Stage 4 cured

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mungo
Posts: 154
Joined: Fri May 23, 2008 1:43 pm

Stage 4 cured

Postby mungo » Tue Jun 13, 2017 2:24 pm

Can scarcely believe it but after just over 10 years, I have been discharged. Will continue to have routine colonoscopies but no more scanaxiety- which never got any better, even towards the end. I wanted to post one last time to give hope that sometimes things do work out, even with liver and lung involvement, as I remember vividly how very important it was to me to read positive stories, particularly in the middle of the night when it was hard to make myself believe there was any hope for me at all. This board was an utter lifeline to me and I wanted to thank all those who were around when I desperately needed support and information and to thank you all who continue to carry the baton now.
I wish you all the very best and the biggest, tightest hugs.
Stage IV
Left hemicolectomy Dec 2006
Liver resection March 2007
6 months FOLFOX
Thoractomy to remove lung met Aug 2011
NED again
"Above all,what matters is not to lose the joy of living in the fear of dying"Maggie Keswick Jencks

Lee
Posts: 4831
Joined: Sun Apr 16, 2006 4:09 pm

Re: Stage 4 cured

Postby Lee » Tue Jun 13, 2017 3:23 pm

AWESOME NEWS :D

Congratulation and I hope you do some celebration.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

Ron50
Posts: 603
Joined: Fri Feb 10, 2006 7:04 pm

Re: Stage 4 cured

Postby Ron50 » Tue Jun 13, 2017 4:05 pm

Congratulations, wishing you well for a healthy future free from cancer, Hugs Ron . ( twenty years next Jan)
dx 1/98
st 3 c 6 nodes
48 sessions 5Fu/levamisole
no recurrence cea <.5
numerous l/t side effects of chemo

AnnClare
Posts: 241
Joined: Wed Sep 09, 2015 3:31 pm

Re: Stage 4 cured

Postby AnnClare » Tue Jun 13, 2017 4:32 pm

mungo,

This is fantastic news! I am so very happy for you.
Thank you for sharing this here. :)
42 yr. old female
Rectal cancer Stage 3C T3 N1 M0 - Sept 2015
28 rounds radiation w/Xeloda - Nov - Dec 2015
2/17/16 - Surgery to remove rectal tumor, lymph nodes (2/20+), ovaries & fallopian tubes, temp. ileostomy
3/28/16 - 9/26/16 -12 rounds FOLFOX w/full oxi
Ileo reversal 10/27/16; Port removed 12/1/16
Lung mets confirmed 2/6/17
March-May 2017 - brain mets; brain rad. 5/9-5/29/17

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LPL
Posts: 228
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Stage 4 cured

Postby LPL » Tue Jun 13, 2017 5:44 pm

mungo,
Wonderful News :D :D :D So Happy for You !
Your post is for sure marked :!:
and saved in my "Hope - Positiv Posts" file :wink:
Thank you very much for sharing.
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma pt 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a Stage IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED for now :D
:!: Steroid induced hyperglycemia dx after 3chemo .. hospitalized, insulin -> Metformin
Surgeries (open):
3/18 Emergency colostomy 5/23 Primary+gallbl+colostomy reversal (+port) 9/01 Liver mets

Beckster
Posts: 87
Joined: Thu Jan 12, 2017 3:01 pm
Location: New Jersey

Re: Stage 4 cured

Postby Beckster » Tue Jun 13, 2017 6:36 pm

CONGRATULATIONS! :D :D :D
57/Female
DX:(CC) 10/19/16
11/4/16- Lap right hemi(cecum)
Tumor type: Adenocarcinoma
Tumor size: 3.5 cm x 2.5 x 0.7 cm
Tumor grade: G3 (surgical) G2 (biopsy from colonoscopy)
TNM: T3N0M0/IIA
Positive lymph nodes: 0 out of 24
Preoperative CEA- 1.9, Pre Chemo 2.5
Lymphovascular invasion
Surgical margins: clear
Lynch- Negative
12/27/2016 - Capeox, anaphylactic reaction to oxaliplatin on first infusion-discontinued
1/2/17 to 6/9/17- Xeloda monotherapy
6/26/17- CT scan and bloodwork (cea 3.6) NED :)

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HopeForJesse
Posts: 212
Joined: Wed Feb 24, 2016 9:39 am
Location: Philadelphia

Re: Stage 4 cured

Postby HopeForJesse » Tue Jun 13, 2017 9:03 pm

Big congrats and thank you so much for taking the time to come back and share hope! :)
DH DX 01/16 49 YO inoperable RC stage IV liver mets
MSS, mod dif adenocarcinoma, high grade dysplasia, TP53 APC,BRCA2
12/15 CEA 241, 4/16 CEA 22.3 >6 FOLFOX (2/16-4/16) 7/16 CEA 4.3 :D 8/10 5.3 11/17 1.8
LAR/ileo 5/17/16 Clear margins 1/29 nodes
HAI, reversal, liver (some wedge) resections (7) & ablations (3) 7/12/16
FUDR 8/10/16 FOLFOX resume 8/24 reaction to oxy -just 5FU 12/28/16 No more chemo :D
Ephesians 3:20 Our God is able to do immeasurably more than we can ask or imagine!

