NHMike wrote:Back home now.
The biggest side-effect during the infusion was having to pee twice - likely due to the D5W and the Oxaliplating liquid. I lost a little feeling in my fingertips and it takes a bit more effort to type and I have had some slight feelings of arthritis in my palms. I Went outside and felt the cold sensitivity due to the wind (it's about 40 degrees outside). I was covered except for my face so that's where it hit but I've been used to really bitter temperatures in the past due to the winters here so it wasn't too bad.
I drove home as my son was on a conference call and that was no problem. I got home and picked up a cold glass of water and the initial reaction was not quite pain but a lot of discomfort. I also picked up other cold objects and the cold sensitivity decreased as I held other cold things. My home office is probably 45 degrees right now so everything around me is cold. I wasn't brave enough to drink the cold water.
My wife brought me a bowl of chicken ball rice porridge and I had an ache - I guess it's that first bite thing that folks here talk about. It wasn't a sharp pain but something noticeable. I can taste the flavors in the porridge. I don't feel any tiredness though the nurse said that symptoms can kick in at any time. So, I'd say that the symptoms are as advertised but it sounds scary when others talk about it.
NHMike wrote:Just got the throat-closing feeling. This is where your throat feels like it is closing but it actually isn't. I can breathe just fine. I went to take a nap and the cold sensitivity is back more strongly. I suspect that this is due to sleeping under warm blankets.
veckon wrote:NHMike wrote:Just got the throat-closing feeling. This is where your throat feels like it is closing but it actually isn't. I can breathe just fine. I went to take a nap and the cold sensitivity is back more strongly. I suspect that this is due to sleeping under warm blankets.
I also had this, but not so early on. The "solution" (it's not deterministic so don't expect a miracle here) is to drink plenty of (room temperature) water and reduce stress as much as possible. The autonomic functions of our body get messed up by both our psychology (stress=bad) and the deleterious effects of the chemotherapy itself.
Basil wrote:I kept warm drinks like water, juice and lemonade in the pantry. It was my stash and the kids had to keep out of it. By round two the symptoms may start getting to be old hat. They may increase a bit by degree as you go through infusions but it sounds like you've hit on all of our favorite party favors from FOLFOX! So, you got this. Just keep on going.
heiders33 wrote:Yes they get much more manageable after the first round. For me they’ve gotten progressively worse but it’s better knowing what to expect. I don’t go into the office for five days; I work from home. I keep a water bottle that keeps water warm and drink from a straw because my lips react.
NHMike wrote:
veckon wrote:NHMike wrote:
Looking great Mike!
I am a big fan of infusion selfies myself. It freaks Facebook out with my positive and joking attitude about it, which makes it all totally worth it.
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