Blood mixed with stool/change in bowel habits/weight loss/pain

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vasco3194
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Joined: Sat May 20, 2017 5:22 pm

Blood mixed with stool/change in bowel habits/weight loss/pain

Postby vasco3194 » Fri Jun 30, 2017 11:50 am

3 months ago I developed a change in bowel habits towards constipation and unable to empty myself. this went on for a month and my stools returned to normal. I thought i was fine until 1 week ago I shit maroon blood mixed with my stool followed by a worsening pain in my sigmond area. I was admitted to the hospital for 3 days, where i was given an emergency colonoscopy which just showed internal hemorrhoids and no explanation for the pain. I also deal with nausea severely on and off. Since this began I've had 2 colonoscopies and 1 upper plus multiple Cats. I finally got in with a specialist in Pittsburgh who saw the picture of my stool and said that did not come from Hemroids. My symptoms continue to worsen and my new GI wants to do another colonoscopy on the future. I have legit every symptom of bowel cancer but nothing can be found. Am I wrong for thinking I have it and it's being missed??? I don't see how 2 colonoscopies can miss it tho. My pain is deep in my left side in my sigmond area and some days I feel so poorly I think I'm dying. any advice please? I'm 23 btw.

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betsydoglover
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Facebook Username: Betsy Lindh Williams
Location: Maryland - outside DC

Re: Blood mixed with stool/change in bowel habits/weight loss/pain

Postby betsydoglover » Sat Jul 01, 2017 3:59 pm

So sorry this is happening to you and you must keep pursuing it with your docs. It doesn't sound normal (as you know), but with all those tests it is unlikely to be colon cancer.

If it is any help, most people diagnosed with colorectal cancer have no pain. In fact, they sometimes say that the most common symptom is no symptom. I was diagnosed with Stage 4 sigmoid cancer and there was absolutely no pain.

Keep pushing the docs and come back here to let us know how you are.
Betsy
diag. Stage IV, 5/05, liver met
lap sigmoid colectomy, 6/05
6 cycles Xeloda/oxaliplatin/Avastin (NED after 2)
11/08 9x13mm right lower lobe lung nodule; removed via VATS 4/09
NED
6 cycles Xeloda + Avastin
Avastin only 10/09-5/11
Still NED 06/18

vasco3194
Posts: 3
Joined: Sat May 20, 2017 5:22 pm

Re: Blood mixed with stool/change in bowel habits/weight loss/pain

Postby vasco3194 » Sat Jul 01, 2017 4:35 pm

thank you for the response! my very knowledgeable new GI also mentioned that part about the pain. Most people don't have any symptoms she said, or if they do it's painless bleeding, or some major sudden event. She told me yes these are symptoms of CC but with two scopes and with my symptoms it would be nearly impossible to miss. She is planning on another colonoscopy because she knows the blood came from somewhere. The past week I have been in an unbelievable amount of pain in my sigmond area. But again thank you for your response!
will keep posted because perhaps this can help someone else down the road.

KElizabeth
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Joined: Sat Oct 31, 2015 12:41 pm
Facebook Username: KElizabeth
Location: Omaha

Re: Blood mixed with stool/change in bowel habits/weight loss/pain

Postby KElizabeth » Sun Jul 02, 2017 8:06 am

Sorry to hear that you are in so much pain. I know how hard it is to get a diagnosis when you have something out if the ordinary. My guess is that your pain is probably non CRC, just because the two scopes came back negative, but I'm glad you are following up with another to be sure. Clean out till everything runs completely clear when you are prepping, so your doctor can see everything. This is the key to a good colonoscopy.
Sending good thoughts.
KE
Female age 39- ,2 teens.
Colon Cancer - DX March 2013
Age 34 at DX - Stage III B
Resection surgery -May 2013
FOLFOX - June, 2013 to Sept, 2013
5FU plus leukavorin Sept, 2013 to Dec, 2013
METs liver and lungs discovered Sept, 2015
KRAS - MSS
FOLFIRI plus Avastin - Sept, 2015 - July 2017
Durvalumab and Cediranib Sept 2017 Dec 17
FOLFOX with desensitization protocol - current

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betsydoglover
Posts: 978
Joined: Mon Aug 14, 2006 2:31 pm
Facebook Username: Betsy Lindh Williams
Location: Maryland - outside DC

Re: Blood mixed with stool/change in bowel habits/weight loss/pain

Postby betsydoglover » Sun Jul 02, 2017 12:53 pm

Have you asked your GI doc about a small intestine capsule camera study? Maroon blood could be coming from higher up in the GI tract, and that might be a way to find it. (I had one once - no big deal - swallow a giant capsule, wear a device around your waist that collects data, return after around 4 or so hours, return device, capsule passes one or two days later.)

Hoping you find a resolution.
Betsy
diag. Stage IV, 5/05, liver met
lap sigmoid colectomy, 6/05
6 cycles Xeloda/oxaliplatin/Avastin (NED after 2)
11/08 9x13mm right lower lobe lung nodule; removed via VATS 4/09
NED
6 cycles Xeloda + Avastin
Avastin only 10/09-5/11
Still NED 06/18


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