I just went through this whole thread and I'll have to say that mpbser has done an incredible job going to bat for her husband. The amount of time and energy and commitment shows. I assume that you live somewhere in Vermont but you're making appointments in Boston where the quality of care is very, very high. I'm in a similar situation in NH where we have local services but I went to DFCI/B&W for second opinions. You are right in that DFCI feels like a factory. I was ready to go with Mass General as I had a hard time getting the folks at DFCI to return my (or the doctor's) phone calls. Once you're in their system, though, things seem better for contact. But it is nice to have the option to consult with Mass General and Dana Farber.
Count me incredibly impressed and hoping the best for your husband.