This could be LONG ... very long !

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CRguy
Posts: 10474
Joined: Sun Feb 10, 2008 6:00 pm

This could be LONG ... very long !

Postby CRguy » Thu Jun 22, 2017 11:23 pm

Coming from the caregiver side right now
BTDT twice B4
bringing all my family support, vet med, caregiver, Stage IV CRC survivor experience to bear on this converstaion .....

This Could Be LONG ..........

been offline a few days ( daze ?? :shock: )
geriatric mother (89) slipped / fell / broke hip
5 hour drive away so I am here now having arrived the same afternoon as the incident.

She was scooped up by a multitude of friends / AmbuMedics and taken to local hosp her GP does ER rounds at
AND moved to major regional hosp same day after triage and xrays
Surgery next a.m. with the expert ortho honcho

She has great Doc and I would say out of 6 nurses ...5 are outstanding, 1 is very skilled but not warm and fuzzy

Having BEEN a patient a number of times I know, while it may be hard and seem impossible ...

Sometimes patients HAVE TO BE PATIENT :twisted:

Mom is a tough old Viking lady, kicks ass and takes no prisoners .... :shock: :shock: :shock:
( where did I get that from :?: )
so here is ME who actually knows shit from shinola ...
trying to explain to her "Yes the surgery is done BUTT you need some hosp care / rest / rehab before you can go home "

WELL yada yada yada
wot about this
why am I here
why can't I heal at home

BECAUSE YOU CAN'T EVEN GET OUTTA THE EFFIN BED FOR EFF SAKE !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
:twisted:

there, feel better now

I will tell her like it IS

sometimes even on this forum folks come here wanting to hear what they WANT to hear
and get pissed when they don't
suck it up buttercup !

LIFE is what it is, and while it may not always be what it seems

it IS STILL the life you are living
so find a way to deal with it and move forward

what IF ... ain't worth shit sometimes

WHAT IS ... is golden and we all need to embrace that and move on
in any and every way we can

THIS new Journey is gonna be a bee-atch

patience will be at a premium

JMO

thanx for lending a friendly ear homies

so this is CR back in the thick of things
and personally while I hate doing the CRC patient thing
I get that being a caregiver may sometimes, and in some ways, be WORSE than being the actual patient

Harmony y'all
CRguy always a Journey
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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LPL
Posts: 651
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: This could be LONG ... very long !

Postby LPL » Fri Jun 23, 2017 5:20 am

Wow CRguy,

There is always something right?
Your poor mother, fractures are not Fun :cry: I got 3 in October and am still not back to 'me before'..
and I'm not 89 :shock:

So with a 5hour drive you will not be able to visit her much I presume? Great to hear about the "multitude of friends", not everyone has that at 89 years of age. A thing to be thankful of? WORD ? (Did I use that correct :wink: )

Yes at times you feel quite helpless as a caregiver.
All the best to you and your tough Viking Mom !
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung NED again Oct-19 :)
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb & Oct lung mets

CLD
Posts: 206
Joined: Fri Mar 27, 2015 7:16 pm

Re: This could be LONG ... very long !

Postby CLD » Fri Jun 23, 2017 7:30 am

You are always so kind to offer a quick response to everyone so I just want to offer my encouragement to you and let you know my thoughts are with you. Get well wishes to your mother and prayers for your continued patience!
Wife to DH/ Father of 6 (age 42 at dx) diagnosed Jan 2015 stage IIIC
Tumor deposit in mesentery 13/24 lymph nodes +
CEA at dx: 5
MSS
Low Grade/Mod. Diff.
FOLFOX 6 months
N.E.D until June 2018
PET Scan 6/18
Biopsy confirms cancer in 3 Paraaortic lymph nodes
Folfiri + Avastin (6tx) and Xeloda during radiation
Cancer all over both lungs dx Jan 2019
FOLFIRI +AVASTIN presently

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Maia
Posts: 2443
Joined: Fri Aug 24, 2012 8:00 am

Re: This could be LONG ... very long !

Postby Maia » Fri Jun 23, 2017 7:45 am

Sending lots of love to that old Viking lady!
And you, do what you have to, but take care of you too, mister. <3

helen098
Posts: 2009
Joined: Sun Jul 01, 2007 2:07 pm
Location: Forest Hills New York

Re: This could be LONG ... very long !

