On the cover of Newsweek !!!!!

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CRguy
Posts: 10472
Joined: Sun Feb 10, 2008 6:00 pm

On the cover of Newsweek !!!!!

Postby CRguy » Thu Jul 20, 2017 8:44 pm

Just got notice from our very own Maia, that our resident rock star Tom is one of the featured folks on the cover of Newsweek
...AND a very well deserved accolade and nod to Maia !!!!! in the FightCRC article.

WELL DONE FOLKS

your clinical trail finder is EPIC !
and you folks are part of the reason things are moving ahead in the world of CRC !

current links in no particular order :
http://www.newsweek.com/2017/07/28/canc ... 38496.html

https://fightcolorectalcancer.org/blog/ ... -released/

https://www.statnews.com/2017/05/17/can ... -curation/

WORD !!!!!!!!!!!!

MEGA CHEERS
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Lee
Posts: 6207
Joined: Sun Apr 16, 2006 4:09 pm

Re: On the cover of Newsweek !!!!!

Postby Lee » Thu Jul 20, 2017 9:51 pm

Thank you Maia, butt Tom, AWESOME :D . Like button, like button! JOB well done. Still reading all of it. Butt with pride told DH of some of the awesome people on this forum. You and Maia.

Thank you Tom (and Maia) FOR ALL that you both do for this forum.

And total congratulation making cover Newsweek magazine.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

menreeq
Posts: 70
Joined: Fri Jun 30, 2017 10:26 am

Re: On the cover of Newsweek !!!!!

Postby menreeq » Thu Jul 20, 2017 10:22 pm

Love this! Woot woot!
Stage IIA rectosigmoid CC (T3N0M0)
Dx 6/5/17 @age 41ls
Workup: c-scope, EUS, rectal MRI, CT C/A/P
AdenoCA 5.5cm, WHO Grade 2, 0/22 LN, no distant mets
CEA 1.9 (6/5/17), 0.8 (2/28/18), 1.0 (9/17/18), 1.1 (4/16/19), 1.0 (9/24/19), 1.7 (7/8/20)
No lymphovasc/perineural invasion, clear margins
MSI intact, OncotypeDx RS 7
Lap sig colectomy 6/23/17, no ileo/colostomy
Genetics neg for mutations, 4 VUS
Xeloda monotherapy 8/13/17-1/22/18
PET/CT 3/21/18 NED
CT C/A/P 9/17/18 NED, 3/8/19 NED, 9/19/19 NED, 5/13/20 NED

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horizon
Posts: 1668
Joined: Tue Apr 12, 2011 10:10 pm

Re: On the cover of Newsweek !!!!!

Postby horizon » Thu Jul 20, 2017 11:30 pm

Wow, that is so cool!
I'm just a dude who still can't believe he had a resection and went through chemo (currently 12 years NED). Is this real life?

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Jacques
Posts: 678
Joined: Sun Dec 28, 2014 10:38 am
Location: Occitanie

Re: On the cover of Newsweek !!!!!

Postby Jacques » Fri Jul 21, 2017 12:55 am

Awesome! This is so impressive! Many thanks to Tom and Maia.

On May 16, 2017, Tom Marsilje wrote: Enter Maia
Maria Cecilia Antunez is simply known as “Maia” or “Cee Cee” in the CRC online communities. From her home in Argentina, Maia has been a patient advocate online for years, helping to spread clinical trial information to CRC patients. She sent me a text asking if I would be interested in having my curated list as an App instead of a spreadsheet file. Would I?? That would be awesome I told her! Maia went to work and within days she had a working app. It was simple, very grassroots, but fully functional. I was amazed. We decided, now as a patient advocacy team, that the App was too important of a resource to keep bottled-up in support groups – it needed to be available to the general public. We enlisted a fellow Stage IV patient friend of ours, Jana Downing, to design a simple web page to house the link to the App. Our website went live last January and patients loved it!
Reference
Last edited by Jacques on Fri Jul 21, 2017 1:41 am, edited 1 time in total.

peanut_8
Posts: 2340
Joined: Sun May 25, 2014 1:31 pm

Re: On the cover of Newsweek !!!!!

Postby peanut_8 » Fri Jul 21, 2017 12:56 am

BRAVO!!!
female, diagnosed Jan 14, RC stage 2a, age 56
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED

hawkowl
Posts: 132
Joined: Sun Dec 14, 2014 5:29 am
Location: MN/FL

Re: On the cover of Newsweek !!!!!

