Another anniversary

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LeonW
Posts: 358
Joined: Sun May 03, 2015 4:59 pm
Location: Amsterdam, Netherlands

Another anniversary

Postby LeonW » Fri May 26, 2017 7:42 am

Had a wonderful birthday over the week-end. It was a very special day as it reminded of the difficult days in 2013 when my liver resection went bad and lead to problems. Remembered also how I then begged for another year to have the time to take our kids (in their 30s and 40s then) on a final holiday into the Africa that we (wife and myself) traveled so often and that we learned to enjoy so much. To have a final time to share and pass along memories, values and experiences.

How things have changed. After pathology came with the best possible news (pCR- no living cancer) only a few weeks later; that my cancer could possibly be beaten. And that all analyses and scans since have been good. But despite this all, scanxiety is still here and with review of the latest tests due Tuesday, I couldn't resist to have an anxious, quick digital peek in the files, an hour ago. Again good results, 3 1/2 yrs after the last resection and 4 1/2 yrs since Dx.
No indications of liver mets or other spreading :D; all other exceptions (mainly cysts) stable too :D; and again low (1.3) CEA! :D

With so much uncertainty and bad news on this board these days, I thought of sharing my luck and wish that all here find hope and success in beating the disease.

Regards and thank you all for being here
Leon
Last edited by LeonW on Fri May 26, 2017 3:11 pm, edited 2 times in total.
Dec 2012 - CC 2 unresect liver mets, CEA 41.8 (MM 65yrs)
Jan 2013 - colectomy @ spleen 2/26 nodes IVa T3N1bM1a
Feb-Jul - 1x Xelox-7x Xelox/Avastin, shrinkage from #3
Aug - 2x PV embolization (both failed)
Sep 2013 - R liver resect, 25d hosp (liver failure/delirium, lung emboli, encephalopathy), no living cancer (pCR)
2014/15 - recovery, scopy: 2 polyps
2016 - new town/life
2018, scopy: 2 polyps
2018/20 low (1.0-1.4) CEAs/clean CTs: 4x2014, 6x2015-17, 3x2018-20
next June 2021!

JudeD59
Posts: 726
Joined: Sun Apr 12, 2015 12:16 pm

Re: Another anniversary

Postby JudeD59 » Fri May 26, 2017 10:31 am

That's wonderful news! Congratulations and Happy, Happy Birthday!

Judy
56 yrs old, wife, mother to 4 daughters
RC Stage II T3N0M0 DX April 2, 2015
6 cm. mid-rectum-CEA 121
Xeloda and radiation finished 06/15/15- CEA 242
CEA right before surgery 81
LAR performed 8/12/15 Temporary ileostomy
CEA 10-21-15 1.6
PET scan 11-4-15 All clear
Port installed 11/11/15
Folfox started 11/18/15
Folfox stopped due to bad reaction
Reversal 2/17/16
CEA 2/3/16 1.7
CEA 3/31/16 1.3
CT Scan 4/12/16 All Clear
Port removed 4/21/16
CEA 5/24/17 1.4

DarknessEmbraced
Posts: 3817
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Another anniversary

Postby DarknessEmbraced » Fri May 26, 2017 5:04 pm

Wonderful news! Happy Birthday!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Lee
Posts: 6207
Joined: Sun Apr 16, 2006 4:09 pm

Re: Another anniversary

Postby Lee » Fri May 26, 2017 5:08 pm

Awesome news, congratulation. And Happy Birthday.

Did you get to Africa with your kids yet.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

User avatar
juliej
Posts: 3114
Joined: Thu Aug 05, 2010 12:59 pm

Re: Another anniversary

Postby juliej » Fri May 26, 2017 5:08 pm

Thanks for sharing, Leon! Happy birthday to you, and may you have a long and healthy life!

Hugs to you!
Juliej
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1

User avatar
LeonW
Posts: 358
Joined: Sun May 03, 2015 4:59 pm
Location: Amsterdam, Netherlands

Re: Another anniversary

Postby LeonW » Fri May 26, 2017 5:36 pm

Lee wrote:Did you get to Africa with your kids yet . .

Clever question, Lee.
As with other things in life, good intentions diminish in importance once the pressure is over . . . :oops:

The celebrations caused remembering the despair of fall 2013 and that nothing happened since! We're comparing diaries though and are targeting for September/October for a grand tour together. Another major step on the way back to normal life. Same for getting one's priorities right.

Image and thank you all for the congrats.

Best wishes from beautiful sunny Amsterdam
L
Dec 2012 - CC 2 unresect liver mets, CEA 41.8 (MM 65yrs)
Jan 2013 - colectomy @ spleen 2/26 nodes IVa T3N1bM1a
Feb-Jul - 1x Xelox-7x Xelox/Avastin, shrinkage from #3
Aug - 2x PV embolization (both failed)
Sep 2013 - R liver resect, 25d hosp (liver failure/delirium, lung emboli, encephalopathy), no living cancer (pCR)
2014/15 - recovery, scopy: 2 polyps
2016 - new town/life
2018, scopy: 2 polyps
2018/20 low (1.0-1.4) CEAs/clean CTs: 4x2014, 6x2015-17, 3x2018-20
next June 2021!

