So after 8 weeks post reversal i took the plunge and booked a holiday. Armed with my immodium and Metamucil i took off to Bali Indoneaia after many attempts to board the 4 hour flight only due to the wife having the wrong passport. Long customs ques and lots of standing around and taxis and finally we arrived at our accommodation.
Only one time did i not take the above medication and i payed the price but new undies are cheap. After a ten day stay of all day sight seeing parachute boating zoos monkey parks ive had a blast and its time to go home.
Neourpathy is a bitch in the air conditioning and often numb but i can live with this.
Alot of stares due to the scares but hey it doessnt worry me as ive a fit body anyway hehhe.
I get tired so maybe my doctor can prescribe me some uppers. Anyone else on these.
I can basically eat whatever. Was such a good deserved holiday and ive many people to thank.
I wish so much you all can enjoy something similar. When you all finally get to this position go and enjoy yourselves.
Its such a burden on relationships work and takes it toll on thd body heavily.
I may not post so much i the future.
Wish u all well. I will always think of and pray for you all.
Fish
Holiday Success
Holiday Success
06/2016 Went in for colonoscopy came out with a tumor. Age 35
12cm from verge at junction. Rectal cancer.
Clinical stage T3 NO MO
Temp illestomy
Completed 5FU and Radiation
LAR surgery planned 13 Oct 2016
Completed ULAR surgery 11-10-2016.
0/22 nodes
pT3 N0 M0 R1
Stage 2A
Pathology reviewed and changed
ypT3 N0 M0 R0
Started folfox 21-11-2016
5-4-17 NED
Reversal 12-4-17
12cm from verge at junction. Rectal cancer.
Clinical stage T3 NO MO
Temp illestomy
Completed 5FU and Radiation
LAR surgery planned 13 Oct 2016
Completed ULAR surgery 11-10-2016.
0/22 nodes
pT3 N0 M0 R1
Stage 2A
Pathology reviewed and changed
ypT3 N0 M0 R0
Started folfox 21-11-2016
5-4-17 NED
Reversal 12-4-17
Re: Holiday Success
Sounds like you had a wonderful time. Good for you!
Ann
Ann
Stage 3C (or 4?) Rectal Cancer 01/07
2/10 lung mets
3/11 VATS
6/11 VATS
7/13 lung met
2/14 SBRT
NED 8/14
5/17 scan and MRI found treated spine met
2/10 lung mets
3/11 VATS
6/11 VATS
7/13 lung met
2/14 SBRT
NED 8/14
5/17 scan and MRI found treated spine met
Re: Holiday Success
My husband got a prescription for Ritalin (Methylphenidate 5mg Tablets) from the palliative care nurse at his oncology office a couple weeks ago. I wake him up when I leave for work at 7:30 AM and he takes two, then goes back to sleep for awhile. When he wakes up, he has more energy, and feels more like being out and about. It does not give him jitters, and as long as he doesn't take any after 11 AM it does not keep him up at night. I was worried it might reduce his appetite, but so far it doesn't seem to be an issue.
05/23/14 DH dx Stage 3B rectal ca (age 41)
6/2014 chemorad | 10/2014 LAR, all nodes clean
FOLFOX x 10 | VATS/lung met | ileo reversal
09/15 local recurrence
10/15 colostomy
11/15 FOLFIRI x 4, major growth
02/16 tumor debulked
Stable ten months on Xeloda/Avastin
Growth on clinical trials NCT02024607 (BBI608 + FOLFIRI), NCT02817633 (anti-PD-1 + anti-TIM-3), NCT03175224 (c-Met inhibitor)
09/27/2018 started hospice
02/07/19 died
6/2014 chemorad | 10/2014 LAR, all nodes clean
FOLFOX x 10 | VATS/lung met | ileo reversal
09/15 local recurrence
10/15 colostomy
11/15 FOLFIRI x 4, major growth
02/16 tumor debulked
Stable ten months on Xeloda/Avastin
Growth on clinical trials NCT02024607 (BBI608 + FOLFIRI), NCT02817633 (anti-PD-1 + anti-TIM-3), NCT03175224 (c-Met inhibitor)
09/27/2018 started hospice
02/07/19 died
-
DarknessEmbraced
- Posts: 3817
- Joined: Sat Nov 01, 2014 4:54 pm
- Facebook Username: Riann Fletcher
- Location: New Brunswick, Canada
Re: Holiday Success
I'm glad you had a wonderful time! 
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured!
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured!
-
Steph20021
- Posts: 553
- Joined: Sat Dec 27, 2014 4:58 pm
- Location: Ontario, Canada
Re: Holiday Success
This sounds so lovely. I'm glad you were able to go and enjoy yourself. What a great way to celebrate your NED status.
DX 1/31/14 @ 33- SPS-T4a(invades visceral peri), N2a(6/106 LN), M1a(ovary) (Stage 4a) MSS; BRAF V600E
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
8/15-HIPEC, NED
09/15- cea 0.9
05/16- recurrence in abdo wall and lymph nodes
01/17- pulmonary embolism
02/17- 1 wk radiation to abdo wall
08/16- on folfiri
01/18-folfox
11/18- Beacon trial-encorafenib & cetuximab
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
8/15-HIPEC, NED
09/15- cea 0.9
05/16- recurrence in abdo wall and lymph nodes
01/17- pulmonary embolism
02/17- 1 wk radiation to abdo wall
08/16- on folfiri
01/18-folfox
11/18- Beacon trial-encorafenib & cetuximab
Re: Holiday Success
Swirdfish,
Love the way you describe how the holiday was a success for you - like charging batteries?!?
I'm so happy for you
A holiday like that was what DH & I was hoping for when we went on our trip around 5 weeks after his liver surgery. For us sadly it was a disaster. I, the caregiver, was injured in a traffic accident (not my fault) three days in to our planned 14 days holiday. Hubby has since then been forced to be the caregiver..
This was in October 2016 and sadly I am still not back to 'me before' (a lot of fractures).
However - I do still recommend taking a holiday from surgeries and treatments, realizing we were just unlucky.
Thank you for sharing & All the best to you ! /L
Love the way you describe how the holiday was a success for you - like charging batteries?!?
I'm so happy for you
A holiday like that was what DH & I was hoping for when we went on our trip around 5 weeks after his liver surgery. For us sadly it was a disaster. I, the caregiver, was injured in a traffic accident (not my fault) three days in to our planned 14 days holiday. Hubby has since then been forced to be the caregiver..
This was in October 2016 and sadly I am still not back to 'me before' (a lot of fractures).However - I do still recommend taking a holiday from surgeries and treatments, realizing we were just unlucky.
Thank you for sharing & All the best to you ! /L
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung NED again Oct-19
Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb & Oct lung mets
Adenocarcenoma 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung NED again Oct-19
Steroid induced hyperglycemia dx after 3chemoSurgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb & Oct lung mets
Re: Holiday Success
Swirdfish wrote:. . . i took off to Bali Indoneaia . . .
Fish
Sounds like a wonderful trip. I am so jealous.
Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!
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