Fri Jul 21, 2017 3:43 am

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby NHMike » Wed Aug 14, 2019 7:36 pm

juliej wrote:
NHMike wrote:In 2020, we go to 2 visits a year instead of 4.

The switch from 4 visits a year to twice a year is the day you start feeling like cancer might be in your rear-view mirror. It's funny how the difference between 3 months and 6 months feels so long, like you can finally breathe. Bet you're looking forward to it!

Juliej


I don't think about cancer personally that much because I'm so busy.

I read the visit report.

One of the things mentioned was that my cancer was low-grade. I believe that that's a good thing but I should look it up. He also wrote my letters/numbers. Nobody actually had done this before in a place where I saw it. I assumed III B from what I read and III B is confirmed.

The report also said that I had acellular mucen pools as part of pathology. I looked this up and they are something that shows up and the concern is that they are cancerous but the consensus seems to indicate that they are a result of radiation treatment. I found this in a small study which had this conclusion. The study did recommend further study.

My colonoscopy interval is three years now. I will ask about this the next visit as I thought that it should be annual for several years.

The doctor also estimated my ECOG score as zero. I hadn't heard of it so I looked it up. It's the Eastern Cooperative Oncology Group Performance Status.

0: Fully active, able to carry on all pre-disease performance without restriction
1: Restricted in physically strenuous activity but ambulatory and able to carry out work of a light or sedentary nature, e.g., light house work, office work
2: Ambulatory and capable of all selfcare but unable to carry out any work activities; up and about more than 50% of waking hours
3: Capable of only limited selfcare; confined to bed or chair more than 50% of waking hours
4: Completely disabled; cannot carry on any selfcare; totally confined to bed or chair
5: Dead

I looked up his bio out of curiousity and he's also a professor at Harvard Medical School like my surgeon. The visit summary was quite long and detailed. He spends a full day seeing patients and writes up the visit notes in the evening - I had him as the last appointment of the day one time and we chatted - he works a lot of hours.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

NHMike
Posts: 2078
Joined: Fri Jul 21, 2017 3:43 am

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Postby NHMike » Thu Aug 15, 2019 3:08 pm

I think that I have a private message to read but my mailbox is full but I can't figure out how to delete messages.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT


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