Tupelo honey wrote:I did take all my rounds of Oxi through the veins as I did not want a port. It did burn for a day or two afterwards each time but is definitely doable.
ditto: I felt 'patient' only during infusion day. Just sick (but at home
) the following 2-3 days. Then better each day and 'on holidays' often leading an almost normal life the final week (of the three week cycle). This third week was enjoyable and gave the strength to take on the next cycle.
These predictable on/off cycles, with only a few 'patient'/sick days carried me thru.
- I always alternated the arms that were to receive the needles, between whatever the purpose (bloodwork, CT, chemo, clotting checks, etc)
- Once the needle perforated the vein which caused some chemo entering the muscle tissue. The new / different, mildly burning sensation led to the IV being moved to the other arm and application of quite a series of hotpacks. All went back to normal within a day.
- Had reaction to Avastin (extreme pulse/blood pressure) the first time it was added. Infusion rate was reduced, for this and all following Avastin sessions. This made long boring days (8:15 AM - 5:50 PM), with intense chemo reactions mostly when leaving the hospital and the 1 hour drive home. It didn't affect sleep.
- I never used nausea pills
As Tupilo said: definitely doable. Best thing avoiding the patient role