Message from my friend Nik Colon

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MamaN
Posts: 666
Joined: Tue Dec 30, 2014 2:34 am

Message from my friend Nik Colon

Postby MamaN » Mon May 29, 2017 6:55 pm

I want to say hi to my friends and thank them for being there for me. I currently have 11 lung Mets and 2 liver Mets and doing Folfox again. Hope you are all doing well.

Nik asked me to do this for her she has been my friend since the day I met her here ...

Sorry I haven't been around much ...been a bit busy last two years ..hope and pray for everyone peace be with you .
Dx@45 stage t3 n1b m unknown IIIB
Resected in 8/2010 rectosigmoid
5.5 tumor with 3 /26 lymph nodes
Lymph vascular invasion
Folfox sept 2010 to feb 2011
10 tx only stopped due to low wbc

jhocno197
Posts: 817
Joined: Mon May 11, 2015 9:33 pm

Re: Message from my friend Nik Colon

Postby jhocno197 » Mon May 29, 2017 9:08 pm

Thank you! I have been wondering about her.
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17

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MikeManess
Posts: 86
Joined: Fri Apr 01, 2016 3:56 pm
Location: Forney, Texas

Re: Message from my friend Nik Colon

Postby MikeManess » Mon May 29, 2017 9:40 pm

Thank you for the message from Nik. Please pass along our hopes and prayers for her, and that we miss hearing from her on the forum.
3/11/16 Colonoscopy - 9 benign polyps, 1 large cancerous tumor in right ascending colon
4/19/16 Right colectomy
6/3/16 Two liver spots detected, added Avastin to Folfox
12/20/16 Liver surgery. Pathology shows no active cancer cells
6/7/17 Final chemo
12/5/17 Port removed
05/23/18 Liver tumor discovered in scans
04/04/19 Radiation treatment
08/15/19 Additional radiation treatment
08/21/19 NED again

fumaros
Posts: 273
Joined: Sat Jul 02, 2016 10:26 pm
Location: Syracuse, NY
Contact:

Re: Message from my friend Nik Colon

Postby fumaros » Tue May 30, 2017 2:23 am

Thanks for the update on her. Please give her my best wishes. She is missed.
Diagnosed 4/8/16, age 29
Colectomy 4/20/16
Stage III, T4bN1 Tumor 7x6.5x2. Muscinous Adenocarcinoma with SRC features
2/16 lymph nodes
Stage IV, Peri mets 5/2019
CEA 4/14/16 - 16.8
CEA 6/2/16 - 1.9
CEA 6/17/16 - 0.87, 7/16 - 1.33, 12/16 - 1.14, 4/17 - 0.6, 7/17 - 0.5, 10/17 - 0.9, 3/19 -5.8, 4/19 -10
FOLFOX began 6/24/16 - 11/25/16, FOLFIRI - 5/10/19
10 round FOLFOX, 2 round 5-FU & Leucovorin, 1 round FOLFIRI
MRI & CT 8/16 - NED, CT 12/16 - 10/17 - NED

DarknessEmbraced
Posts: 3523
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Message from my friend Nik Colon

Postby DarknessEmbraced » Tue May 30, 2017 3:03 pm

Thank you for the update. I hope that her chemo goes well!
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

justin case
Posts: 4266
Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

Re: Message from my friend Nik Colon

Postby justin case » Tue May 30, 2017 7:10 pm

MamaN wrote:I want to say hi to my friends and thank them for being there for me. I currently have 11 lung Mets and 2 liver Mets and doing Folfox again. Hope you are all doing well.

Nik asked me to do this for her she has been my friend since the day I met her here ...

Sorry I haven't been around much ...been a bit busy last two years ..hope and pray for everyone peace be with you .

