Tdubz wrote:Good news! I'm not sure I could handle having a shot in the stomach and then even more side effects than I already have lol. Glad at least this part has been easier for you this go around. Do you get to stop taking these shots or are they just part of your treatment now? Ive been lucky with my blood counts. That's the one area I haven't had any problems with yet.
Tdubz wrote:Good news! I'm not sure I could handle having a shot in the stomach and then even more side effects than I already have lol. Glad at least this part has been easier for you this go around. Do you get to stop taking these shots or are they just part of your treatment now? Ive been lucky with my blood counts. That's the one area I haven't had any problems with yet.
Tdubz wrote:Getting number 7 right now. Reduced the oxy to 80% this go around. My hands and feet are still tingling from the last one while I'm getting the next one lol. I was reading somewhere on here that in new zeland or Australia they only do 4 rounds with oxy, not sure if that's true or not but makes me feel good I made 6 rounds with full oxy, even though my 5FU has been reduced to 80% for the past 4 treatments.
benben wrote:I mentioned Neulesta to nurse, she said it was massive expensive so insurance companies would rather go the zarxio or granix route if it was enough.
Soccermom2boys wrote:benben wrote:I mentioned Neulesta to nurse, she said it was massive expensive so insurance companies would rather go the zarxio or granix route if it was enough.
I did Neulasta (I believe four of the eight FOLFOX treatments I had). It is ridiculously expensive, came up as $9,000 on the explanation of benefits. Fortunately my insurance never balked when I needed it. Sometimes it did such a great job that I would not need the shot the next time, that is why I only had four shots. While it did affect my joints a bit, I never had the bone pain you have been suffering through. I had to get the shot no less than 24 hours after I was disconnected from my pump so it meant a third trip to the cancer center on those weeks, but I was fortunate my treatments were never delayed due to my blood counts. I was never told of any other options, I had never heard of granix until reading through your posts on here.
Fingers crossed for you to be able to get a good plan in place to keep those treatments on time so you can be done as soon as possible while also not wreaking total havoc on your counts.
tater wrote:My wife gets really bad pain in her leg bones. One night I rubbed her legs almost all night so she could sleep. After that she took the Claritin and it help a lot. Good luck.
Volfan wrote:Doc gives me neulesta. I didn't even know about a shot option until doc brought it up when my counts were low. But he checked and said I'm not approved for it but I am for the neulesta.
They put it on the day of pump disconnect and it autoinjects the next day. I've been fortunate when I've gotten it with no side effects.
Just a heads up if you get neulesta and stick it on your stomach. Shave ahead of time if you have hair there. It will bring tears to your eyes when pulling off.
Shana wrote:Had my second Zarxio shot today, so far no side effects but it's still early... third shot is tomorrow and they are also going to test blood chemistry to see if the diarrhea has depeleted my potassium and whatever else it might affect.
It was interesting reading through this entire post, learned a lot! I've been getting 2 litres of saline along with the shot but they inject me on the underside of my upper arm which I prefer. The injection seems to go so slow and stings a bit, will do CBC on Friday to see what the WBC count is and if any of the other counts have lowered.
I requested one of the private rooms for treatment the last 2 days since I am neutropenic and frankly not feeling very social, I just want to sleep. I'm waiting for the tincture of opium to kick in, hopefully by tomorrow. My RX was written incorrectly which resulted in .6 ml every other day which is coded QOD. It should have been QID - 4x per day. My insurance is balking at paying for the correct dosage since I just filled it yesterday. I am asking the office to contact them and explain the error etc. Out of pocket cost is $550 which I shouldn't have to pay for an incorrectly written RX. I've only taken 2 doses so far due to the error, I only discovered it when I saw that Mayo clinic and a couple of other reputable websites recommended the 4X dosage to control diarrhea and asked the nurse about it today. Staying informed and advocating for yourself is so important.
Hope all goes well for you the rest of this week, this is such an uphill battle but we can do it!
Shana
this is such an uphill battle but we can do it!
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