Finally some awesome news!!!!

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BeansMama
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Location: North Carolina

Finally some awesome news!!!!

Postby BeansMama » Fri Jun 30, 2017 9:07 am

Well there is finally a plan for Larry's eviction!!!! 2 more months of treatment, a ct scan, and surgery in September!!! It is so nice to finally have an idea of when surgery is going to happen. No more will it be this time? And then finding out nope, not yet. I feel like there is finally a light at the end of this long dark tunnel.

And today is my birthday!!! Finally a good ending to a pretty crappy week. Stb ex was being a jerk Tuesday so I went out for a walk. Stepped in a pothole, fell, and fractured my elbow and the head of the humerus of my right arm. Of course my dominant hand. I can't do diddly with my left and it's all I have. My house is a wreck, my arm is killing me - thankfully my palliative care NP was at the hospital where my oncs office is. I called her nurse to let her know what happened and see if there was anything we could do for the pain. She popped over to see me and increased my oxy dose temporarily. Figuring out how to drive etc. I will overcome this too. It's going to be 4 - 12 weeks before it is better. Go to see the ortho on the 10th. They think I have ligament damage in my hand as well but that has to be checked with an MRI. Fun fun fun. Just in time for my insurance plan year to reset and I have to start paying co-pays again tomorrow.
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016

Beckster
Posts: 422
Joined: Thu Jan 12, 2017 3:01 pm
Location: New Jersey

Re: Finally some awesome news!!!!

Postby Beckster » Fri Jun 30, 2017 11:21 am

BeansMama wrote:Well there is finally a plan for Larry's eviction!!!! 2 more months of treatment, a ct scan, and surgery in September!!! It is so nice to finally have an idea of when surgery is going to happen. No more will it be this time? And then finding out nope, not yet. I feel like there is finally a light at the end of this long dark tunnel.

And today is my birthday!!! Finally a good ending to a pretty crappy week. Stb ex was being a jerk Tuesday so I went out for a walk. Stepped in a pothole, fell, and fractured my elbow and the head of the humerus of my right arm. Of course my dominant hand. I can't do diddly with my left and it's all I have. My house is a wreck, my arm is killing me - thankfully my palliative care NP was at the hospital where my oncs office is. I called her nurse to let her know what happened and see if there was anything we could do for the pain. She popped over to see me and increased my oxy dose temporarily. Figuring out how to drive etc. I will overcome this too. It's going to be 4 - 12 weeks before it is better. Go to see the ortho on the 10th. They think I have ligament damage in my hand as well but that has to be checked with an MRI. Fun fun fun. Just in time for my insurance plan year to reset and I have to start paying co-pays again tomorrow.



This is such awesome news!! Happy Birthday...you deserve it!
57/F
DX:(CC) 10/19/16
11/4/16- Lap right hemi(cecum)
CEA- Pre Op (1.9), Pre Chemo (2.5)
Type: Adenocarcinoma
Tumor size:3.5 cm x 2.5 x 0.7 cm
Grade: G3 (path) G2 (pre-op)
TNM: T3N0M0/IIA
LN: 0/24
LVI present
Surgical margins: clear
MSS
12/27/2016 - Capeox, anaphylactic reaction
1/2/17 to 6/9/17- Xeloda
6/17,12/17,6/18,12/18,6/19,12/19,12/20 CT Scan NED :D
CEA- 6/17- 3.6, 9/17- 2.8 12/17-2.8, 3/18-3.1, 6/18-3.0, 9/18 2.8, 12/18 2.5 3/19 3.1 6/19 3.1 9/19 2.6 12/19 2.8 6/20 3.0 12/20 2.7
Clear Colonoscopy 10/17, 11/19 :D

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mypinkheaven
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Facebook Username: Sally Cunningham
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Re: Finally some awesome news!!!!

Postby mypinkheaven » Fri Jun 30, 2017 12:16 pm

Excellent news! Not about your arm, but finally surgery!!

Happiest of birthdays to you!
MSS, KRAS Wild NRAS Mutated
9/2012 CRC IIB Lft Colectomy 0 lymph nodes 0 Chemo
10/2013 CT clear
11/15 CEA 2.7 to 4.6
11/15 Spread to uterus. Hysterectomy
2/16 Pelvic radiation 25, brachytherapy 3
4/16 - 6/16 Xeloda
6/16 CT Several lung nodules 5 mm
8/16 CT Nodules still present. Most stable. Some growth
11/16 Transfer to UCSD Moores
12/16 Folfox + Avastin failed
2/17 Folfiri + Erbitux
8/17 5FU+Erbitux No 5FU bolus
7/18 Spread to vagina
6/18 Folfiri + Avastin + Trametinib
6/18 CEA dropping

inorganic8
Posts: 50
Joined: Mon Feb 27, 2017 6:13 pm

Re: Finally some awesome news!!!!