Please tell Nik, I hope things go well for her !
7/11 diagnosed Stage 2 colon and rectal cancer
chemo/rad
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012

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HopeForJesse
Posts: 249
Joined: Wed Feb 24, 2016 9:39 am
Location: Philadelphia

Re: Message from my friend Nik Colon

Postby HopeForJesse » Tue May 30, 2017 9:11 pm

Yes, hello and best wishes and many prayers for Nik!
DH DX 01/16 49 YO inop RC stage IV liver mets
MSS TP53 APC,BRCA2
12/15 CEA 241, FOLFOX to 11/16
LAR/ileo 5/16 Clear margins 1/29 nodes
HAI, reversal, liver resections7/16
FUDR 8/16 -NED 3 mos
Rising CEA 3/17 Xeloda, 5/17 -12/17 Erbitux & Iri stable but lung/lymph mets CEA 2.7
5/18 5 days SBRT radiation to sternum 10/22/18 surgery to remove zyphoid process met
6/11/19 5FU added to cetuximab and irinotecan CEA 16
Ephesians 3:20 Our God is able to do immeasurably more than we can ask or imagine!

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Hannah Faulkner
Posts: 29
Joined: Tue Feb 14, 2017 3:14 am

Re: Message from my friend Nik Colon

Postby Hannah Faulkner » Wed May 31, 2017 2:12 am

Thank You for the update, My prayers are with Nik!

Lee
Posts: 6165
Joined: Sun Apr 16, 2006 4:09 pm

Re: Message from my friend Nik Colon

Postby Lee » Sun Jun 04, 2017 4:54 pm

Hi Nik,

I miss your posts around here. Hope you are doing well. I think of you (and your daughter) often.

Post when you can,

Always,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

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Sharon Brent
Posts: 288
Joined: Mon Oct 06, 2014 5:19 am
Location: London England

Re: Message from my friend Nik Colon

Postby Sharon Brent » Mon Jun 05, 2017 7:57 pm

Thank you very much for the update,

Please pass on my greetings and best wishes to Nik I also miss her posts here.

Sending strength and love over to her, she continues to be in my my prayers

Love always Piyagarn
DH, 47yo, Dx Stg IV, mCRC, lvr, lng 1/14, Tx Capeciabine 9 rnds
Children 5 & 1
DH 48th Birthday 6 November in Hospital
Home palliative care on 12 November 2014
Called back to Jesus 4pm 15 November 2014
Life Celebration in Nigeria 8 January 2015

JudeD59
Posts: 726
Joined: Sun Apr 12, 2015 12:16 pm

Re: Message from my friend Nik Colon

Postby JudeD59 » Wed Jun 07, 2017 1:13 am

Please give Nik my love and tell her that I miss her.

Judy
56 yrs old, wife, mother to 4 daughters
RC Stage II T3N0M0 DX April 2, 2015
6 cm. mid-rectum-CEA 121
Xeloda and radiation finished 06/15/15- CEA 242
CEA right before surgery 81
LAR performed 8/12/15 Temporary ileostomy
CEA 10-21-15 1.6
PET scan 11-4-15 All clear
Port installed 11/11/15
Folfox started 11/18/15
Folfox stopped due to bad reaction
Reversal 2/17/16
CEA 2/3/16 1.7
CEA 3/31/16 1.3
CT Scan 4/12/16 All Clear
Port removed 4/21/16
CEA 5/24/17 1.4

lpas
Posts: 1010
Joined: Wed Nov 19, 2014 11:11 pm

Re: Message from my friend Nik Colon

Postby lpas » Wed Jun 07, 2017 9:37 pm

Thinking of you, Nik, and wishing you well.
11/14 Dx sigmoid CC @ 45yo
12/14 Colectomy + hysterectomy
Stage IIIB, T3N1bM0, 2/20 nodes, MSS, G2, KRAS(A146T), TP53, SMAD4, ERBB2, CEA 1.0
2/15-7/15 XELOX & celecoxib
2/19 clean scope
11/19 clean CT
Ongoing cimetidine & other targeted supplements
Mom to a 6 & 8yo


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