What do you drink during cold sensitivity?

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Tdubz
Posts: 48
Joined: Sun May 07, 2017 11:01 am

What do you drink during cold sensitivity?

Postby Tdubz » Thu Jun 08, 2017 8:46 am

what is your favorite room temperature drink? I try to do water when I can, but for some reason it seems to taste funny in chemo weeks. Gatorade lemon lime has been my go to drink so far, just curious what everyone else does and maybe looking for some alternatives.

Soccermom2boys
Posts: 115
Joined: Tue Nov 10, 2015 10:29 pm

Re: What do you drink during cold sensitivity?

Postby Soccermom2boys » Thu Jun 08, 2017 3:49 pm

Hey Tdubz--

Nothing worse than drinking room temperature water, it is just not refreshing when it's not cold. I would have a cup of OJ, but I would let it sit out for a while until it wasn't so cold and then if it started to hurt a little when I swallowed because it was still on the cooler side, I would just take tiny sips at a time. One can only drink so much tasteless room temperature water. I would also use those Mio type flavor boosters you squirt in to water, just that the water had to be room temp. Another way to get some fluids in you is soup/broth. I realize it may be heading in to summer wherever you are and the thought of soup or warm broth is not what you were thinking, but when you want something with flavor and not cold, it does the trick! Good luck! I have been reading many of your posts and following your ups and downs with chemo, you are doing well and hanging in there with everything. It's a tough roller coaster of emotions and physical effects, but you're still staying on the rails, you got this! :D
8/3/15 Went in with a hemorrhoid, came out with a tumor
8/12/15 Biopsy from colonoscopy confirms RC (45 yrs old--zero family history!)
9/21 - 10/29/15 chemorad 28 tx (with Xeloda)
12/17/15 APR with perm colostomy
Pathology report stages me as IIIA (T2N1M0)--1/15 LN detects cancer
2/3/16 chemo port inserted
2/8-6/2/16 8 rounds of Folfox
With these odds, how have I not won the lottery already?!

TXLiz
Posts: 173
Joined: Thu Sep 22, 2016 3:31 pm

Re: What do you drink during cold sensitivity?

Postby TXLiz » Thu Jun 08, 2017 4:05 pm

Hot chocolate
Squeezable kool aid (the kid kind)
Teas that were boiled but cooled by sitting on shelf for a bit
Milkshakes I let get melty and not icy cold anymore
Crystal lite single serve packs in a bottle of room temp water, the lemonade flavor

Good luck!
Last edited by TXLiz on Thu Jun 08, 2017 4:07 pm, edited 1 time in total.
Vomiting and blockage 9/19/16 46 y F
R hemi colectomy 9/20/16
Stage 3 B CRC, located in cecum
3 out of 16 lymph nodes positive
perineural invasion/lymphovascular invasion
infiltrating, mod differentiated adenocarcinoma with a mucinous component
separate tumor nodules present in pericolonic adipose tissue
Baseline PET scan clear 9/16 CEA 0.5
FOLFOX 10/16- 3/17
April 16th, CT scan clear. CEA 1.1
Lynch "inconclusive"

Lee
Posts: 4822
Joined: Sun Apr 16, 2006 4:09 pm

Re: What do you drink during cold sensitivity?

Postby Lee » Thu Jun 08, 2017 4:05 pm

How about tea. Can drink it hot, cold or at room temperature.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

KElizabeth
Posts: 362
Joined: Sat Oct 31, 2015 12:41 pm
Facebook Username: KElizabeth
Location: Omaha

Re: What do you drink during cold sensitivity?

