Things people say or don't say but it's okay

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mpbser
Posts: 953
Joined: Wed Apr 19, 2017 11:52 am

Re: Things people say or don't say but it's okay

Postby mpbser » Mon Jul 03, 2017 7:51 am

Hi jep,

Welcome aboard. May I ask what your husband's chemo treatment will be? Does he share comorbidities such as diabetes, congestive heart failure, left ventricular dysfunction (diabetic arteriopathy), and cardiomyopathy?

Best wishes,
Christine
Wife 4/17 Dx age 45
5/17 LAR
Adenocarcinoma
low grade
1st primary T3 N2b M1a
Stage IVA
8/17 Sub-total colectomy
2nd primary 5.5 cm T1 N0
9 of 96 nodes
CEA: < 2.9
MSS
Lynch no; KRAS wild
Immunohistochemsistry Normal
Fall 2017 FOLFOX shrank the 1 met in liver
1/18 Liver left hepatectomy seg 4
5/18 CT clear
12/18 MRI 1 liver met
3/7/19 Resection & HAI
4/1/19 Folfiri & FUDR
5/13/19 HAI pump catheter dislodge, nearly bled to death
6-7 '19 5FU 4 cycles
NED

mpbser
Posts: 953
Joined: Wed Apr 19, 2017 11:52 am

Re: Things people say or don't say but it's okay

Postby mpbser » Mon Jul 03, 2017 12:42 pm

This is an excellent speech:

https://www.ted.com/talks/william_li

William Li presents a new way to think about treating cancer and other diseases: anti-angiogenesis, preventing the growth of blood vessels that feed a tumor. The crucial first (and best) step: Eating cancer-fighting foods that cut off the supply lines and beat cancer at its own game.
Wife 4/17 Dx age 45
5/17 LAR
Adenocarcinoma
low grade
1st primary T3 N2b M1a
Stage IVA
8/17 Sub-total colectomy
2nd primary 5.5 cm T1 N0
9 of 96 nodes
CEA: < 2.9
MSS
Lynch no; KRAS wild
Immunohistochemsistry Normal
Fall 2017 FOLFOX shrank the 1 met in liver
1/18 Liver left hepatectomy seg 4
5/18 CT clear
12/18 MRI 1 liver met
3/7/19 Resection & HAI
4/1/19 Folfiri & FUDR
5/13/19 HAI pump catheter dislodge, nearly bled to death
6-7 '19 5FU 4 cycles
NED

mpbser
Posts: 953
Joined: Wed Apr 19, 2017 11:52 am

Re: Things people say or don't say but it's okay

Postby mpbser » Mon Jul 03, 2017 12:51 pm

Another great speach:

Surgery, chemotherapy and radiation are the best-known methods for treating cancer. At TEDMED, Bill Doyle presents a new approach, called Tumor Treating Fields, which uses electric fields to interrupt cancer cell division. Still in its infancy -- and approved for only certain types of cancer -- the treatment comes with one big benefit: quality of life.

Dr. Gary Null had Bill Doyle on his radio program recently. Apparently this type of treatment was actually discovered in 1920 but was squeezed out of the picture by the bigPharma of the day. The inventor's (didn't catch his name) nurse met with Dr. Null at some point (sounds like a couple decades ago) and explained the success of the treatment. I guess better late than never!

https://www.ted.com/talks/bill_doyle_tr ... ric_fields
Wife 4/17 Dx age 45
5/17 LAR
Adenocarcinoma
low grade
1st primary T3 N2b M1a
Stage IVA
8/17 Sub-total colectomy
2nd primary 5.5 cm T1 N0
9 of 96 nodes
CEA: < 2.9
MSS
Lynch no; KRAS wild
Immunohistochemsistry Normal
Fall 2017 FOLFOX shrank the 1 met in liver
1/18 Liver left hepatectomy seg 4
5/18 CT clear
12/18 MRI 1 liver met
3/7/19 Resection & HAI
4/1/19 Folfiri & FUDR
5/13/19 HAI pump catheter dislodge, nearly bled to death
6-7 '19 5FU 4 cycles
NED

mpbser
Posts: 953
Joined: Wed Apr 19, 2017 11:52 am

Re: Things people say or don't say but it's okay

Postby mpbser » Mon Jul 03, 2017 1:25 pm

For those of you unaware of the new "non reductionist" "environmental" paradigm and are interested in learning about it, here is an old TED Talk from over 15 years ago. I believe David Agus was one of the pioneers in this field.

https://www.ted.com/talks/david_agus_a_ ... r#t-696506

(I came home from vacation a day early, so I am spending the day catching up on these videos/etc that I haven't seen yet. Fun viewing, imo.)
Wife 4/17 Dx age 45
5/17 LAR
Adenocarcinoma
low grade
1st primary T3 N2b M1a
Stage IVA
8/17 Sub-total colectomy
2nd primary 5.5 cm T1 N0
9 of 96 nodes
CEA: < 2.9
MSS
Lynch no; KRAS wild
Immunohistochemsistry Normal
Fall 2017 FOLFOX shrank the 1 met in liver
1/18 Liver left hepatectomy seg 4
5/18 CT clear
12/18 MRI 1 liver met
3/7/19 Resection & HAI
4/1/19 Folfiri & FUDR
5/13/19 HAI pump catheter dislodge, nearly bled to death
6-7 '19 5FU 4 cycles
NED

mpbser
Posts: 953
Joined: Wed Apr 19, 2017 11:52 am

Re: Things people say or don't say but it's okay

Postby mpbser » Mon Jul 03, 2017 1:38 pm

Dr. DEAN ORNISH! MY HERO! Awesome talk! I LOVE THIS GUY:

https://www.ted.com/talks/dean_ornish_s ... _your_fate

Dean Ornish shares new research that shows how adopting healthy lifestyle habits can affect a person at a genetic level. For instance, he says, when you live healthier, eat better, exercise, and love more, your brain cells actually increase.

