Postby ocstacy » Tue Dec 19, 2017 3:15 am
1) Would you go down this path at my age with treatment? It seems old hat, that much better alternatives might exist.
2) Surgeon told mum that her and I are "100% Lynch" based on what he has seen. He was amazing with Mum but I am struggling to accept his treatment plan armed with more information about our situation (Immunotherapy?)
1.) I would def. research through reviews for a great board certified colorectal surgeon. I found my mom's through Yelp.com! USC colorectal surgery center had really good reviews and I interviewed some of the patients to hear their experience and they were all very pleased. We had to drive an hour each way, but it was really worth it. They are the best in the country so that made me feel more comfortable. The orig. surgeon the GI wanted to send us to had HORRIBLE reviews. I even had to switch my mom's insurance around so she would get seen at the best hospitals for her TX and surgery. My mom had her surgery on 10/17/17 and now has a temp ileostomy pouch. I didn't understand it either but now it's all a piece of cake. My mom is used to it and doing much better and had a "NEAR PATH. RESPONSE" (no lymph's effected) they got all the cancer but she will do clean up chemo for the next 6 months to get the microscopic floating watchamacallit's, to prevent any type of spread or new growths.
2.) Prior to my mom getting diagnosed, her Dr. thought she had bone cancer, lupis, etc. She actually had osteoporosis.. I actually diagnosed my mom and sent her to get a colonoscopy stat cause I knew in my heart something was very wrong after she told me what her symptoms were. She was always in pain in her pelvic area.. I am so mad that my father or brother never saw her in so much pain while living with her. You go with your gut feeling but do know to go to an experienced Dr. that specializes in this type of colorectal surgery. (LAP) I would think you would be getting neoadjuvant therapy for 6 weeks, than break, than surgery, than break, than clean up chemo right?
Caregiver/daughter to dear mother age 78, dx 5/09/17 because of me!!
Rectal CA Stage 3 low-grade adenocarcinoma- 6 cm
Neoadjuvant start 7/10/17 ended 08/16/17
3D Lap. surgery @ Keck USC, Dr. Sang Lee 10/17/17 temp ileostomy
11/1 hospitalized abscess/hernia - home 11/06/17 antibiotics
NO LYMPHS INVOLVED! NEAR PATHOLOGICAL RESPONSE! YAY!
Took her last chemo med 05/10/18! Ileo reversal 07/24/18
1st BM after reversal 07/25/18 Anal Fissure 8/15/18
Me:1st Colonoscopy age 38. 08/17 Benign polp.