Lung met treatment experience

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crazylife
Posts: 213
Joined: Wed Dec 30, 2015 11:29 am

Lung met treatment experience

Postby crazylife » Sun Jun 18, 2017 9:54 am

DH has a few lung mets under a cm. He had one ablated a few weeks ago due to size. Currently no plans to put him back on chemo. He's been off chemo since June 2016. Is this normal? We went to sloane and Yale and they said the same thing - wait and maybe put him back on chemo in 6 months or so.

Anyone experience this?
Wife to DH, 41 years old, diagnosed 11/15
Stage 4, Mod diff, 13/24 LN, 1 liver met
Colon/liver resection at MSK, 11/15
8mm lung met (not confirmed) and enlarged lymph nodes 1/16
12 rounds of folfox (9 with Oxi) 6/16
NED - July 2016
NED - October 2016
3 possible lung mets (watch & see) - March 2016

Lee
Posts: 4831
Joined: Sun Apr 16, 2006 4:09 pm

Re: Lung met treatment experience

Postby Lee » Sun Jun 18, 2017 5:46 pm

With a stage IV diagnoses, I understand your concern. I know in a few situation, they do not follow up with chemo after having something removed. Maybe they figured these tumors were slowing growing and felt they got them all.

Good that you got many opinions, because if this was me, I think I would have ask for chemo also.

All the best,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

Lee
Posts: 4831
Joined: Sun Apr 16, 2006 4:09 pm

Re: Lung met treatment experience

Postby Lee » Sun Jun 18, 2017 6:10 pm

crazylife wrote:DH has a few lung mets under a cm. He had one ablated a few weeks ago due to size. . .


Somehow I thought they got them all. Many years ago I was told in some situations they know something is cancer, butt because it is small and is not doing anything they don't want to muck with it.

This happened to a friend of mine. They were 99% sure it was cancer, but it was small, had not changed in many years, and they did not want to test it. This was before PET scans. Just wait and see. They led her to believe that it probably would not grow any more. Last I heard it was still not growing.

Hope this helps,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

DanInMN
Posts: 81
Joined: Mon Apr 02, 2012 11:18 pm

Re: Lung met treatment experience

Postby DanInMN » Mon Jun 19, 2017 12:26 pm

Do they know these were cancer and not just benign nodules?
Dan - Male - Age 41
3/5/2012 - Colonoscopy - dx: sigmoid colon cancer
3/29/2012 - Colon Resection - growth through wall, 1 of 23 nodes, 4 tumor deposits - dx: Stage 3b
5/7/2012 - Begin Folfox
10/10/12 Finish Folfox
10/22/12 CT scan = NED
4/17/17 Lung nodule discovered to be colorecretal cancer met
5/12/17 Met removed

crazylife
Posts: 213
Joined: Wed Dec 30, 2015 11:29 am

Re: Lung met treatment experience

Postby crazylife » Mon Jun 19, 2017 1:17 pm

There are 4 in total. One was removed via RFA about a month ago. One is growing and other two are new nodules just discovered.
Wife to DH, 41 years old, diagnosed 11/15
Stage 4, Mod diff, 13/24 LN, 1 liver met
Colon/liver resection at MSK, 11/15
8mm lung met (not confirmed) and enlarged lymph nodes 1/16
12 rounds of folfox (9 with Oxi) 6/16
NED - July 2016
NED - October 2016
3 possible lung mets (watch & see) - March 2016

User avatar
Maia
Posts: 2334
Joined: Fri Aug 24, 2012 8:00 am

Re: Lung met treatment experience

Postby Maia » Mon Jun 19, 2017 2:13 pm

I don't know if this helps but just came across today with an immuno trial, combination with Avastin and Folfox. It is for just diagnosed metastatic CRC BUT allows also those who had chemo more than one year ago.

* New trial.
* NCT03176264
* Anti PD-1 (immunotherapy)+ Avastin + Folfox as FIRST LINE Therapy in Patients With Metastatic MSS Colorectal Cancer

"PDR001 in Combination With Bevacizumab and mFOLFOX6 as First Line Therapy in Patients With Metastatic MSS Colorectal Cancer"

* Important:
Patients who are naïve to systemic treatment in metastatic setting. Patients with previous neoadjuvant or adjuvant chemotherapy (that may have included oxaliplatin or investigational VEGF inhibitors) are eligible if the treatment was completed > 12 months before inclusion.

* "Particular attention will be paid to the level of activity of study drug combinations in CMS4 patients (retrospective analysis)."
They have not disclosed locations yet, but might be something you want to keep an eye on.

crazylife
Posts: 213
Joined: Wed Dec 30, 2015 11:29 am

Re: Lung met treatment experience

Postby crazylife » Mon Jun 19, 2017 3:06 pm

[quote="Maia"]I don't know if this helps but just came across today with an immuno trial, combination with Avastin and Folfox. It is for just diagnosed metastatic CRC BUT allows also those who had chemo more than one year ago.

Thanks Maia! We have an appt with the trial people at MSK and I'll bring it up.
Wife to DH, 41 years old, diagnosed 11/15
Stage 4, Mod diff, 13/24 LN, 1 liver met
Colon/liver resection at MSK, 11/15
8mm lung met (not confirmed) and enlarged lymph nodes 1/16
12 rounds of folfox (9 with Oxi) 6/16
NED - July 2016
NED - October 2016
3 possible lung mets (watch & see) - March 2016


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