Postby KElizabeth » Thu Jun 08, 2017 5:25 pm

Room temp Snapple mango juice. Yummers.
I've microwaved coke or Dr pepper too and that was actually good.
Female age 38- ,two kids, age eleven and fifteen.
Colon Cancer - DX March 2013
Age 34 at DX - Stage III B
Resection surgery -May 2013
FOLFOX - June, 2013 to Sept, 2013
5FU plus leukavorin Sept, 2013 to Dec, 2013
METs liver and lungs discovered Sept, 2015
KRAS - MSS
FOLFURI plus Avastin - Sept, 2015 - current
Art therapy January 2015 to current
CEA at recurrence:10.1/august, 2015
CEA: 1.9 February, 2016
CEA:: 10.2 December, 2016
CEA: 40.3 January, 2017
CEA: 16.4 March 2017
Facebook.com/natureinink

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LeonW
Posts: 260
Joined: Sun May 03, 2015 4:59 pm
Location: Amsterdam, Netherlands

Re: What do you drink during cold sensitivity?

Postby LeonW » Thu Jun 08, 2017 7:16 pm

I mostly sought something that would cut through the slimy lining of throat and mouth: things like room temperature water, tonic water, or coca cola. Freshly squeezed orange juice was also nice. Besides these, I tried anything likeable that I could think of, if only for a single sip.
Leon
Dec 2012 - Dx CC; MM 65yrs, 2 unresect liver mets, CEA 41.8
Jan 2013 - colectomy @ spleen (IVa T3N1bM1a) 2/26 nodes, MSI-low
Feb-Aug - 1x Xelox-7x Xelox/Avastin, mets shrink from #3
Sept - 2x failed Portal Vein embolization
Oct 2013 - R liver resect 28 hosp days (liver failure, delirium, emboli, encephalopathy) Pathology: no cancer cells pCR (ypT0N0M0)
2014/15 - recovery; benign polyp Apr '15
Apr 2016 new house/town/life
clean CTs and 1.3/1.4 CEAs: 4x2014, 4x2015/16, May2017; next Nov 2017

Tdubz
Posts: 48
Joined: Sun May 07, 2017 11:01 am

Re: What do you drink during cold sensitivity?

Postby Tdubz » Thu Jun 08, 2017 7:47 pm

LeonW wrote:I mostly sought something that would cut through the slimy lining of throat and mouth: things like room temperature water, tonic water, or coca cola. Freshly squeezed orange juice was also nice. Besides these, I tried anything likeable that I could think of, if only for a single sip.
Leon



So the slimy lining isn't just me lol.

Steph20021
Posts: 472
Joined: Sat Dec 27, 2014 4:58 pm
Location: Ontario, Canada

Re: What do you drink during cold sensitivity?

Postby Steph20021 » Thu Jun 08, 2017 8:09 pm

TXLiz wrote:Squeezable kool aid (the kid kind)


Yesssss, I LOVEEEE koolaid Jammers!!!! In those little pouches! The blue raspberry and the Strawberry-Kiwi are the two best!
DX 1/31/14 @ 33- SPS-T4a(invades visceral peri), N2a(6/106 LN), M1a(ovary) (Stage 4a) MSS
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
10/14- rev ileo
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
7/15- clear flex sig
8/15-HIPEC, hysterectomy et al, 2nd temp ileo, NED?
09/15- cea 0.9
Current: abdo wall mets and lymph nodes
Jan/17- pulmonary embolism
Feb/17- 1 wk radiation to abdo wall
Current- folfiri 4 life

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horizon
Posts: 1382
Joined: Tue Apr 12, 2011 10:10 pm

Re: What do you drink during cold sensitivity?

Postby horizon » Thu Jun 08, 2017 8:41 pm

Microwaved water. I know how to party.
I'm just a dude who still can't believe he had a resection and went through chemo (currently 5 years NED). Is this real life?

TXLiz
Posts: 173
Joined: Thu Sep 22, 2016 3:31 pm

Re: What do you drink during cold sensitivity?

Postby TXLiz » Fri Jun 09, 2017 12:21 am

horizon wrote:Microwaved water. I know how to party.



