sealdog wrote:Hi swirdfish,
Can't wait to be in your position on the otherside of treatment, it sounds like a long road.
Just had MRI and the surgeon said I'll be having an ULAR surgery as it is more mid than high. Still distraught with how the colonoscopy measurements were so off, sigmoid at 20cms, it baffles me, a totally different part of the colon from an experienced doctor
Now I'm dealing with what's to come, but first is six weeks of radiotherapy + chemo. Surgeon said I wouldn't need to have a bag for life, just while it heals.
You find bowel movements are bearable after reversal?
Hi Seal Dog,
Seems like your going to walk the same shoes as me, I also had ULAR surgery and mine was upper rectal cancer. I think I could have had just LAR but I think they took abit out. Yes 6 Weeks of radiation/chemo, 6 - 8 week break, surgery, 6 week break, then folfox for 8 cycles. Each different section of treatment has its different side effects, but don't be scared of a little pain meds etc. Surgery is also hard, and well chemo is horrible.
But hey im back at work now almost to start my FIFO lifestyle again. Neuropathy is a bitch from the folfox, and this may be an issue for you too. It, besides my bowel issues, is the only long lasting side affect. Its like on cold days having feet and fingers affected by frostbite. They are just so numb. But during treatment chemo I didn't have it in the feet, it actually got worse when I finished chemo and also after a couple of weeks.
Post reversal. I had my bag from the very beginning before radiation. They where scared that the radiation could cause me a complete blockage so in went the port and bag. Now post reversal. Life is like hell the first couple of days post reversal. I couldn't believe what they had done to me was what I was thinking in my head. Be prepared to lose a few pairs of shorts.
Im 12 weeks or 14 weeks post reversal. Life is great and most days im free to do whatever. I think immodium and Metamucil is my best friends. One the weekend I didn't take the medication, and I got stuck in a portaloo at a residential building site for 2 hrs 100 meters from a friends house as we were going for a walk. I thought right im good to go after two hrs, walked 50 meters and my shorts were ruined.
I appreciate everyday that I didn't get stuck with the bag, and if daily medication is what I need for the rest of my life to not keep losing pants, then I can deal with that.
I hope you get a good staging, and don't be afraid. You will fly through this and be on the other side like me back to a near normal life.
06/2016 Went in for colonoscopy came out with a tumor. Age 35
12cm from verge at junction. Rectal cancer.
Clinical stage T3 NO MO
Completed 5FU and Radiation
LAR surgery planned 13 Oct 2016
Completed ULAR surgery 11-10-2016.
pT3 N0 M0 R1
Pathology reviewed and changed
ypT3 N0 M0 R0
Started folfox 21-11-2016