JJH wrote:NHMike wrote:...Do you have a link to what values mean and what normal range is?
The normal range depends on the particular assay or machine used for the test. Your lab report should indicate both the name of the assay/machine and the normal range for it. This might be in small print in a footnote or in small print in the right hand margin.
It is important to know which assay was used because normal ranges for diffrrent assays are different. For example, the Roche assay usually has a higher normal limit than most other assays.
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=54299&p=431407#p431407
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=51836&p=404364#p404364
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=53135&p=419830#p419830
Nextgen wrote:Hi All,
Mum CEA drop to 1.1
Praises be the Lord. Amen.
Shana wrote:My CEA was around 2900 on 1/3/17. Due to multiple hospitalizations mid January thru June they never retested me after my two rounds of Folfox. I guess they didn't think it mattered much since I was off chemo while trying to recover from various side effects of Folfox.
I asked my oncologist about that when we resumed chemo in July. She was at first alarmed by how high it was (1650) until I asked her what it was the last time and she saw 2900. I am getting CEA tested monthly now, just got the results in the mail and it said >1650, not a specific number. This is after 3 rounds of Irinotecan + Cetuximab. I am getting half dose each week to lessen the side effects so maybe the number will go down after another month of treatment...
I just read about single digit CEA numbers from everyone else that it's making me kind of nervous having such a high number. Could it be because they haven't been able to shrink the tumor enough to remove it? I'll be asking my oncologist these questions, just wondered if anyone else has had a very high CEA come down to single or at least double digits.
Thanks for any feedback
Shana
Shana wrote:I just found my first lab work report from 12/13/16 when I was still clueless about everything. My CEA was 6426 I definitely have a downward trend but omg that's a heck of a number. If I knew then what I know now I'd have freaked for sure!
I'll ask questions tomorrow and see if oncologist can shed some light on why my number is so high.
lpas wrote:Nextgen wrote:Hi All,
Mum CEA drop to 1.1
Praises be the Lord. Amen.
Yay!! So happy for you!
Nextgen wrote:Shana wrote:I just found my first lab work report from 12/13/16 when I was still clueless about everything. My CEA was 6426 I definitely have a downward trend but omg that's a heck of a number. If I knew then what I know now I'd have freaked for sure!
I'll ask questions tomorrow and see if oncologist can shed some light on why my number is so high.
I heard about high cea value in thousands range during my mum chemo times. One told me, Not to focus on it too much, it is just a number, like the number in the bank account.
NZJay wrote:Another higher than normal CEA guy here - always stayed NED regardless of slight rises
dschock1102 wrote:Nextgen wrote:Shana wrote:I just found my first lab work report from 12/13/16 when I was still clueless about everything. My CEA was 6426 I definitely have a downward trend but omg that's a heck of a number. If I knew then what I know now I'd have freaked for sure!
I'll ask questions tomorrow and see if oncologist can shed some light on why my number is so high.
I heard about high cea value in thousands range during my mum chemo times. One told me, Not to focus on it too much, it is just a number, like the number in the bank account.
My wife, diagnosed with stage IV colon cancer (liver mets) at age 32 just weeks after giving birth to our daughter, had an initial CEA of 8,800 at the time of dx (03/2015). She responded well to chemo and had a successful resection (07/2015). She is now 19 months NED since finishing chemo (01/2016) with a steady CEA in the 0.8-1.5 range. We are far from out of the woods, and she battles significant anxiety related to a recurrence, but I hope her story so far can serve as a reminder of the light at the end of the tunnel for so many facing this horrible disease. You are all in my thoughts.
dschock1102 wrote:Nextgen wrote:Shana wrote:I just found my first lab work report from 12/13/16 when I was still clueless about everything. My CEA was 6426 I definitely have a downward trend but omg that's a heck of a number. If I knew then what I know now I'd have freaked for sure!
I'll ask questions tomorrow and see if oncologist can shed some light on why my number is so high.
I heard about high cea value in thousands range during my mum chemo times. One told me, Not to focus on it too much, it is just a number, like the number in the bank account.
My wife, diagnosed with stage IV colon cancer (liver mets) at age 32 just weeks after giving birth to our daughter, had an initial CEA of 8,800 at the time of dx (03/2015). She responded well to chemo and had a successful resection (07/2015). She is now 19 months NED since finishing chemo (01/2016) with a steady CEA in the 0.8-1.5 range. We are far from out of the woods, and she battles significant anxiety related to a recurrence, but I hope her story so far can serve as a reminder of the light at the end of the tunnel for so many facing this horrible disease. You are all in my thoughts.
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