sealdog wrote:Hi all,
Thanks for having me, I'm guessing this is going to be my first post in a very long journey.
I've recently been through a series of tests, Colonoscopy, CT and MRI, after my Mum was diagnosed with colon cancer last month!
Alas, I too have the condition, as did my Grandpa and did my Great Grandpa on my Mum's side. 4 generations!
Mum has thankfully has pulled through with diagnosis, surgery and recovery all within a month and a half. Now it's my battle.
Mum is also very likely Lynch, but more info is confirming that is coming.
Originally the colonoscopy said the tumour was 3cm semi-circumferential, bioposy moderately differentiated adenocarcinoma, located in the sigmoid colon, but CT and MRI are confirming high rectum instead, so my whole treatment plan has changed to rectal cancer focus, being radiotherapy, surgery then chemo. I've had one appointment with an onc and surgeon who are treating it like a stage 3. This obviously was kind of traumatic with the implications of a temporary bag while the bowel join heals, fertility risks, long term side effects etc
A couple of questions:
1) Would you go down this path at my age with treatment? It seems old hat, that much better alternatives might exist.
2) Surgeon told mum that her and I are "100% Lynch" based on what he has seen. He was amazing with Mum but I am struggling to accept his treatment plan armed with more information about our situation (Immunotherapy?)
Thanks for hearing me out. This has turned my long term partner and I's life upside down, but I want to fight the best I can.
sealdog wrote:Hi swirdfish,
Can't wait to be in your position on the otherside of treatment, it sounds like a long road.
Just had MRI and the surgeon said I'll be having an ULAR surgery as it is more mid than high. Still distraught with how the colonoscopy measurements were so off, sigmoid at 20cms, it baffles me, a totally different part of the colon from an experienced doctor
Now I'm dealing with what's to come, but first is six weeks of radiotherapy + chemo. Surgeon said I wouldn't need to have a bag for life, just while it heals.
You find bowel movements are bearable after reversal?
sealdog wrote:Wow thank you for those quick replies!
I'm Australian, I'm in Victoria and we are lucky with public healthcare paid with taxes, so lucky that money isn't a barrier, just acting on the right information and time.
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