Postby hawkowl » Fri Jul 21, 2017 1:28 am

Congratulations to Tom!! That is amazing and wonderful
Dx 12/2014 T3N2MX (distant LPLN) low rectal
12/2014-4/2015: FOLFOX (8 cycles)
4/2015-6/2015: 28 cycles of chemoradiation with xeloda, SBRT
8/2015: Robotic APR with iliac node dissection; path showed ypT0,ypN0 (complete pathological response).
11/2015 scans clear, CEA 2.1
11/2015 parastomal hernia repair
3/2016 CEA 1.7, scans stable...
6/2020 5 years of normal CEA and stable scans
Now dealing with pyoderma gangrenosum.
Totally disabled due to oxaliplatin induced neuropathy and dysautonomia

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LPL
Posts: 651
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: On the cover of Newsweek !!!!!

Postby LPL » Fri Jul 21, 2017 3:47 am

Thank you so much Tom & Maia for what you both do.
You sure deserve being on the front page of Newsweek & in the article, Wonderful !! :D
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung NED again Oct-19 :)
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb & Oct lung mets


bitchslapped
Posts: 1538
Joined: Tue Sep 09, 2014 3:23 pm
Location: PNW/USA

Re: On the cover of Newsweek !!!!!

Postby bitchslapped » Fri Jul 21, 2017 1:28 pm

I'm STARSTRUCK now :!: :P Seriously impressive.

Loved reading the articles. KUDOS to Tom & Maia for your collaboration for the benefit of others. You two are first-rate.

We've got some sharp, caring, giving people on this forum.

Thanks to everyone...this diverse group who make up the fabric of this forum.

So glad I haven't been given the boot yet :mrgreen:

BS
DSS,35YO,unresect mCRC DX 7/'14,lvr,LN,peri,rib
FOLFOX+Avstn 4 Rnds d/c 10/'14
Stent 9/'14
FOLFIRI+Avstn 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp, diverticulitis
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07, lvr, billiary tree fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia

mpbser
Posts: 953
Joined: Wed Apr 19, 2017 11:52 am

Re: On the cover of Newsweek !!!!!

Postby mpbser » Sat Jul 22, 2017 5:46 am

Very good!
Wife 4/17 Dx age 45
5/17 LAR
Adenocarcinoma
low grade
1st primary T3 N2b M1a
Stage IVA
8/17 Sub-total colectomy
2nd primary 5.5 cm T1 N0
9 of 96 nodes
CEA: < 2.9
MSS
Lynch no; KRAS wild
Immunohistochemsistry Normal
Fall 2017 FOLFOX shrank the 1 met in liver
1/18 Liver left hepatectomy seg 4
5/18 CT clear
12/18 MRI 1 liver met
3/7/19 Resection & HAI
4/1/19 Folfiri & FUDR
5/13/19 HAI pump catheter dislodge, nearly bled to death
6-7 '19 5FU 4 cycles
NED

Lee
Posts: 6207
Joined: Sun Apr 16, 2006 4:09 pm

Re: On the cover of Newsweek !!!!!

Postby Lee » Sat Jul 22, 2017 9:53 pm

bitchslapped wrote:I'm STARSTRUCK now :!: :P Seriously impressive.

Loved reading the articles. KUDOS to Tom & Maia for your collaboration for the benefit of others. You two are first-rate.

We've got some sharp, caring, giving people on this forum.

Thanks to everyone...this diverse group who make up the fabric of this forum.

BS


Well said, BS, well said,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

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cptmac
Posts: 1215
Joined: Mon Nov 19, 2007 3:15 pm
Facebook Username: Dorothy McGrath

Re: On the cover of Newsweek !!!!!

Postby cptmac » Sat Jul 22, 2017 10:52 pm

Thank you guys, You ROCK!!! I can't wait to get my copy and I suggest as many others do so too.... If it's one of the highest sellers, it will tell Newsweek and soooo many others that this is a hot topic!!! Way to go!!!!
cptmac
As long as you're alive, there is hope.
dx 7/04 stage IV
colon resection 8/04
liver resection 9/04 with HAI pump installed
Stage II trial w irinotecan as systemic and FUDR for direct chemo to liver via HAI pump
Cured since 9/04

DarknessEmbraced
Posts: 3815
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: On the cover of Newsweek !!!!!

Postby DarknessEmbraced » Sun Jul 23, 2017 1:07 pm

Way to go Tom! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

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kirac
Posts: 258
Joined: Sun Jun 09, 2013 10:34 pm

Re: On the cover of Newsweek !!!!!

Postby kirac » Sun Jul 23, 2017 7:45 pm

must go buy!!!
Husband (Age 36) 1/13 Dx Stage 3B rectal cancer
3/13 Chemoradiation
6/13 Tumor removed, Temp ileo, 1/15 nodes
7/13 Chemo = Oxaliplatin, Xeloda
1/14 Reversal
7/14 NED, CEA 1.8
12/14 CLEAR CT scan! NED

http://kickingasscancer.com/


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