LOL
Vomiting and blockage 9/19/16 46 y F
R hemi colectomy 9/20/16
Stage 3 B CRC, located in cecum
3 out of 16 lymph nodes positive
perineural invasion/lymphovascular invasion
infiltrating, mod differentiated adenocarcinoma with a mucinous component
separate tumor nodules present in pericolonic adipose tissue
Baseline PET scan clear 9/16 CEA 0.5
FOLFOX 10/16- 3/17
April 16th, CT scan clear. CEA 1.1
Lynch "inconclusive"

JudiB
Posts: 45
Joined: Sun Mar 05, 2017 5:30 am

Re: What do you drink during cold sensitivity?

Postby JudiB » Fri Jun 09, 2017 12:51 am

I drink Lukozade as my back up but not too much. Tea, room temperature fruit juices and water at room temperature. Yes it's horrid but I push it in!
Hope you find something acceptable!
Xx
May 2004 Breast cancer lumpectomy followed by radiotherapy, Tamoxifen 5 years, then Femara 2 years.

Jan 2017 resection around colo-rectal junction
T2bN1 M0
March 2017 Chemo Folfox started
June 2017 clear scan

Tdubz
Posts: 48
Joined: Sun May 07, 2017 11:01 am

Re: What do you drink during cold sensitivity?

Postby Tdubz » Fri Jun 09, 2017 7:48 am

horizon wrote:Microwaved water. I know how to party.


Lol!

helen098
Posts: 1995
Joined: Sun Jul 01, 2007 2:07 pm
Location: Forest Hills New York

Re: What do you drink during cold sensitivity?

Postby helen098 » Fri Jun 09, 2017 11:47 am

I used to take a glass of milk and a glass of oj and place them on my end table before my nap and drink them when they were warm
iced tea during chemo only

v8 and vitamin water is also very good warm along with dark chocolate ensure

was never able to drink coffee or soda during chemo
stage 3A surgery 6/6/6 finished chemo jan 07
11 5FU/12 Levcouorin/10oxaliplatim
port removed jun 07
anal fistula surgery oct 05 may 07 feb 08 sep 08 jun 09

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kellywin
Posts: 463
Joined: Wed Jan 23, 2013 4:46 pm
Location: Northern CA

Re: What do you drink during cold sensitivity?

Postby kellywin » Mon Jun 12, 2017 12:08 pm

Room temp Guinness...everything else tastes like shit.

Honestly, water tasted like shit. I would advise trying different kinds of bottled water, try Figi, Dasani, Aquafina, etc. They all have a slightly different taste and one may be more tolerable than the others.=m but damn water was so hard to drink.
Kelly, mom 12 yo girl
Dx 11/15/12 Rectal Cancer @ age 40
Stage IIIC
5.5 weeks Xeloda & Radiation - complete 2/5/13
Colectomy 3/12/13, 7 of 14 nodes positive - no ileo
4/24/13-8/20/13 - 5 rounds Xelox, 1 Xeloda only
7/2015 Clear colonoscopy!
4/2017 Clear CT!

DanInMN
Posts: 81
Joined: Mon Apr 02, 2012 11:18 pm

Re: What do you drink during cold sensitivity?

Postby DanInMN » Wed Jun 14, 2017 9:19 am

I kept a pitcher of water with a fruit holder thing in the middle in the fridge, and a glass of the water on the counter to warm up a bit. The little bit of fruit flavor made a big difference for me. The pitcher was something like this: https://www.amazon.com/dp/B0023UL86A/re ... 6348000801
Dan - Male - Age 41
3/5/2012 - Colonoscopy - dx: sigmoid colon cancer
3/29/2012 - Colon Resection - growth through wall, 1 of 23 nodes, 4 tumor deposits - dx: Stage 3b
5/7/2012 - Begin Folfox
10/10/12 Finish Folfox
10/22/12 CT scan = NED
4/17/17 Lung nodule discovered to be colorecretal cancer met
5/12/17 Met removed


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