Still dizzy . . BUTT, still here . . .

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Still dizzy . . BUTT, still here . . .

Postby AnnClare » Thu Jun 15, 2017 9:50 am

So yesterday I was mildly (i.e. "regular") dizzy/off-balance, as compared to the way I felt on Tuesday. Today I feel somewhere in between how I felt - not as bad as Tuesday, butt a little more dizzy than yesterday. Still able to drive myself, though I try not to change lanes as turning my head increases the dizziness.

Tomorrow I meet with the neurosurgeon. I'm hoping he can alleviate some of my fears. From reading up on whole brain radiation, it seems the weeks following it (I'm just now into my 3rd post-rad week) you can experience symptoms like those of the tumor, due to brain swelling, and / or because dead tumor cells take longer to clear from the brain, due to there not being lymphatic drainage up there. Naturally, my greatest fear is that the radiation didn't work, etc.

I'll get my PET scan results on Monday from my onc, and I'm still coordinating a consultation with MD Anderson.

Butt like I say every day, "Not like this, and not today!"
42 yr. old female
Rectal cancer Stage 3C T3 N1 M0 - Sept 2015
28 rounds radiation w/Xeloda - Nov - Dec 2015
2/17/16 - Surgery to remove rectal tumor, lymph nodes (2/20+), ovaries & fallopian tubes, temp. ileostomy
3/28/16 - 9/26/16 -12 rounds FOLFOX w/full oxi
Ileo reversal 10/27/16; Port removed 12/1/16
Lung mets confirmed 2/6/17
March-May 2017 - brain mets; brain rad. 5/9-5/29/17

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Re: Still dizzy . . BUTT, still here . . .

Postby inorganic8 » Thu Jun 15, 2017 10:14 am

Hi, AnneClare

We haven't "met" because I am new to these boards. I have been thinking about you lately. I am not a doctor and have no experience with brain radiation. I have however had benign paroxysmal positional vertigo (BPPV). It sounds similar to what you are describing, especially with turning your head. Is it worth asking your doctor if there is even the slightest chance this could be coincidental BPPV? Could those radiation treatments have broken loose a couple of crystals in your inner ear?

Sorry for the armchair doctoring. Please stick with your experts and I hope you feeling better and better with each passing day.
Wife to wonderful man with CRC
Stage IV Diagnosis 1/27/17, Mets to Liver, Omentum, Peri
KRAS Mutation, G12, MSS
Folfirinox 2/8/17, completed 9 rounds
Follow-Up PET 4/13/17 - Very encouraging. Definite shrinkage and 2/3 liver mets resolved.
Follow-Up PET 6/13/17 - Very encouraging. Even more shrinkage.
Folfiri 6/14/17
November Scan - disease progression
1/24/18 15-hour HIPEC surgery. Complete cytoreduction
DH doing very well. Next scan in May

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Joined: Thu Sep 22, 2016 3:31 pm

Re: Still dizzy . . BUTT, still here . . .

Postby TXLiz » Thu Jun 15, 2017 11:35 am

Been reading your posts and rooting for you!

My heart goes out to you, you are giving it hell right back and doing an admirable job.

Good luck tomorrow, I will be thinking of you.
Vomiting and blockage 9/19/16 46 y F
R hemi colectomy 9/20/16
Stage 3 B CRC, located in cecum
3 out of 16 lymph nodes positive
perineural invasion/lymphovascular invasion
infiltrating, mod differentiated adenocarcinoma with a mucinous component
separate tumor nodules present in pericolonic adipose tissue
Baseline PET scan clear 9/16 CEA 0.5
FOLFOX 10/16- 3/17
April 16th, CT scan clear. CEA 1.1
Lynch "inconclusive"
Colonoscopy 10/5/2017 clear

Posts: 508
Joined: Wed Jun 03, 2015 4:33 pm
Location: Portland, Ore

Re: Still dizzy . . BUTT, still here . . .

Postby MissMolly » Thu Jun 15, 2017 3:26 pm

It is always a pleasure to see a post from you. Invariably, I learn some new wisdom or insight in your postings.

I know that driving is a vital aspect of independence, but I urge you to consider using Lyft or Uber to chauffeur you from point A to point B while vertigo and ataxia remain problematic.

I relinquished driving about a year ago. It was the right decision. I keep my driver's license current but have not been behind the wheel owing to low blood pressure and momentary loss of consciousness episodes (I took "down" a row of recycling bins while driving along the road where I live and later had a fender bender with a large truck. Mind you, I had never had a single moving violation or even minor mishap). It all transpired in the blink of an eye. What if I had hit a small child?

Give thought to using Lyft or Uber until your symptoms are better understood. You may hate me for suggesting this, and if so I apologize for butting in and commenting.

I will be thinking of you tomorrow and sending positive karma that your neurosurgeon is attentive and respectful in addressing your questions and needs and that you can feel a smidgen better with each day.
- K -
Dear friend to Bella Piazza, former Colon Club member (NWGirl).
I have a permanent ileostomy and offer advice on living with an ostomy - in loving remembrance of Bella
I am on Palliative Care for broad endocrine failure + Addison's disease + osteonecrosis of both hips/jaw + immunosuppression. I live a simple life due to frail health.

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Joined: Sat Aug 17, 2013 5:46 pm

Re: Still dizzy . . BUTT, still here . . .

Postby stu » Thu Jun 15, 2017 3:47 pm

All the very best for tomorrow. It will hopefully give you reassurance .
Take care,
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared

User avatar
Posts: 2222
Joined: Sun May 25, 2014 1:31 pm
Location: Capital of Texas

Re: Still dizzy . . BUTT, still here . . .

Postby peanut_8 » Thu Jun 15, 2017 5:02 pm

No words of wisdom, butt I'm thinking of you and your DH, AnnClare.
Best Wishes,
Terri aka peanut
diagnosed Jan 14, RC stage 2a, age 56
permanent colostomy
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED

Posts: 5565
Joined: Sun Apr 16, 2006 4:09 pm

Re: Still dizzy . . BUTT, still here . . .

Postby Lee » Thu Jun 15, 2017 7:45 pm


All the best tomorrow. Please let us know how it goes. You will be in my thoughts and prayers for good news tomorrow.

One day at a time.

Always, one of your fellow "ass kickers"

rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

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