fumaros
Posts: 175
Joined: Sat Jul 02, 2016 10:26 pm
Location: Syracuse, NY
Contact:

Re: Stage 4 cured

Postby fumaros » Wed Jun 14, 2017 8:58 am

Three cheers, and a big congratulations. Glad to hear this news.
Diagnosed 4/8/16, age 29
Colectomy 4/20/16
Stage III, T4bN1 Tumor 7x6.5x2. Muscinous Adenocarcinoma with SRC features
2/16 lymph nodes
CEA 4/14/16 - 16.8
CEA 6/2/16 - 1.9
CEA 6/17/16 - 0.87, 7/16 - 1.33, 12/16 - 1.14, 4/17 - 0.6
FOLFOX began 6/24/16 - 11/25/16
10 round FOLFOX, 2 round 5-FU & Leucovorin
MRI & CT 8/16 - NED, CT 12/16 - 4/17 - NED

DanInMN
Posts: 81
Joined: Mon Apr 02, 2012 11:18 pm

Re: Stage 4 cured

Postby DanInMN » Wed Jun 14, 2017 9:16 am

Fantastic news. Thank you so much for sharing! :D :!: :D :!:
Dan - Male - Age 41
3/5/2012 - Colonoscopy - dx: sigmoid colon cancer
3/29/2012 - Colon Resection - growth through wall, 1 of 23 nodes, 4 tumor deposits - dx: Stage 3b
5/7/2012 - Begin Folfox
10/10/12 Finish Folfox
10/22/12 CT scan = NED
4/17/17 Lung nodule discovered to be colorecretal cancer met
5/12/17 Met removed

DarknessEmbraced
Posts: 2596
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Stage 4 cured

Postby DarknessEmbraced » Wed Jun 14, 2017 9:30 am

Congratulations! Wonderful news! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/2016
NED 11/10/16

Nick
Posts: 19
Joined: Mon Nov 14, 2011 11:52 am

Re: Stage 4 cured

Postby Nick » Wed Jun 14, 2017 2:34 pm

Awesome news!
Caregiver to Angie, 47, mother of 3
DX Feb 3, 2011, mets liver & lungs
resection, colon twist, TACE
FOLFOX/avastin - 12 sessions
Maintenance 5FU + avastin
Progression 7/12
starting FOLFIRIOX
Hospice 1/9/13
Angie passed January 26, 2013 at 3:13 am.

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BeansMama
Posts: 927
Joined: Thu Jan 28, 2016 1:38 am
Location: North Carolina

Re: Stage 4 cured

Postby BeansMama » Wed Jun 14, 2017 2:56 pm

Congratulations!!! Amazing news!
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016

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CRguy
Posts: 9039
Joined: Sun Feb 10, 2008 6:00 pm

Re: Stage 4 cured

Postby CRguy » Wed Jun 14, 2017 3:16 pm

Keep on dancin'
Many Happy returns !!!!

Cheers
CRguy
Caregiver twice
Stage IV A rectal cancer/lung met
10 Year survivor
my life is an ongoing NONrandomized UNcontrolled experiment with N=1 !
Review of my Journey so far
Image

TXLiz
Posts: 175
Joined: Thu Sep 22, 2016 3:31 pm

Re: Stage 4 cured

Postby TXLiz » Wed Jun 14, 2017 8:39 pm

CONGRATS! Very nice to hear!

I wish you a wonderful ever after!
Vomiting and blockage 9/19/16 46 y F
R hemi colectomy 9/20/16
Stage 3 B CRC, located in cecum
3 out of 16 lymph nodes positive
perineural invasion/lymphovascular invasion
infiltrating, mod differentiated adenocarcinoma with a mucinous component
separate tumor nodules present in pericolonic adipose tissue
Baseline PET scan clear 9/16 CEA 0.5
FOLFOX 10/16- 3/17
April 16th, CT scan clear. CEA 1.1
Lynch "inconclusive"

Nextgen
Posts: 12
Joined: Sun Aug 07, 2016 12:38 pm

Re: Stage 4 cured

Postby Nextgen » Fri Jun 16, 2017 1:02 am

Congratulations! Thanks for the encouraging news! :D
My mum 55yr on first diagnosis
Dx cc T3N2bM0 on Dec2011 CEA5.0, extended right hemicolectomy Dec2011, 12x Folfox CEA1.9,
Liver mets on Feb2014 CEA6.4, liver resection on May2014, 8x xeloda+cetuximab CEA2.8,
CT scan shows eccentric bowel wall thickening of rectosigmoid region Jul2016 CEA1.8, pending further colonoscopy investigation.
Colonoscopy on Aug2016 NED
CEA 1.4 Nov2016
CEA 1.5 Mar2017
CEA 2.1 Jun2017
God have mercy, bless & save mum! Amen!


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