Postby helen098 » Fri Jun 23, 2017 8:06 am

Sending good thoughts vibes and
Swinging chickens as needed
stage 3A surgery 6/6/6 finished chemo jan 07
11 5FU/12 Levcouorin/10oxaliplatim
port removed jun 07
anal fistula surgery oct 05 may 07 feb 08 sep 08 jun 09

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horizon
Posts: 1670
Joined: Tue Apr 12, 2011 10:10 pm

Re: This could be LONG ... very long !

Postby horizon » Fri Jun 23, 2017 8:45 am

Wise words! Fingers crossed that she recovers well.
I'm just a dude who still can't believe he had a resection and went through chemo (currently 13 years NED). Is this real life?

DebZ
Posts: 83
Joined: Fri Nov 14, 2014 9:01 pm
Facebook Username: Bulc

Re: This could be LONG ... very long !

Postby DebZ » Fri Jun 23, 2017 10:10 am

I feel for you because I KNOW I'm a much better patient than caregiver. I have zero patience and I'm with you on the suck it up buttercup thinking. That being said, your poor mom!! Hope she recovers quickly.
48 @ diagnosis Sept 2014
MSS; Kras mutant G12D
Oct 2014: right hemicolectomy
Dec 2014-May 2015: Folfox
June 2015: clean scans
Sept 2015: scans reveal ovarian mass and liver met; Folfiri
Jan 2016: liver wedge resection and hysterectomy
April 2016: multiple lung mets; Folfiri+Avastin
June 2017: lung mets growing; switch to Folfox+Avastin
Jan-April 2018: dropped oxali; CEA rising
May 2018: back on Folfox+Avastin, add pulse steroid treatment to get platelet count up (continuously in 50s)

WarriorSpouse
Posts: 220
Joined: Tue Aug 16, 2016 9:02 pm

Re: This could be LONG ... very long !

Postby WarriorSpouse » Fri Jun 23, 2017 12:08 pm

You are a funny CR Guy!

I do appreciate your humor on this blog:)
I hope Mom's recovery goes well and thanks for the shout-out to supporting cast members:) I like how your can be a hybrid on this forum. You are a utility player for sure!

Clearly you have done your duty and continue to serve others... You are a good man. Also, don't forget, that you do the supporting role every day on this blog as well helping all of us who found ourselves in this crazy club.

It has been a pleasure to see you bring the best out of people on this forum. You are a true leader among the pack! Keep-up the great efforts and only good things will follow along your journey.

Best wishes to Mom and her quick recovery.
WS
D/H 47 years old, 10/2014, Stage IV M/CRC, nodes 12/15, para-aortic, 5 cm sigmoid resection, positive Virchow. KRAS mut, MSS, Highly Differentiated, Lynch Neg, 5FU/LV and Avastin 1 YR (Oxi for 5 months), Zeloda/Bev since 01/2016. 02/2019 recurrence para-nodes, back to 5FU/LV Oxy/Bev. It is working again. "...Perseverance is not a long race; it is many short races one after the other."-Walter Elliot

ams5796
Posts: 2298
Joined: Fri Feb 06, 2009 10:07 am

Re: This could be LONG ... very long !

Postby ams5796 » Fri Jun 23, 2017 12:24 pm

Sending out good thoughts to your mom. I feel YOUR pain. You and I have been on very similar journeys in many ways. I think we both lost our dads to the same horrible disease. My mom has been an (unhappy) widow for a long time. She's ninety now and really struggling. She was always a fiesty, capable, independent woman who could handle anything. Now, she lands in the hospital every few months for one thing or another. She lives alone and probably shouldn't, but she won't have it any other way...at this point. I agree, it's tough being the caregiver. I have a somewhat helpful brother. How about you, do you have any help?

Good luck, CRGuy.

Ann
Stage 3C (or 4?) Rectal Cancer 01/07
2/10 lung mets
3/11 VATS
6/11 VATS
7/13 lung met
2/14 SBRT
NED 8/14
5/17 scan and MRI found treated spine met

Joannerogers
Posts: 260
Joined: Tue Jun 16, 2015 4:50 pm

Re: This could be LONG ... very long !

Postby Joannerogers » Fri Jun 23, 2017 3:27 pm

Sorry to hear about your mom. I'm wishing her a speedy recovery!

I do believe being a care giver is the hardest because you have so little control over their own choices and feelings. This is where patience comes in handy!