Postby inorganic8 » Fri Jun 30, 2017 12:22 pm

Woohoohoo!
Wife to DH with CRC
Stage IV Diagnosis 1/27/17, Mets to Liver, Omentum, Peri
KRAS Mutation, G12, MSS
Folfirinox 2/8/17
Folfiri 6/14/17
Nov. scan - disease progression
1/24/18 15-hour HIPEC surgery.
June 2018 It's back, starting Stivarga
Aug. 2018 stopping Stivarga
Sep. 2018 clinical trial of Keytruda and ibrutanib
Dec. 2018 disease progression, stopped trial
Jan. 2019 small bowel obstruction and surgery
Mar. 2019 clinical trial TAK-164
May 2019 deteriorating rapidly
June 12, 2019 At Peace

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spinnz
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Facebook Username: Diana Wiseley

Re: Finally some awesome news!!!!

Postby spinnz » Fri Jun 30, 2017 1:27 pm

Happy Birthday! :D
Dx age 53 10/8/15
Lap/robotic converted to open sigmoid colectomy, partial small-bowel resection and right salpingo-oophorectomy 10-9-15
CRC stage 3b, T3N1aM0
Margins clear of malignancy
1/27 lymph nodes
Well differentiated
CAT / MRI's indicate NED
FOLFOX + Neulasta- 2 rounds 11/15
Xeloda, 1 week on 1 week off 1/16- 5/16
1/5/16 CEA 1.0, 5/16, 1.0
Factor 13-bleeding disorder
NEW DX
11/15/18 IDC

KElizabeth
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Joined: Sat Oct 31, 2015 12:41 pm
Facebook Username: KElizabeth
Location: Omaha

Re: Finally some awesome news!!!!

Postby KElizabeth » Fri Jun 30, 2017 1:34 pm

That's great about the surgery plans.
Sorry to hear about the arm though. I hope you have some friends to help with meals for a bit. It's OK to ask for help.
Happy Birthday.
~Elisabeth
Female age 39- ,2 teens.
Colon Cancer - DX March 2013
Age 34 at DX - Stage III B
Resection surgery -May 2013
FOLFOX - June, 2013 to Sept, 2013
5FU plus leukavorin Sept, 2013 to Dec, 2013
METs liver and lungs discovered Sept, 2015
KRAS - MSS
FOLFIRI plus Avastin - Sept, 2015 - July 2017
Durvalumab and Cediranib Sept 2017 Dec 17
FOLFOX with desensitization protocol - current

AbbyDoo
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Location: So.Ca.

Re: Finally some awesome news!!!!

Postby AbbyDoo » Fri Jun 30, 2017 1:45 pm

NICE that is some Awesome news.
Happy Birthday
53 yrs old
4/30/15 colonoscopy Mass found
5/21/15 staged 3 C rectal cancer
7/3/15 finished xeloda and radiation 28 rounds
9/30/15 LAR
10/29/15 picc line installed
11/2/15 start chemo 5 fu Oxaliplatin
3/7/16 Finish Chemo
4/29/16 Ileostomy Reversal.
7/13/16 colonoscopy clear.
CRC survivors know there Sh%t

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CRguy
Posts: 10264
Joined: Sun Feb 10, 2008 6:00 pm

Re: Finally some awesome news!!!!

Postby CRguy » Fri Jun 30, 2017 3:03 pm

WTF ?????

Happy B-day
Happy about Larry's imminent departure

BUTT WTF BM ???????
you have had enough interesting thangs goin' on sista'

No more interesting thangs for a while
you hear ?? :shock:

Heal well, heal gently, heal quickly,
heal fully !

Love Peace and Harmony
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
14 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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Maia
Posts: 2443
Joined: Fri Aug 24, 2012 8:00 am

Re: Finally some awesome news!!!!

Postby Maia » Fri Jun 30, 2017 3:22 pm

Happy Birthday, A., and huge congrats for the upcoming surgery!

I'm very sorry for the fracture, but it shall pass soon... Hope you have the chance to let others pamper you a bit!!
You sounds strong, better... that is great :)
Keep living life!!
xoxo

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LPL
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Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Finally some awesome news!!!!

Postby LPL » Fri Jun 30, 2017 4:26 pm

Dear BeansMama,

Wonderful to hear the plans for September :)

But Wow..
Stepped in a pothole, fell, and fractured my elbow and the head of the humerus of my right arm. Of course my dominant hand. I can't do diddly with my left and it's all I have. My house is a wreck, my arm is killing me

Can you sue the people responsible for the road??

You know I know how you feel regarding this fracture(!), it is hard not being able to use your right arm when you are right handed. Even a thing like brushing teeth becomes a big problem..