another Ornish talk:

https://www.ted.com/talks/dean_ornish_on_healing

Dean Ornish talks about simple, low-tech and low-cost ways to take advantage of the body's natural desire to heal itself. (At 12:45 he starts speaking about a study he did with MSK on the effect of his diet protocols on prostate cancer patients.)
Wife 4/17 Dx age 45
5/17 LAR
Adenocarcinoma
low grade
1st primary T3 N2b M1a
Stage IVA
8/17 Sub-total colectomy
2nd primary 5.5 cm T1 N0
9 of 96 nodes
CEA: < 2.9
MSS
Lynch no; KRAS wild
Immunohistochemsistry Normal
Fall 2017 FOLFOX shrank the 1 met in liver
1/18 Liver left hepatectomy seg 4
5/18 CT clear
12/18 MRI 1 liver met
3/7/19 Resection & HAI
4/1/19 Folfiri & FUDR
5/13/19 HAI pump catheter dislodge, nearly bled to death
6-7 '19 5FU 4 cycles
NED

mpbser
Posts: 953
Joined: Wed Apr 19, 2017 11:52 am

Re: Things people say or don't say but it's okay

Postby mpbser » Mon Jul 03, 2017 1:59 pm

Cancer as a "direct result to injury." If you want to cut to the chase and pass by this girl's life story, she starts getting into the meat of the discussion at 5:00 and on:

2005 talk:
https://www.ted.com/talks/eva_vertes_lo ... e#t-111478

2011 talk:
https://www.youtube.com/watch?v=x1y5JrjXav8
Wife 4/17 Dx age 45
5/17 LAR
Adenocarcinoma
low grade
1st primary T3 N2b M1a
Stage IVA
8/17 Sub-total colectomy
2nd primary 5.5 cm T1 N0
9 of 96 nodes
CEA: < 2.9
MSS
Lynch no; KRAS wild
Immunohistochemsistry Normal
Fall 2017 FOLFOX shrank the 1 met in liver
1/18 Liver left hepatectomy seg 4
5/18 CT clear
12/18 MRI 1 liver met
3/7/19 Resection & HAI
4/1/19 Folfiri & FUDR
5/13/19 HAI pump catheter dislodge, nearly bled to death
6-7 '19 5FU 4 cycles
NED

rp1954
Posts: 1857
Joined: Mon Jun 13, 2011 1:13 am

Re: Things people say or don't say but it's okay

Postby rp1954 » Mon Jul 03, 2017 2:54 pm

mpbser wrote: ... Therefore, lifestyle habits have the highest impact on cure. In other words, when it is estimated that 47% of colorectal cancers could be prevented by appropriate lifestyles, it stands to reason that CRC could be reversed by extremely healthy lifestyles.


Reversal of a pre-cancerous cellular condition is quite different from one or multiple cancer cell lines with multiply transformed metabolism, genetics, and biome. With cancer, basically we're sniping at different cells, colonies and locations with various tools and phenomena. Science oriented alternative medicine is typically looking for milder molecular answers that often have health benefits to normal cells and organ function, but go far beyond "healthy lifestyles".

Some of the biomarkers in essence reflect the degree of transformation and tumor load, and the lower likelihood of simple immune and metabolic resolution even with "curative surgery". With mCRC residuals, I don't think any forum members have gotten more than partial responses to natural and alternatives without using some chemo. Btw, "partial response" may seem to understate to us, the laymen, the heroic dimension of some great but non curative responses.

The question is, which alternatives ? Some of the most basic ones are driven by various predictive blood measurements, others by measured improvements. Standard medicine simply ignores much of its own technical literature on these without mounds of marketing and technical support but naturopaths and CAM practitioners typically underdose what actually achieved a desired effect, as published.

There's some overlap between natural cardiac formulas and cancer formulas, where often one is choosing between the higher recommendation level of either or some degree of addition, subject to any upper limits or conflicts.
watchful, active researcher and caregiver for stage IVb/c CC. surgeries 4/10 sigmoid etc & 5/11 para-aortic LN cluster; 8 yrs immuno-Chemo for mCRC; now no chemo
most of 2010 Life Extension recommendations and possibilities + more, some (much) higher, peaking ~2011-12, taper chemo to almost nothing mid 2018, IV C-->2021. Now supplements

mpbser
Posts: 953
Joined: Wed Apr 19, 2017 11:52 am

Re: Things people say or don't say but it's okay

Postby mpbser » Mon Jul 03, 2017 6:38 pm

rp1954,

I'm not so sure and neither are any of the doctors in those videos I linked. I appreciate your input, as always.

Christine
Wife 4/17 Dx age 45
5/17 LAR
Adenocarcinoma
low grade
1st primary T3 N2b M1a
Stage IVA
8/17 Sub-total colectomy
2nd primary 5.5 cm T1 N0
9 of 96 nodes
CEA: < 2.9
MSS
Lynch no; KRAS wild
Immunohistochemsistry Normal
Fall 2017 FOLFOX shrank the 1 met in liver
1/18 Liver left hepatectomy seg 4
5/18 CT clear
12/18 MRI 1 liver met
3/7/19 Resection & HAI
4/1/19 Folfiri & FUDR
5/13/19 HAI pump catheter dislodge, nearly bled to death
6-7 '19 5FU 4 cycles
NED


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