Re: granix extreme bone pain
Posted: Wed Aug 16, 2017 11:58 pm
Hi Ben,
Shot 3 today and knocking on wood so far so good. The tincture is helping the D a lot now that I am taking the correct dosage. It doesn't affect any pain that I might have, way too weak and very small dose. I can easily drive and carry on as normal unlike pill form pain killers. I may just buy a bottle of it tomorrow out of pocket if the insurance issue persists. What the heck, it's only money ... and comfort is worth a lot to me these days!
My potassium plummeted from 4.3 to 2.8 so they are making me take 40mgs a day for the next 7 days. Those pills were made for horses not humans. I get them down by slipping them into applesauce like they taught me in the hospital. I will get blood drawn on Saturday to help determine if I start round 4 of Irinotecan + cetuximab on Monday. I will push for at least the Cetuximab if they want to hold off another week for the Irinotecan. I find that my willingness to be more agressive when I feel stronger physically reassures them. I'm not a complacent patient, my survival depends on staying engaged and informed. Along with finding mutual support from each other, I think gaining knowledge from others is one of the critical reasons we're all part of this club.
My 93 year old dad fell and broke his wrist today, I wasn't able to take him to the ER since I was hooked up to saline but my daughter managed to leave work and take him. Just another slice of life that we all experience. He looks good and sounded great, still waiting to hear if he will need surgery which is worrisome at his age but just taking all of this one day at a time. He lives in San Francisco and the hospital is very good.
Loved the link to the tough baby pic!
Hope that your numbers improve until you're in the GREEN as in go for it zone.
Shana
Shot 3 today and knocking on wood so far so good. The tincture is helping the D a lot now that I am taking the correct dosage. It doesn't affect any pain that I might have, way too weak and very small dose. I can easily drive and carry on as normal unlike pill form pain killers. I may just buy a bottle of it tomorrow out of pocket if the insurance issue persists. What the heck, it's only money ... and comfort is worth a lot to me these days!
My potassium plummeted from 4.3 to 2.8 so they are making me take 40mgs a day for the next 7 days. Those pills were made for horses not humans. I get them down by slipping them into applesauce like they taught me in the hospital. I will get blood drawn on Saturday to help determine if I start round 4 of Irinotecan + cetuximab on Monday. I will push for at least the Cetuximab if they want to hold off another week for the Irinotecan. I find that my willingness to be more agressive when I feel stronger physically reassures them. I'm not a complacent patient, my survival depends on staying engaged and informed. Along with finding mutual support from each other, I think gaining knowledge from others is one of the critical reasons we're all part of this club.
My 93 year old dad fell and broke his wrist today, I wasn't able to take him to the ER since I was hooked up to saline but my daughter managed to leave work and take him. Just another slice of life that we all experience. He looks good and sounded great, still waiting to hear if he will need surgery which is worrisome at his age but just taking all of this one day at a time. He lives in San Francisco and the hospital is very good.
Loved the link to the tough baby pic!
Hope that your numbers improve until you're in the GREEN as in go for it zone.
Shana