Picking a surgeon

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RobDontGiveUp
Posts: 23
Joined: Mon Jul 06, 2015 9:17 pm

Picking a surgeon

Postby RobDontGiveUp » Tue Jul 11, 2017 3:44 pm

I was diagnosed with stage IV cancer a little over two years ago and have avoided surgery until now. still an olymphian but my oncologist wants me to get colectomy after my tumor in the cecum returned.

The problem now is choosing a surgeon. He recommended I pick one of the top two doctors. Both resumes look good. one trained at Mayo Clinic and both are board certified in colorectal surgery. But when I tried to schedule an appointment, neither was available so they set me up for an appointment with another guy. resume not as good and he's not board certified in colorectal surgery, just board eligible. He is board certified in general surgery.

So now I'm a little hesitant. I don't know how routine getting half your colon removed is and if I should not worry about it or go to Northwestern in downtown Chicago. I know they have some top colorectal surgeons. I am a bigger guy so I'm worried about complications. I met with one of the Northwestern surgeons when I was first diagnosed and I felt pretty comfortable with him.

I'd love to hear your thoughts cuz I'm not sure what to do.
35 M dx colon cancer 6/15
CAA 19-9 <3
dx Stage IVA colon cancer 7/15 w/
mets to retroperitoneal lymph nodes, suspected neck and para aortic as well
started planned 12 rounds of FOLFOX Vectibix 7/15
partial remission with shrinkage of tumor and ln's. Switch to XelodaAvastin 12/15
complete remission NED 6/16 Still on XelodaAvastin
Cancer returns in ln's Start Folfiri Vectibix 10/16
Shrinkage in ln's Folfiri vectibix 2/17
Tumor returns to cecum but ln's remain stable Still an Olymphian 7/17
Surgery soon

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betsydoglover
Posts: 879
Joined: Mon Aug 14, 2006 2:31 pm
Facebook Username: Betsy Lindh Williams
Location: Maryland - outside DC

Re: Picking a surgeon

Postby betsydoglover » Tue Jul 11, 2017 7:29 pm

I can't give you a lot of info, but I think you really want a board certified cr surgeon. The "eligible" surgeon might be fine, but why is he only "eligible"?

When you say that neither of board certified surgeons are available, in what timeframe are they not available? You've waited 2 years, so if it takes a bit of time to get to one of those surgeons, it may be worth it. Also, check on other board certified colon surgeons in your area - perhaps your primary can recommend one, and there's always the internet (as a first filter).

Good luck,
Betsy
diag. Stage IV, 5/05, liver met
lap sigmoid colectomy, 6/05
6 cycles Xeloda/oxaliplatin/Avastin (NED after 2)
11/08 9x13mm right lower lobe lung nodule; removed via VATS 4/09
NED
6 cycles Xeloda + Avastin
Avastin only 10/09-5/11
Still NED 11/17

MissMolly
Posts: 422
Joined: Wed Jun 03, 2015 4:33 pm
Location: Portland, Ore

Re: Picking a surge

Postby MissMolly » Tue Jul 11, 2017 9:26 pm

Rob:
I would not discount the expertise of the surgeon who is "eligible" to be certified in colon-rectal surgery. This surgeon has completed all necessary residencies and fellowships in colon rectal surgery and is waiting to take the certification exam.

"Eligible" means that the General surgeon has successfully comoleted all advanced study and practicun requirements of colon-rectal surgery and is now eligible to sit for the certification examination. The surgeon has one final hurdle to being board certified in colon-rectal surgery: The speciality certification and licensing exam.

Personally, I like physicians that are "fresh" from residency programs. They tend to be wickedly smart and well-learned in the latest of medical advances. Newly minted specialist surgeons are eager to be great clinicians and tend to spend more time on building patient repore by listening and engaging as a health partner.