I'm wishing you good luck too!
53yo married 27 years, 2 children, 24 and 25
Diagnosed april 23,2015 rectosigmoid
Starting CEA 1845
Port placement and liver bx April 27
Folfox started april 29
Avastin added on May 6
Stage IV crc with mets to 50% of liver

10/13/15 dc'd transfusion #12...toxic
Pet/ct scan on 11/3/15
20% liver resected all margins clear 11/30/15
8/18/15 cea 21.
9/15/15 cea 13.9
10/13/15 cea 14.4
1/22/2016 cea 2.5
LAR 02/15/16 all clear

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CRguy
Posts: 10474
Joined: Sun Feb 10, 2008 6:00 pm

Re: This could be LONG ... very long !

Postby CRguy » Fri Jun 23, 2017 6:30 pm

To everyone : thank you for your kind wishes and prayers
I will pass them along to Mom

LPL
WORD !!!!! well done :mrgreen:

CLD
thanks .. yes I am not always the patient type

Maia
will do: we sometimes forget about ourselves … guilty :shock:

helen098
well played …I forgot about the chickens !!!

horizon
yeah the collective wisdom here IS what keeps me coming back

DebZ
ya know I actually surprised myself how good a patient I was BUTT
my mantra was: you assemble your experts and then get outta the way and let them work for you !

WarriorSpouse
aw shucks :oops: … honestly it is my great privilege to be a part of this forum
as for the humour …. you have an equally warped sense as I do !!!! well done :D

ams5796
hey Ann I recall those discussions in past and the moving forward is a challenge. There is only ONE CRguy ( yes only child ) BUTT her community and especially the church congregation/pastor are her “surrogate” family in town here. Very grateful for their support and they are WONDERFUL folks.

Joannerogers
yes I am a bit of a control freak when things are in my court BUTT that is because of life experiences … I KNOW THIS SHIT !!!!
Still will be a challenge :twisted:

SitRep update :
rehab/physio folks were with her day 1 post-op. Tweaked her pain meds and now past post GA delrium/confusion so much brighter and more herself today than when I wrote the initial post. Will still be a long haul but more optimistic she will continue to do well.

Do not mess with tough old Viking ladies :evil:

WORD !

Cheers and Harmony all
Namasté

CRguy still Journeying
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

DarknessEmbraced
Posts: 3817
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: This could be LONG ... very long !

Postby DarknessEmbraced » Sat Jun 24, 2017 5:12 pm

I'm sorry your mother is dealing with a hip fracture. That sounds so incredibly painful! I hope she heals quickly!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Lee
Posts: 6207
Joined: Sun Apr 16, 2006 4:09 pm

Re: This could be LONG ... very long !

Postby Lee » Sat Jun 24, 2017 5:46 pm

So sorry to hear about your mother.

I too am swing chickens for a speedy recovery.

It's amazing how they have improved that surgery. At one time, long hospital stay followed by long rehab stay. A friend of mine broke her hip last years. Surgery, out of hospital in a few days. She was in rehab about 3 weeks, then home. I will admit her granddaughter moved in with her to help her, She could not be alone just yet. She used a walker for a couple of months, than a cane and now nothing.

I hope it's that way with your mom. She sound like a wonderful lady.

All the best to you and your Mom,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

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WriterGirl1969
Posts: 524
Joined: Sat Mar 05, 2016 3:48 pm
Location: Central NY

Re: This could be LONG ... very long !

Postby WriterGirl1969 » Sat Jun 24, 2017 9:10 pm

Sorry to hear it! That kind of fall is rough, especially with tough, independent patients. <:- )
Sending some Harmony-minded prayers her way, and yours too.

Hugs,
Tracy
DX 3/4/2016 Colon Cancer; age 46 Mom of then 4-yr-old
Stage IIIB: T3N1M0
3/31/16 Surgery
4 to 10/2016: Xeloda Monotherapy
CEA: 10/16 0.56, 1/17 0.54
CT CLEAR: 3/6/17; 4/17/18; 4/16/19
NED 3 years
“If I can help somebody as I walk along, then my living shall not be in vain.”

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CRguy
Posts: 10474
Joined: Sun Feb 10, 2008 6:00 pm

Re: This could be LONG ... very long !

Postby CRguy » Sat Jun 24, 2017 9:24 pm

Thanks homies !!!
.... all manner of prayers Harmony and best wishes always welcome :mrgreen:

She's back to the local general hosp today which is only a 10 min drive for all her friends, so she will be supported well !
Her nurse today is an exceptional lady who also happened to care for Dad when he was treated. Mom was very happy to see her again because she knows what a quality person she is.

Onward we go

Cheers all
CR
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far


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