Teachergirl wrote:I have the shot almost every treatment and sometimes it's better than other times. I never know. My nurses have me take anti inflammatory along with the Claritin. I take two every 12 hours and then Claritin once every 24. I would ask my onc or the nurses about that as well. I also take the Claritin and other pills right away. Even a little before I get the shot. If I wait until I get home it's too late. Try to stay ahead of it. Hope you find some relief.
Brearmstrong wrote:Sorry you are going through this! I too have had low WBC from folfox and had to delay rounds 2 and three. I had three daily shots of neuprogen and experienced terrible bone pain. My oncologist warned me that it might feel like I am having a heart attack- wow, fun! Claritin doesn't seem to work for me either and I always run a fever as well. They did have to reduce my folfox dosage and now I get one neulasta shot after pump is removed. First two times were terrible but instead of bone pain, it is as if all my muscles fill with lactic acid. 48 hours later it is gone. The side effects are worse then the chemo ones! I also take cbd and thc and is the only relief I can find. My numbers are still barely high enough to continue which is so disheartening but if it helps, the last neulasta shot last week barely caused any muscle or bone pain! Not sure why but it may get easier for you. Maybe they can switch you to neulasta over neuprogen?
Brearmstrong wrote:3) I have had 5 treatments so far with the 2nd and 3rd delayed one week. The fifth round I just BARELY got approved and that was without a week delay and with the shot and reduced dosage. It's very frustrating because they reduced dosage and still not cooperating. I hope you get some positive improvement in your numbers!! Keep me posted.
Brenda
mozart13 wrote:I get lower spine pain with Gastrofil, just different brand, feels like some one is pulling my bones apart, usually take half extra strength tylenol, and pain goes away, I sweat for few nights, like body is fighting something, had 4 folfox so far, had to delay 4th one and 5th will happen one week latter, was suppose to happen this week, but will happen next week.
Lab results are down in boots.
Kidney results are fine, I take nettle tea second week to flush my kidneys.
Also watermellon is my new friend, keeps me hydrated.
Alerady have numbness in tips of fingers thats not going away, so my dose will be changed next week, most likley will be getting xeloda only down the road, but I am usually very sensitive to any meds. Find that 4th and 5th day are hardest, feel so tired.
benben wrote:[
. . . that and I didn't drink the normal 120 ounces of water yesterday. Probably only made about 80 ounces.
They said labs looked like I was dehydrated so they pumped me with 2 bags of saline. !
Lee wrote:benben wrote:[
. . . that and I didn't drink the normal 120 ounces of water yesterday. Probably only made about 80 ounces.
They said labs looked like I was dehydrated so they pumped me with 2 bags of saline. !
Good luck with those shots, sounds very painful.
Just want to stress, drinks LOTS of liquids days prior to chemo and days on chemo. Dehydration can become a serious medical problem. When I was on chemo (FOLFOX was brand new) many people were ending up in the ER was a host of medical problems only to determine they were dehydrated. So really try to stay ahead of that.
Good luck,
Lee
benben wrote:Anyone else experience this, tips, suggestions ?
UGGG
bitchslapped wrote:benben wrote:Anyone else experience this, tips, suggestions ?
UGGG
benben, Bed Buddy may help take your pain down a notch. At the very least they felt soothing for an investment of $15 to $20 a piece that is not a drug. I got them from Walgreens.
I used to cover my DH in those Bed Buddies that you heat up in the nuker on DH, legs, arms, back for bone pain, though he did not have cancer in the bones, they ached/bone pain from chemo. He used to say: "Oh, that hurts so good." I had all shapes & sizes...could have bought stock in the company. Even had a small one for the forehead. You can get them anywhere,Walmart, Walgreens, Amazon.com. My DSS had mCRC w/metastasis to his rib, used one on him for the back pain, sent it home w/him. It helped, that the very next day he went & bought several more. May/may not help take the edge off for what the meds don't do. At the very least, the warmth may just feel comforting/soothing from the moist heat.
Best Wishes
BS
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