I will be thinking about you.
Sending happy thoughts for September and
thoughts for strength & speedy healing of your arm.
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung NED again Oct-19 :)
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb & Oct lung mets

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Maggie Nell
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Joined: Wed May 27, 2015 1:57 am
Location: Central Highlands, Victoria, Oz

Re: Finally some awesome news!!!!

Postby Maggie Nell » Sat Jul 01, 2017 6:20 am

Ditto with what LPL suggested - contact your local authority about the pothole regarding
public indemnity. At the very least, they should provide you with Home Help as a gesture of
good will. There is nothing more uplifting to the soul (imho) than watching someone else
clean the house... :D

Happy birthday!

Here's to a good healing of your arm and staying on course for September.
DX April 2015, @ 54
35mm poorly diff. tumour, incidental finding following emergency R. hemicolectomy
for ileo-colic intussusception (ouchies)
Lymph nodes: 0/22
T3 N0 MX

Sorbitol is the Devil
Ordained Dudeist Priest at Dudeism, the Church of the Latter-Day Dude 8)

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HopeForJesse
Posts: 249
Joined: Wed Feb 24, 2016 9:39 am
Location: Philadelphia

Re: Finally some awesome news!!!!

Postby HopeForJesse » Sat Jul 01, 2017 8:05 am

Just wanted to add my congrats and well wishes on your good news. Thanks for sharing. Always look forward to your upbeat posts. Don't know how you do it even with the new injury to deal with. Happy Birthday weekend as well. We share birthdays :D You will be at the top of my prayer list for September!
DH DX 01/16 49 YO inop RC stage IV liver mets
MSS TP53 APC,BRCA2
12/15 CEA 241, FOLFOX to 11/16
LAR/ileo 5/16 Clear margins 1/29 nodes
HAI, reversal, liver resections7/16
FUDR 8/16 -NED 3 mos
Rising CEA 3/17 Xeloda, 5/17 -12/17 Erbitux & Iri stable but lung/lymph mets CEA 2.7
5/18 5 days SBRT radiation to sternum 10/22/18 surgery to remove zyphoid process met
6/11/19 5FU added to cetuximab and irinotecan CEA 16
Ephesians 3:20 Our God is able to do immeasurably more than we can ask or imagine!

Joannerogers
Posts: 260
Joined: Tue Jun 16, 2015 4:50 pm

Re: Finally some awesome news!!!!

Postby Joannerogers » Sat Jul 01, 2017 8:49 pm

Fantastic news! I'm so excited for you!

Have a fantastic birthday also!!!
53yo married 27 years, 2 children, 24 and 25
Diagnosed april 23,2015 rectosigmoid
Starting CEA 1845
Port placement and liver bx April 27
Folfox started april 29
Avastin added on May 6
Stage IV crc with mets to 50% of liver

10/13/15 dc'd transfusion #12...toxic
Pet/ct scan on 11/3/15
20% liver resected all margins clear 11/30/15
8/18/15 cea 21.
9/15/15 cea 13.9
10/13/15 cea 14.4
1/22/2016 cea 2.5
LAR 02/15/16 all clear

mariane
Posts: 683
Joined: Sun Sep 13, 2015 6:16 pm

Re: Finally some awesome news!!!!

Postby mariane » Sat Jul 01, 2017 9:48 pm

Happy Birthday!!!
Congratulations on shrinkage! I will pray for your good and safe surgery in September. All the best for you,
mom of now 11 years old twins, dx @ 40 in 6/2015 with upper rectal cancer, 10+ liver mets, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!

fumaros
Posts: 273
Joined: Sat Jul 02, 2016 10:26 pm
Location: Syracuse, NY
Contact:

Re: Finally some awesome news!!!!

Postby fumaros » Sat Jul 01, 2017 9:51 pm

Happy Birthday Beansmama. And of course having a plan to get rid of larry is fantastic news. Good luck with the arm and healing. I am so pleased for you.
Diagnosed 4/8/16, age 29
Colectomy 4/20/16
Stage III, T4bN1 Tumor 7x6.5x2. Muscinous Adenocarcinoma with SRC features
2/16 lymph nodes
Stage IV, Peri mets 5/2019
CEA 4/14/16 - 16.8
CEA 6/2/16 - 1.9
CEA 6/17/16 - 0.87, 7/16 - 1.33, 12/16 - 1.14, 4/17 - 0.6, 7/17 - 0.5, 10/17 - 0.9, 3/19 -5.8, 4/19 -10
FOLFOX began 6/24/16 - 11/25/16, FOLFIRI - 5/10/19
10 round FOLFOX, 2 round 5-FU & Leucovorin, 1 round FOLFIRI
MRI & CT 8/16 - NED, CT 12/16 - 10/17 - NED


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