I'm still here

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drebay
Posts: 220
Joined: Thu Mar 20, 2014 5:39 pm
Location: Oregon

I'm still here

Postby drebay » Thu May 25, 2017 1:14 pm

Missed you guys. Lost the website again. Not doing well. I am on oxygen and considering Home Hospice. No treatment for quite some time, as I tried them all. Gonna read and catch up with you all are doing and going through. Just wanted to say Hey.
6/13 Age 45 mom of 11 and 13 yr old DX Stage IV liver mets
7/13 colon surgery
9/13 Folfox
11/13 Xeliri
3/14 more liver mets
4/14 Lung Met
4/14 Liver resect delayed;lung resect done
5/14 Surg not an option
9/14 Stivarga
3/15 Back to IV Chemo
6/15 Avastin
9/15 In Clinical Trial

drebay
Posts: 220
Joined: Thu Mar 20, 2014 5:39 pm
Location: Oregon

Re: I'm still here

Postby drebay » Thu May 25, 2017 1:17 pm

Forgot to add (have to try submitting three times) that I was told that making Christmas 2016 was likely, but not long after that. Liver is loaded with tumors though.
6/13 Age 45 mom of 11 and 13 yr old DX Stage IV liver mets
7/13 colon surgery
9/13 Folfox
11/13 Xeliri
3/14 more liver mets
4/14 Lung Met
4/14 Liver resect delayed;lung resect done
5/14 Surg not an option
9/14 Stivarga
3/15 Back to IV Chemo
6/15 Avastin
9/15 In Clinical Trial

User avatar
Maia
Posts: 2443
Joined: Fri Aug 24, 2012 8:00 am

Re: I'm still here

Postby Maia » Thu May 25, 2017 1:27 pm

drebay, it is so nice to 'see' you! Here we are. Sending you a warm hug, and wishing you that today is a comfortable day, with some happiness to enjoy.

drebay
Posts: 220
Joined: Thu Mar 20, 2014 5:39 pm
Location: Oregon

Re: I'm still here

Postby drebay » Thu May 25, 2017 1:33 pm

Thank Maia. Glad to "see" you too.
6/13 Age 45 mom of 11 and 13 yr old DX Stage IV liver mets
7/13 colon surgery
9/13 Folfox
11/13 Xeliri
3/14 more liver mets
4/14 Lung Met
4/14 Liver resect delayed;lung resect done
5/14 Surg not an option
9/14 Stivarga
3/15 Back to IV Chemo
6/15 Avastin
9/15 In Clinical Trial

JudeD59
Posts: 726
Joined: Sun Apr 12, 2015 12:16 pm

Re: I'm still here

Postby JudeD59 » Thu May 25, 2017 1:44 pm

We missed you, too. Glad you are still here and came by to say hey. Sending hugs and hoping your day is spent surrounded by love.

Judy
56 yrs old, wife, mother to 4 daughters
RC Stage II T3N0M0 DX April 2, 2015
6 cm. mid-rectum-CEA 121
Xeloda and radiation finished 06/15/15- CEA 242
CEA right before surgery 81
LAR performed 8/12/15 Temporary ileostomy
CEA 10-21-15 1.6
PET scan 11-4-15 All clear
Port installed 11/11/15
Folfox started 11/18/15
Folfox stopped due to bad reaction
Reversal 2/17/16
CEA 2/3/16 1.7
CEA 3/31/16 1.3
CT Scan 4/12/16 All Clear
Port removed 4/21/16
CEA 5/24/17 1.4

User avatar
juliej
Posts: 3114
Joined: Thu Aug 05, 2010 12:59 pm

Re: I'm still here

Postby juliej » Thu May 25, 2017 2:20 pm

Grateful for the update, but hate that you’re having a rough time. Please know that you are in our hearts whether or not you can post. Sending positive thoughts and energy your way!

xoxoxo!
Juliej
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1

peanut_8
Posts: 2340
Joined: Sun May 25, 2014 1:31 pm

Re: I'm still here

Postby peanut_8 » Thu May 25, 2017 2:39 pm

Sorry you're not feeling very well.

Image

Hope that an 'internet hug' helps a tiny bit.
peanut
female, diagnosed Jan 14, RC stage 2a, age 56
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED

User avatar
Maia
Posts: 2443
Joined: Fri Aug 24, 2012 8:00 am

Re: I'm still here

Postby Maia » Thu May 25, 2017 3:29 pm

Deb, your daughter is 17, right? Has she learnt to drive? : )

drebay
Posts: 220
Joined: Thu Mar 20, 2014 5:39 pm
Location: Oregon

Re: I'm still here

Postby drebay » Thu May 25, 2017 4:10 pm

Yes, she received her Driver's License! Thanks for asking. She is still on the 6 month probation with the state. Here new drivers under 18 cannot have another minor is the car (unless related). So, no outings with friends yet.
6/13 Age 45 mom of 11 and 13 yr old DX Stage IV liver mets
7/13 colon surgery
9/13 Folfox
11/13 Xeliri
3/14 more liver mets
4/14 Lung Met
4/14 Liver resect delayed;lung resect done
5/14 Surg not an option
9/14 Stivarga
3/15 Back to IV Chemo
6/15 Avastin
9/15 In Clinical Trial

User avatar
Maia
Posts: 2443
Joined: Fri Aug 24, 2012 8:00 am

Re: I'm still here

Postby Maia » Thu May 25, 2017 8:11 pm

I'm soooo happy to hear. You mentioned your wish of seeing her getting her license, years ago. I'm really delighted to know this. xoxoxoo


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