O'Keeffe's Working Hands or Udderly Smooth for hand foot syndrome

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ocstacy
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O'Keeffe's Working Hands or Udderly Smooth for hand foot syndrome

Postby ocstacy » Wed Jul 05, 2017 2:13 pm

Hi all!

My mother will start Xeloda next week. I was wondering what worked with for you guys for the hand foot syndrome side effect from the chemo?
So far, I have bought Udderly Smooth hand cream and Udderly regular body cream. I also bought fragrance free Aveeno, but now may just get the Cetaphil as someone on this board mentioned that was more heavy coating and moisturizing. I have read about the "Working hands" working well too. Also, I also was told that Aquaphor does well for the radiation burns. Does the Aquaphor work well for the hands and feet too? I am learning so much from this Colon Club :-) So many side effects from the Radiation vs. just the chemo..

Any help would greatly be appreciated! Thank you in advanced! :mrgreen:
Last edited by ocstacy on Wed Jul 12, 2017 3:44 am, edited 1 time in total.
Caregiver/daughter to dear mother age 77, diag.5/09/17
Rectal CA Stage 3A Low grade adenocarcinoma- 6 cm
Neoadjuv. Chemo/Rad. start 7/10/17 ended 08/16/17
Xeloda 2600 mg daily Rad.Onc Mon-Fri (28 days) -3 mth break now
Lap. surgery @ Keck USC, Dr Sang Lee-chief- Winter 2017 temp colostomy
Chemo Xeloda post surgery following reversal
Any Stage 3A survivors out there? Please share your journey
Praying 4 "Complete Response" or "NED"
Love my mom, BUTT she is a horrible patient! :roll:

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betsydoglover
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Facebook Username: Betsy Lindh Williams
Location: Maryland - outside DC

Re: O'Keeffe's Working Hands or Udderly Smooth for hand foot syndrome

Postby betsydoglover » Wed Jul 05, 2017 2:30 pm

Udderly Smooth felt good. Not sure it did anything to prevent H/F, but as I said it did feel good.

At least for me nothing eliminated H/F. I did find that when just sitting around, chilled ice packs under my hands and feet felt very good. No need to use your ice - many such packs you can freeze and reuse - check Amazon. I also bought Dr. Scholl's gel inserts and used them from time to time in my shoes.

I did find that if you keep ahead of it with creams and cold, you can keep it from being too bad. I still sometimes used bandaids on my feet (usually got a 1 week break then.) Make sure you avoid long, hot baths -quick showers work best.

Hoping your mother does well,
Betsy
diag. Stage IV, 5/05, liver met
lap sigmoid colectomy, 6/05
6 cycles Xeloda/oxaliplatin/Avastin (NED after 2)
11/08 9x13mm right lower lobe lung nodule; removed via VATS 4/09
6 cycles Xeloda + Avastin,
NED (PET every 3 mo)
Avastin only 10/09-5/11

Beckster
Posts: 130
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Location: New Jersey

Re: O'Keeffe's Working Hands or Udderly Smooth for hand foot syndrome

Postby Beckster » Wed Jul 05, 2017 3:22 pm

ocstacy wrote:Hi all!

My mother will start Xeloda next week. Was wondering what worked with for you guys for the hand foot syndrome side effect from the chemo?
So far, I have bought Udderly Smooth hand cream and and regular cream. I have read about the "Working hands" working well too. Also, I also was told that Aquaphor does well for the radiation burns. Does the Aquaphor work well for the hands and feet too?

Any help would greatly be appreciated! Thank you in advanced! :mrgreen:



I used both, but Utterly Smooth was not greasy.... You have to stay on top of it and ask onc for a possible reduction in dosage if your hands and feet get sore. Once the dose was reduced, it was much better...
57/Female
DX:(CC) 10/19/16
11/4/16- Lap right hemi(cecum)
Tumor type: Adenocarcinoma
Tumor size: 3.5 cm x 2.5 x 0.7 cm
Tumor grade: G3 (surgical) G2 (biopsy from colonoscopy)
TNM: T3N0M0/IIA
Positive lymph nodes: 0 out of 24
Preoperative CEA- 1.9, Pre Chemo 2.5
Lymphovascular invasion
Surgical margins: clear
Lynch- Negative
12/27/2016 - Capeox, anaphylactic reaction to oxaliplatin on first infusion-discontinued
1/2/17 to 6/9/17- Xeloda monotherapy
6/26/17- CT scan and bloodwork (cea 3.6) NED :)

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spinnz
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Facebook Username: Diana Wiseley

Re: O'Keeffe's Working Hands or Udderly Smooth for hand foot syndrome

Postby spinnz » Wed Jul 05, 2017 3:27 pm

I used Udderly Smooth 5 or 6 times a day. I also took extra B6 vitamins. I still had hf syndrome , but was able to work through it. Best wishes to you mother during her treatment.
Dx age 53 10/8/15
Lap/robotic converted to open sigmoid colectomy, partial small-bowel resection and right salpingo-oophorectomy 10-9-15
CRC stage 3b, T3N1aM0
Margins clear of malignancy
1/27 lymph nodes
Well differentiated
CAT / MRI's indicate NED
dual lumen power port placement 11-4-15, removed 1/16, too big!
FOLFOX + Neulasta- 2 rounds 11/15
5-FU/Lev+ Neulasta 1 round 12/15, liver enzymes high
Xeloda, 1 week on 1 week off 1/16- 5/16
Pre chemo CEA 7
1/5/16 CEA 1.0, 5/16, 1.0
Factor 13-bleeding disorder

