pdp497 wrote:I was able to schedule an appointment at MD Anderson for Augustn3rdnsonInwill now definitely wait to start treatment until after I see them. Currently I am awaiting the results of the genetic testing on the tumor. The waiting is hard but it feels good to have a date to look forward to. Anyone that's been to MD Anderson, they told us to be ready to spend 5 days in Houston during the first visit, had this been your experience? Thanks for any insight you can offer.
pdp497 wrote:Currently in Houston at MD Anderson. They are starting me on Folfox on Wednesday. Just took new scans yesterday and waiting to head back about the results. Anyone with a 5-FU pump know if you are able to detach yourself or do you have to go back to the hospital after the 46 hours?
pdp497 wrote:Currently in Houston at MD Anderson. They are starting me on Folfox on Wednesday. Just took new scans yesterday and waiting to head back about the results. Anyone with a 5-FU pump know if you are able to detach yourself or do you have to go back to the hospital after the 46 hours?
kandj wrote:My husband went to MD Anderson for a second opinion. It was not a good experience. They basically said he was inoperable and would not change to be so. We got a third opinion at MSKCC in NYC and they took him on. He was NED for a year after his surgery, but unfortunately has had a recurrence. But, they are not giving up on him and that is more than I can say for MDA. Sucks too as we live 30 mins outside of Houston.
All that said, if MDA says no or tells you chemo for life, try to get in with Dr. Kemeny at Memorial Sloan Kettering. She will fight for you without abandon.
kandj wrote:pdp497 wrote:I was able to schedule an appointment at MD Anderson for Augustn3rdnsonInwill now definitely wait to start treatment until after I see them. Currently I am awaiting the results of the genetic testing on the tumor. The waiting is hard but it feels good to have a date to look forward to. Anyone that's been to MD Anderson, they told us to be ready to spend 5 days in Houston during the first visit, had this been your experience? Thanks for any insight you can offer.
My husband went to MD Anderson for a second opinion. It was not a good experience. They basically said he was inoperable and would not change to be so. We got a third opinion at MSKCC in NYC and they took him on. He was NED for a year after his surgery, but unfortunately has had a recurrence. But, they are not giving up on him and that is more than I can say for MDA. Sucks too as we live 30 mins outside of Houston.
All that said, if MDA says no or tells you chemo for life, try to get in with Dr. Kemeny at Memorial Sloan Kettering. She will fight for you without abandon.
pdp497 wrote:Well I got my second opinion, pretty much same as the first. Not really sure where to go from here it just feels like with surgery off the table there is no real hope of ever reaching remission. They think the liver tumors are too spread out as well as lymph nodes in multiple regions making the possibility of clearing everything unlikely.
kandj wrote:pdp497 wrote:Well I got my second opinion, pretty much same as the first. Not really sure where to go from here it just feels like with surgery off the table there is no real hope of ever reaching remission. They think the liver tumors are too spread out as well as lymph nodes in multiple regions making the possibility of clearing everything unlikely.
Did they do a PET or regular CT scan? What are they basing the lymph node involvement on? I know my husband was told there were some suspect aortic nodes but when they actually took them out the surgeon said they were squishy and he didn't think they were cancerous. Pathology confirmed they were benign.
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