In making your decision, take time to listen to your intuition. Our inner voice or intuition often offers valuable wisdoms in decision making processes.
Karen
Devoted daughter to my father, diagnosed with stage 2 colon cancer Nov-2014.
Dear friend to Bella Piazza, former CC member.
I have a permanent ileostomy and offer advice on living with an ostomy.
I have been on Palliative Care for broad endocrine failure + Addison's disease + osteonecrosis of both hips/jaw + immunosuppression and recurrent infection x 4 years. I transitioned to Hospice Sept-2016, but it was not yet my time. I am back on Palliative Care and live a simple life due to frail health.

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ocstacy
Posts: 190
Joined: Mon Jun 19, 2017 11:29 pm
Facebook Username: stacy

Re: Picking a surgeon

Postby ocstacy » Wed Jul 12, 2017 2:38 am

I know they have some top colorectal surgeons.


I searched and searched and reviewed and talked to patients of the doctor's before I found the best colorectal surgeon. I even had to switch my mom's insurance just to see him. Even though, his office and hospital is about one hour from our home, it was worth drive. He mentioned to my mom that he could hand sew her a new rectum to avoid a colostomy. https://www.doximity.com/pub/sang-lee-md/9
Caregiver/daughter to dear mother age 77, dx 5/09/17 because of me!! :wink:
Rectal CA Stage 3 low grade adenocarcinoma- 6 cm
Neoadjuv. Chemo/Rad. start 7/10/17 ended 08/16/17
3D Lap. surgery @ Keck USC, Dr. Sang Lee 10/17/17 temp ileostomy
11/1 back @ hospital due 2 abscess/hernia - back home 11/06/17 antibiotics
NO LYMPHS INVOLVED! NEAR PATHOLOGICAL RESPONSE! YAY! :shock:
Chemo Xeloda post-surgery following reversal 2018
Love my mom, BUTT she is a horrible patient :roll:
Nam-myoho-renge-kyo :!:

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Maggie Nell
Posts: 653
Joined: Wed May 27, 2015 1:57 am
Location: Melbourne, Australia

Re: Picking a surgeon

Postby Maggie Nell » Wed Jul 12, 2017 5:27 am

RobDontGiveUp wrote:
I am a bigger guy so I'm worried about complications. I met with one of the Northwestern surgeons when I was first diagnosed and I felt pretty comfortable with him.

I'd love to hear your thoughts cuz I'm not sure what to do.


With the tumour in your caecum, is the proposed surgery a right hemicolectomy?

My surgery was an unexpected and unscheduled emergency and, quite by chance, one of my surgeons was Adam Skidmore, who I later found out
is also one of Australia's most experienced bariatric (obesity) surgeons. Now, I am in Melbourne Australia but as you are concerned about
complications because you are a plus-sized dude, I thought I'd mention it, so you can check out who might have dual qualifications in your
neck of the woods.

http://www.vosc.com.au/
DX April 2015, @ 54
35mm poorly diff. tumour found upon emergency r. hemicolectomy
for ileo-colic intussusception.
Lymph nodes: 0/22
T3 N0 MX

Danieljt
Posts: 309
Joined: Sun Aug 10, 2014 10:32 pm

Re: Picking a surgeon

Postby Danieljt » Thu Jul 13, 2017 9:15 pm

My husband went to Mayo Clinic for his surgery. They said he is one of the best in the country. We traveled from Chicago area and was very impressed with their whole process. It all cost about the same so why not get the best.i will find his name and get back to you. I really urge you to go there. Jackie
70 male stage 3b cc
Dx 5/9/14
Resection 7/1/14
dx 9/14
65 yr wife DLCl
Sct 3/21/19 Ned last 8 mo.

Danieljt
Posts: 309
Joined: Sun Aug 10, 2014 10:32 pm

Re: Picking a surgeon

Postby Danieljt » Thu Jul 13, 2017 9:41 pm

Surgeons name was dr Robert Cima. My husband was able to do his chemo locally, which was a good thing. Good luck n let me no how you make out. Someone told me one your cancer is only as good as your surgeon. Dan was a stage 3 n had resection done. He is Ned now. Good luck, jackie
70 male stage 3b cc
Dx 5/9/14
Resection 7/1/14
dx 9/14
65 yr wife DLCl
Sct 3/21/19 Ned last 8 mo.


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