You haven't added detail to your signature (yet?), so I don't know how similar we are.
At Dx I was assigned palliative, despite only a few (2) liver mets. Reason was their size - too big for resection. Attacking the colon tumor was the only thing feasible, then. I still have bad memories of the introductory talks with an overly empathetic palliative nurse who felt sssoooo sssoooorrryyy. Doesn't work work me. I need facts; will deal with the coping details myself. I need info to define expectations / my roles in it all; what I can/need to do myself; realizing that I need to rely on my docs as I simply don't have their knowledge. Luckily I (also then) had an open and honest onc who fully gave all info I needed. She promised fully bet on going for *aggressive* adjuvant chemo, despite these mets.
When liver was attacked 9 mos later, there were no living cancer cells left. Capox had given 100% result - on hindsight all the jazz about the liver resection surgery *might* not have been necessary after all (haha).
My take on it all is that we've just been somewhat unlucky to draw a bad straw; there are too many straws to get cancer. To kick the beast we need the opposite - good fortune; the problem is that these are not so plentyful so rare. To me, prospects percentages are not verdicts, just an indication of how much/little good luck is needed.
My advice: hope for luck and don't forget to live in the mean time. Make sure you celebrate every small win on the road ahead
Best wishes, Leon
Last edited by LeonW
on Wed Jul 19, 2017 8:31 am, edited 1 time in total.
Dec 2012 - Colon Cancer MM 65yrs, 2 unresectable liver mets, CEA 41.8
Jan 2013 - colectomy @ spleen 2/26 nodes (IVa T3N1bM1a) MSI-low
Feb-Aug - 1x Xelox-7x Xelox/Avastin, shrinkage from #3
Sept - 2 failed Portal Vein embolizations
Oct 2013 - R liver resect 28 hosp days (liver failure, delirium, emboli, encephalopathy) pCR- all cancer gone
2014/15 - recovery; benign polyp
Apr 2016 - new town, new life
clean CTs and low (1.3/1.4) CEAs: 4x2014, 6x2015-17
next June 2018 w scopy
5yr mark in sight