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Maia
Posts: 2443
Joined: Fri Aug 24, 2012 8:00 am

Re: Another anniversary

Postby Maia » Sat May 27, 2017 12:37 pm

How happy for you, Leon
Thank you for sharing, and wishing you many good, happy birthdays!!

mariane
Posts: 704
Joined: Sun Sep 13, 2015 6:16 pm

Re: Another anniversary

Postby mariane » Sat May 27, 2017 2:06 pm

Congratulations, Leon!

Enjoy your life! Lots of sun this summer in Amsterdam and wherever your road will take you. Trip to Afrika sounds fantastic.

Thank you for all the support you gave me during my surgeries. I will forever be grateful!
mom of now 14 years old twins, dx @ 40 in 6/2015 with upper rectal cancer, 10+ liver mets, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!

Joannerogers
Posts: 260
Joined: Tue Jun 16, 2015 4:50 pm

Re: Another anniversary

Postby Joannerogers » Sat May 27, 2017 7:19 pm

Great news! Happy birthday and happy anniversary!
53yo married 27 years, 2 children, 24 and 25
Diagnosed april 23,2015 rectosigmoid
Starting CEA 1845
Port placement and liver bx April 27
Folfox started april 29
Avastin added on May 6
Stage IV crc with mets to 50% of liver

10/13/15 dc'd transfusion #12...toxic
Pet/ct scan on 11/3/15
20% liver resected all margins clear 11/30/15
8/18/15 cea 21.
9/15/15 cea 13.9
10/13/15 cea 14.4
1/22/2016 cea 2.5
LAR 02/15/16 all clear

User avatar
LeonW
Posts: 358
Joined: Sun May 03, 2015 4:59 pm
Location: Amsterdam, Netherlands

Re: Another anniversary

Postby LeonW » Mon May 29, 2017 3:39 am

Thank you all for your kind words. I'll update in Nov for certain (5 yrs from Dx, 4 from surgery then). Am keeping fingers crossed that that review will be good again (but merely hoping that and typing it causes nervousness again). Let's rephrase that to 'good results as intention'.

To Mariane: Thanks for your kind words. That pCR's may predict 'NED forever'
To Mariane and Lee. Africa trip will be early October to mid-November; will book tickets today :D

Thank you all, Leon
Dec 2012 - CC 2 unresect liver mets, CEA 41.8 (MM 65yrs)
Jan 2013 - colectomy @ spleen 2/26 nodes IVa T3N1bM1a
Feb-Jul - 1x Xelox-7x Xelox/Avastin, shrinkage from #3
Aug - 2x PV embolization (both failed)
Sep 2013 - R liver resect, 25d hosp (liver failure/delirium, lung emboli, encephalopathy), no living cancer (pCR)
2014/15 - recovery, scopy: 2 polyps
2016 - new town/life
2018, scopy: 2 polyps
2018/20 low (1.0-1.4) CEAs/clean CTs: 4x2014, 6x2015-17, 3x2018-20
next June 2021!

Haptinseele
Posts: 1
Joined: Sat Mar 04, 2017 3:27 am
Facebook Username: Katharina.Köhler

Re: Another anniversary

Postby Haptinseele » Mon May 29, 2017 3:56 am

congrats... that's just amazing, I know I'm a bit late but better later than never. Hope i am going to get the same results for my father as well as soon as possible.
Last edited by Haptinseele on Thu Jul 27, 2017 12:43 pm, edited 1 time in total.

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Annemiek
Posts: 304
Joined: Tue Apr 07, 2015 4:05 am
Location: The Hague, Netherlands

Re: Another anniversary

Postby Annemiek » Mon May 29, 2017 6:48 am

Hey Leon!
Great news! Sunnyweather in Amsterdam! Brilliant! :lol:
Oh and congrats on your latest. Are you still on half year checks as well?
They allow me to come back every three months for cea ( 1.9!! ) and half year ct/ ultrasound
I've just got my 2,5 yr ultrasound back, all still clear.

Lots of love,
Annemiek

Ps? This summer strandtent with the other kankerlijers?

43 yr mum of a girl aged 7
10/2014 coloncancer stage IIIc
11/2014 HIPEC, tumor removed + 12 positive out of 60 ln
hysterectomy, abdominal lining partly removed
Peridonitus, stoma fitted, 6 abcesses drained in abdomen
MSS, kras
3/2015 Folfox, someones playing kill Bill inside me
9/2015 finished 12 rounds,
First scan results: NED!!!!!!!!!
4/2016 ct scan: NED!!!
7/2016 ultrasound: NED
10/2016 cr scan: NED
5/2017 ultrasound: NED 2,5 yrs!
CEA 8/2017 1.8 stable.
CT scan 11/2017 NED! 3 yrs
CEA 1.9

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CRguy
Posts: 10474
Joined: Sun Feb 10, 2008 6:00 pm

Re: Another anniversary

Postby CRguy » Mon May 29, 2017 9:42 am

Cheers buddy

Glad things are going well for you

Keep racking up those wonderful memories and anniversaries !

Cheers
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far


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