aja1121
Posts: 201
Joined: Sat Jun 28, 2014 5:12 pm

Re: O'Keeffe's Working Hands or Udderly Smooth for hand foot syndrome

Postby aja1121 » Mon Jul 10, 2017 3:49 pm

My husband likes the Working Hands because it doesn't feel greasy to him (to me it feels weird and damp). When his hands are really cracked, I've found using a greasy shea butter cream, letting it sink in a little, and then putting the Working Hands over it helps keep the moisture in really well...
DH dx Stage 3B rectal ca 5/23/14 (age 41) from Mpls, MN
6/14 Xeloda + 30 rad
10/14 LAR/ileo, all 12 nodes clean
12/14-04/15 FOLFOX x 10
05/15 VATS, single lung met
06/15 ileo reversal, 09/15 local recurrence, 10/15 permanent colostomy
11/15 FOLFIRI x 4, 01/16 major growth, 10 more rad
02/16 curative resection failed, tumor debulked
03/16 FOLFOX x 4
11/16 Xeloda/Avastin until progression seen 08/17
09/17 start NCT02024607 (BBI608 + FOLFIRI arm)

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juliej
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Re: O'Keeffe's Working Hands or Udderly Smooth for hand foot syndrome

Postby juliej » Mon Jul 10, 2017 4:01 pm

I used Aquaphor on my hands and feet and put on cotton gloves and socks afterwards to help it penetrate. I agree with Betsy about using chilled cold packs. Look for the flexible kind covered with fabric rather than plastic. They really helped cool things down and were easy to use when watching tv or reading.

Also remember to get shoes with comfy insoles and a wide toebox because her feet will swell. I had to use slippers in the house because walking on tile or hardwood floors was very painful if I tried to do it barefoot.
Stage IV, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/11
LAR, liver resec, HAI pump 11/11
Double lung surgery + ileo reversal 2/12
Adjuvant Xeloda 3-9/12
VATS rt. lung 12/21/12 - benign granuloma!
NED 3/17/12 to 6/19/2017, CEA<1

Kobe
Posts: 27
Joined: Wed Mar 01, 2017 10:29 am

Re: O'Keeffe's Working Hands or Udderly Smooth for hand foot syndrome

Postby Kobe » Tue Jul 11, 2017 8:22 am

For those who had dose reduction because of h/f syndrome was that your only side effect? When did the dose reduction start and do you remember what it was. It looks like for me dose reduction will be 20% starting with treatment #6 of 5-FU. I've been using castor oil with gloves at night, compression gloves to work and Bentonite clay to help draw out toxins and cool things down.

Beckster
Posts: 130
Joined: Thu Jan 12, 2017 3:01 pm
Location: New Jersey

Re: O'Keeffe's Working Hands or Udderly Smooth for hand foot syndrome

Postby Beckster » Tue Jul 11, 2017 8:54 am

Kobe wrote:For those who had dose reduction because of h/f syndrome was that your only side effect? When did the dose reduction start and do you remember what it was. It looks like for me dose reduction will be 20% starting with treatment #6 of 5-FU. I've been using castor oil with gloves at night, compression gloves to work and Bentonite clay to help draw out toxins and cool things down.


I had a Xeloda reduction at the end of cycle 3 of 8. Instead of lowering the dosage (1500mg in the morning and 1500mg in the evening), he had me follow a 12 day regiment instead of 14. My was specifically for H&F. By doing this, my onc said it would not lower the efficiency.
57/Female
DX:(CC) 10/19/16
11/4/16- Lap right hemi(cecum)
Tumor type: Adenocarcinoma
Tumor size: 3.5 cm x 2.5 x 0.7 cm
Tumor grade: G3 (surgical) G2 (biopsy from colonoscopy)
TNM: T3N0M0/IIA
Positive lymph nodes: 0 out of 24
Preoperative CEA- 1.9, Pre Chemo 2.5
Lymphovascular invasion
Surgical margins: clear
Lynch- Negative
12/27/2016 - Capeox, anaphylactic reaction to oxaliplatin on first infusion-discontinued
1/2/17 to 6/9/17- Xeloda monotherapy
6/26/17- CT scan and bloodwork (cea 3.6) NED :)

Kobe
Posts: 27
Joined: Wed Mar 01, 2017 10:29 am

Re: O'Keeffe's Working Hands or Udderly Smooth for hand foot syndrome

Postby Kobe » Tue Jul 11, 2017 12:39 pm

I'm curious - why 8 cycles, not 12?

Beckster
Posts: 130
Joined: Thu Jan 12, 2017 3:01 pm
Location: New Jersey

Re: O'Keeffe's Working Hands or Udderly Smooth for hand foot syndrome

Postby Beckster » Tue Jul 11, 2017 1:28 pm

Kobe wrote:I'm curious - why 8 cycles, not 12?


Xeloda is given in 8 cycles. 14 days taking pills and 7 days off. IV 5/FU is given every other week for a total of 12 cycles. Hope this answers your question.
57/Female
DX:(CC) 10/19/16
11/4/16- Lap right hemi(cecum)
Tumor type: Adenocarcinoma
Tumor size: 3.5 cm x 2.5 x 0.7 cm
Tumor grade: G3 (surgical) G2 (biopsy from colonoscopy)
TNM: T3N0M0/IIA
Positive lymph nodes: 0 out of 24
Preoperative CEA- 1.9, Pre Chemo 2.5
Lymphovascular invasion
Surgical margins: clear
Lynch- Negative
12/27/2016 - Capeox, anaphylactic reaction to oxaliplatin on first infusion-discontinued
1/2/17 to 6/9/17- Xeloda monotherapy
6/26/17- CT scan and bloodwork (cea 3.6) NED :)


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